Thanks guys :p
I could almost swear I had a partial obstruction, which I'm still getting over. But every time I convince myself I have a stricture, tests show no sign of one :/ It's the late afternoon here and so far I've had two cups of tea and a litre of chocolate-flavoured coconut water. Last night my stomach was hurting so badly I had to take two painkillers to kill the pain enough to (eventually) fall asleep. I am hungry but I think I'll try to go without solids for today. I want to try and clear my system completely. There was no gurgling or rumbles at all last night and earlier on, but now it's non-stop.
I'm the opposite of a few people here and find most high-protein foods rather hard to digest, even eggs. That won't stop me eating meat however >_>. And I love curries, but they most certainly don't love me back in return. I've given up on Indian curries for the time being they're so indigestible. Thai curries are better, although right now I don't think I'd do well with one...
The two years before my first surgery was a weird time for me. That was the only time I was ill enough to lose my appetite, but it never lasted for long because I would be given steroids, in or out of hospital, and be eating like a champ in no time at all. However I did have a proper stricture then, which came and went according to how bad the inflammation was and so except for when I was on the highest dose of steroids I was usually on a low-residue diet. The steroids were amazing: they made me feel human again, but I just couldn't stay on them ;_;
(Entocort, while okay, had nothing like the effect of IV steroids or even 40mg pred.)
The trouble is, I get so bored with a low-residue diet I end up rebelling and eating all kinds of sh!t that I sort of know isn't a great idea for my gut but go ahead and eat anyway: fries, hamburgers, most vegetables, nuts, and so on. As a child, I wouldn't have dreamed there would be a day when I miss eating vegetables and salads freely, but I really really do now. Even with an ileostomy I could eat more than I do now, but I wasn't free to just eat literally anything - there would be consequences.
But the pain has been bad so recently, I think I am gonna try a strict low-residue diet for a week and see how that goes. I might even have a go at making chicken broth and soup - shame it's not winter for that. Gonna make a list and go to the supermarket soon.
@iPoop - Well, I'm still waiting to see if the 6MP will kick in. Have been on 50mg for 7 weeks now, so there is still time. Also due to have a TPMT test after 12 weeks of starting it, so it's possible my dose could be raised depending on what that shows. However, I don't have any great hope for 6MP if I'm honest. Next step will be a biologic (probably Entyvio), but that won't be easy to get onto and I'm worried about
potential funding issues blocking the way.
@aimz - I was on Fortisips so much in the two years before surgery. They are horrible -_-. Think I will find it harder to get them diagnosed now than I did back then, given that I'm no longer underweight, don't have a diagnosed stricture, etc. Probably would have to get my GI or surgeon to do it and I don't see them much anymore, partly because half the time when I do have an appointment it gets cancelled and pushed back by months.
Phew. I'm about
ready to collapse after that humungous reply <_<. I'm getting hungrier as dinnertime draws closer... :-/
Dx Crohn's in June 2000. (Yay )
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP