Basically I had not felt really "well" for several years (mainly after an MMR vaccination). But my complaints weren't really GI, it was depression, muscle twitches, fatigue, anxiety, insomnia. Then things got acute (as far as GI/diarrhea) after I had gone to the dentist and been given an antibiotic injection, led to the ER and when the infectious disease doc blew me off, I got assigned a GI, got scoped and was told it was "active UC." One strange thing is that when I was in the hospital, one of the nurses mentioned that many people my age had been coming in with UC for the first time, but after she told me that the nurses clammed up and I was told they couldn't talk about
I believed it and have been taking Colazal and the occasional 5asa enema since 2006. I ended up switching GI docs along the way. My last two colonoscopies were clear - no indication of disease, but I do periodically get "flare ups" with cramping, diarrhea etc and so I have stayed on the Colazal. I used to plead with my old GI to consider other causes for my "UC" because it felt like something came on suddenly and could depart just as suddenly...but he always just told me that he "wasn't a researcher" and would get irate if I asked anything other than usual GI protocol.
the time that I found I was compound heterozygous for the MTHFR mutation and about
to pay out of my own pocket to get a lyme test (after having been blown off by mainstream rheumatologist and infectious disease) my new GI informed me that my colitis was a case of acute infectious colitis, and that they had reviewed the pathology - the slides. She refused to treat me with antibiotics as she said the infection was "long gone."
I have a LLMD and have been treating the infections with herbal treatments and now an antibiotic called "Alinia." So far I am feeling great. The last probiotic I added made me herx, and I got some cramping and bowel movements, but it has gotten better since I take them after eating.
All I can tell you is I was diagnosed with chronic ulcerative colitis for 10 years which was under control with Colazal, and now I am getting much better with all of my many bizarre symptoms with treatment for lyme disease and coinfections. This alone should make this big news in the UC community...it just makes sense that many others have an infectious cause and perhaps do not have UC.
I am over on the lyme disease board at healingwell now. I wish I had more time to spend in here, but I am so busy with work, personal life, and now lyme treatment. But I am feeling great. The only caution, don't waste your time going to mainstream doctors with this concern. They DO NOT care and do not admit the existence of chronic lyme disease. You will waste your time and money needlessly if you ask a regular doctor or GI about
this. Also - steroids suppress your immune system and if you have an infectious cause for your "UC" I would be very careful with suppressing your immune system.
Post Edited (doors12) : 10/29/2016 10:46:26 PM (GMT-6)