I chanced upon your post here as I too am a Crohn's patients for 14 years, and I'm a Filipino! Been checking forums from time to time to see if there are pinoys with IBD out there.
How is your sister? Have you come to terms with your doctor? Did you find another doctor? There are a lot of doctors, gastroenterologist, here that are knowledgeable with IBD. You just have to find them. Find those who have handled quite a few patients. I know a few doctors.
The difference between Crohn's and UC is in terms of the
location and nature of lesions, and symptoms. Like the thickness of the lumen, cobblestoning, ulcerations, rectal bleeding, etc. In CD=there are skip lesions, in UC=the whole colon is affected with lesions. The gastroenterologist will be the one to make that diagnosis.
Im taking maintenance medicine. No major surgeries. Intestines intact. Quite a few lesions here and there. But basically, manageable.
Hope you find this helpful. Let me know if you need any info re IBD in the philippines. You know there are very few of us here. :)
Hi everyone! My sister had colonoscopy almost 5 years ago because of severe stabbing pain on her lower left abdomen (ultrasound of pelvis didn't find anything), where the left pelvis is, and bleeding bowel movement. Ulcers were seen. However, being from the Philippines, where this disease is very rare, the Gastro doctor told us that he and most of the doctors here were not familiar with IBD, because of lack of experience and not enough knowledge for specific diagnosis. He even asked if we had any Caucasian blood, because it's mostly a 'Westerner' disease. That, we don't really know of whether we had any.
So anyway, he couldn't then differentiate surely whether it was Ulcerative Colitis or Crohn's. But he was sure it was IBD. With how it supposedly looked, for him it was more of UC.
Unfortunately, he couldn't do further tests because he didn't know much. We just saw on research that you need more tests to be able to differentiate Ulcerative Colitis vs. Crohn's. Sadly, my poor sister has suffered because of not getting proper treatment. She only took Salofalk for a while, but it even caused her more bleeding. The doctor said he didn't know of any other treatment.
Disheartened that doctors don't know much about IBD here in our country, in the next 5 years, we just tried to manage her disease by diet and supplements. That stabbing pain she feels has never stopped, even a single day. Finally, we have tried again this month to see whether there could be a better doctor.
We have found our current doctor who 'specializes' in IBD among Filipinos. He ordered another Colonoscopy. The results are confusing!
- The colon is normal. Not a single ulcer or wound can be seen. All those ulcers seen in the scopes 5 years ago have gone missing. How could it be gone when she stopped taking any medicine?
And she's in a panic mode now because how come she has diarrhea and blood in stool everyday, with stabbing pain, but the colonoscopy results appear to show "endoscopic remission"?
She has celiac disease too, that she gets worst when she eats gluten. Her other symptoms related to IBD are gastritis, indigestion, GERD, allergies and intolerances. But what's mysterious is her weight gain is unstoppable. From the whole ordeal, even with all the bleeding and she has gained 100 pounds.
How could the visible ulcers disappear from the colon, when all the symptoms like bleeding and pain in the same spot in the lower left abdomen, have remained? Could the ulcers just have disappeared? The new doctor said that she could be in remission. But how could it be, when she's in pain? A remission with flare up at the same time? Is there any other type of Colitis that is like this?
Right now, we are waiting for the biopsy results that would come out next week. Our doctor then would tell us more what he thinks that is. But we are hoping to hear from you guys to know if this confusing case sounds familiar to you and what possible explanation there is.
Please share if you can relate to our story or know of a similar development. Thank you much guys!