I know of one healing well poster, Charlie3, has had great results with entyvio. She usually chimes in on posts like this, about
how great it's worked for her. I can't think of many others off of the top of my head.
I see from your post history that you've failed remicade and imuran, and have a surgery date in July. Essentially, you're trying entyvio, yourself, as a medication of last resort. Often entyvio is a medication of last resort before surgery, most have failed one or more biologics before trying it. As such, a lot of the posts here haven't shown entyvio to have a lot of good results. Could be more a population-bias, the fact that most who try it have already proven to be unresponsive to all other treatments, more than the medication not working.
The entyvio infusion is given by IV under the supervision of a nurse (very similar to your remicade was). They mix the medication and prepare the IV bag. The infusion once it starts takes 30 minutes from start to finish, much quicker than remicade.
I've heard entyvio is a slow acting medication that takes 12-14'weeks to show a response in some uc patients. Maybe you'll get a quicker response, I don't know. I'd try to remain a little optimistic but also grounded that it may not work. How long you choose to wait for results is entirely up to you. It's a tough call, but many of us can relate being steroid-dependent and struggling with uc symptoms with no sense of relief in sight. You're young too, 16, so it's doubly-tough: you should be enjoying life not struggling like this...
It could be entyvio or it could be surgery. Either way I'm sure you'll find a way to be uc symptom free. Good luck and hang in there!
Moderator Ulcerative Colitis
John, 38, UC in histological remission
Rx: Remicade @5mgs/kg/8wksHell hath no fury like the explosion of noise and pinching from the 33gram fluff of parrotlet whom I accidentally woke on my shoulder
Post Edited (iPoop) : 6/7/2016 2:02:23 PM (GMT-6)