I have seen at least 8 GI in my area and no one supports ldn.
I have started ldn on my own based oon forumas my only other option was remicade.
Scared and confused right now. Don't know if I'm doing right thing.
I was reading up a bit on LDN, and the bit that stood out to me was this:
"Patients who were studied in the available trials maintained treatment with other Crohn disease medications, such as aminosalicylates, corticosteroids, and immunomodulators. The use of low-dose naltrexone as monotherapy has not been studied"
" Although low-dose naltrexone may offer benefit as adjunctive (meaning, ldn is an add-on, or additional therapy to standard uc medications) in patients with active Crohn disease, this treatment remains investigational owing to limited supporting evidence."Source:
Essentially they're saying the patients didn't drop their standard medications and only use LDN. That'd be my recommendation, keep taking Imuran and LDN. As LDN is involved with Opioid signalling, and shouldn't interfere with Imuran's WBC reducing affect.
Why risk flaring by reducing medications? Stick with what's working now, an all of the above approach.
Moderator Ulcerative Colitis
John, 38, UC in histological remission
Rx: Remicade @5mgs/kg/8wksInvisible illness: Wow you look great, did you loose weight? Me: I lost 20 pounds in a month through this great new program called IBD and I wasn't even hungry! All I had to do was be doubled-over in pain and have frequent diarrhea. You should try it.
Post Edited (iPoop) : 6/20/2016 2:08:54 PM (GMT-6)