Sure. I'd certainly never hedge my bets on it (or my colon/TI), but I found the research so far interesting. Most surgeons probably don't want to pro-actively operate on a 'hot' or cranky abdomen, anyway. :)
re TI biopsy
The GI doctor did not tell me if he biopsied my TI.
He said "pan colitis" and that there was so much 'swelling' at the TI that he didn't enter it.
He also showed me pics of my UC on his computer screen, which is much more than any previous GI doc has done.
He's an old school doc (~70) and doesn't tell me things like my bloodwork numbers.
Due to how I feel doctors under-share my test results, I have started going to LIFELABS for my blood draws. I like them for two reasons. #1 There a patient can make an online account and view their test results. #2. They also offer the Calprotectin test (GI inflammation), which I hope to get done.
[I'm not an nurse, but I spent 4 years in a BSN program, so I'm NOT liking the mushroom treatment... esp with Pancolitis AND being on Imuran. I need to know every test's numbers. LOL]
I hope to be transferred to Mount Sinai. I am scared to have my Ileo-cecal valve getting damaged, as Bacongirl mentioned and was so kind to warn me about
I feel that it's function is starting to be impaired -- nausea, reflux, light headedness, weird headaches, LRQ/URQ pain, etc. This may also be the Pancolitis at work.
Yesterday I went to the Mount Sinai ER to ask to be switched to their IBD program.
They are writing my GP to see if I can be sent there to assess me for Crohn's and TI complications.
Things are really affecting my marriage and my 7 year old is not wanting to go to school (and leave me) because he sees me so sick and running to the ER with the abdominal pain attacks.
I've got to get this under control.
Desperate to start Remicade.
Post Edited (emmalouwho) : 5/10/2016 10:24:24 AM (GMT-6)