It's been a while since I've been on here, lots of new faces and lots of old ones. Hope all is well.
Quick update. Quit smoking 4 years ago. Had been in remission for two or three years prior to that. Was taking asacol 6- 800mg tabs a day. When I quit smoking, I started juicing. I never felt better. Eventually went off all meds and continued with a very high raw vegan diet. Did that for 2 years. Had a scope and the doc said he wouldn't have known I had UC IF HE HADNT BEEN TREATING ME for 13 years.
Well, I got a little cocky and was too self assured. Started eating processed food hear and there and decreasing the amount of raw food and juice I was I taking. Within a few months I was eating a full blown SAD diet again and every symptom I had prior to juicing and going raw vegan returned with a vengeance. I started juicing, but at this point, I was I in a flare. 21 days into my fast, my UC continued to flare. I went back on meds.
They weren't helping. The only symptoms I had were diarrhea, mucus, pressure in my rectum and lots of blood. No cramping, etc which marked me believe the inflammation was only in the rectum. Started the generic Rowasa and that didn't help either.
Ended up In the hospital. I was a mess. Test positive for c-diff. Went on a plethora of antibiotics. Within a couple weeks I felt better. Tried going back to a da vegan diet, but I had to will power. Continued eating SAD. 2 months later, the flare up was back. I tried everything to get it under control over the course of 6 months. Nothing that had worked in the past was working now. Had more tests done. No c-diff. Went on prednisone in February. Low dose, weening every 5 days by 5 mg. started out taking 30. When I got to 2 A day, I started bleeding so I bumped back up to 3 a day and staying on them for 1 week. I started juicing again. Went down to 2 a day and no bleeding. Did that dose for a week and then eventually weened off entirely. Continued juice fasting until I reached day 40. No sign of blood. Decided to break my fast and go gluten free again but just vegan not all raw. My first meal was homemade crushed lentil soup. The next day, blood. I've been eating and it's getting worse again.
Saw my doc and he wants me to try a new med while taking my asacol. He told me my choices are remicade, humira or 6mP. He won't put me on prednisone again so he put me in ucerif or something like that. It's a steroid, but is not as bad as prednisone. I just don't like my options and want to seek a holistic Doctor.
I'm beside myself. Still no cramping....just blood and mucus, but the majority of my BMs are solid. I'm so baffled. I want my health back.
UC, moderate to sever
4800 mg Asacol & Rowasa
-Caused Drug Induced Lupus
40 mg Nexium
Prednisone @ 20mg/day
LDN - 4.5/day
Vitamins D, B12, C
Probiotic 2x's/day/10billion CFU's
Varying supplements by Standards Process prescribed by Chiropractor based on response testing weekly
Gluten egg dairy soy corn free diet
Post Edited (Trixy's Got Butt Trouble) : 3/18/2017 5:34:46 AM (GMT-6)