Elimination diet, what to look out for?

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UC555
Regular Member


Date Joined Aug 2016
Total Posts : 66
   Posted 8/7/2016 7:24 AM (GMT -6)   
Hi everybody, I've recently been diagnosed with Ulcerative Colitis and immediately went on a very restrictive diet to give myself the best chance of healing and getting rid of the blood.

For a week I ate nothing but eggs,fish,chicken and virgin coconut oil for cooking. No seasonings at all and only water to drink. I've been so hungry/bored and desperately in need of some carbs. 2 days ago I cracked and decided to add 1 sort of carb into my diet, was thinking potato,rice or white bread. I opted for white bread because that's what I was craving most.

I've had 4 slices per day for 2 days and the only thing I've noticed different is a lot of noise/gurgling/groaning coming from my intestines.

Is this a sign that something in the bread is not agreeing with me and potentially making me more inflamed/slowing down my healing?

What else should I look for when introducing foods?

imagardener2
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Date Joined Jan 2010
Total Posts : 5702
   Posted 8/7/2016 8:10 AM (GMT -6)   
Some people (including me) are sensitive to wheat (white bread is made from wheat) and being gluten-free has helped my gut heal. Gluten shows up in wheat, rye and is in a lot of ready-to-eat products. An elimination diet should not really include wheat until you are ready to start adding foods back in one at a time to see if that food causes problems.

Potatoes would be my suggestion for a safe carb because potato starch is gut friendly. My gut LOVES potatoes in all ways and gives me energy all day long with no hunger.

From my own diet tests I found out that almost all grains, including white rice, cause my gut problems. The only bread that works for me however is Udi's White Sandwich Bread which is based on white rice. Weird but my gut has no probs with a slice a day at breakfast with mucho butter.

Everyone's gut likes/dislikes different foods so you will have to decide whether yours is OK with gluten-bread (what you are currently eating has gluten) or not.

Good luck with your elimination diet. It's not easy but in the end you should have some answers that help you decide if food affects your gut and can help control your inflammation.
Diet=gluten-free modified Paleo+potatoes+low dairy, low fruit, no seafood (IBS),low fiber diet
In remission April 2010 after 10 years of UC after no remission ever
gluten-free (bleeding stopped), dairy-free (less IBS) started remission path+food diary
daily: 4 g curcumin pills (no piperine) and 1 Ginkgold tablet
rarely: VSL#3, mesalamine enema, Canasa supp

TroubledTurds
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Date Joined Jan 2004
Total Posts : 8328
   Posted 8/7/2016 8:13 AM (GMT -6)   
eliminating potentially harmful food is a good idea - as long as you know what those foods are that are harming you -

but in order for your body to heal, it needs nutrients - you can't starve yourself to get rid of UC - short term fasting can give your colon a break, but long term you need food -

what was your diet like before UC ?

*edit*

after reading Ima's response, i'll echo her re the grains - i too avoid meds by avoiding grains - i'm hesitant to suggest such heresy, but for me, it is very simple - no guess work, just don't eat em -

but unlike Ima, i eat tons of fruit with no issue - also veggies, raw or cooked, no problem - so again, for me, avoiding gluten, rice, corn, oats, etc., is easy - not saying it would be easy for you or anyone else - you just have to find your own path -
dx'd with pancolitis 12/21/03
current supplements:vit D, cal/mag, Psyllium Seed powder/Heather's Acacia fiber/ L-Glutamine/Hemp powder slurry 1x/week - grain free/paleoish diet that includes 100% grass fed beef, raw goat milk, & local organic free range eggs, lots of all natural well water, exercise, sleep as much as possible & enjoy this great life that God has blessed me with :-)

Post Edited (soynomore) : 8/7/2016 8:23:03 AM (GMT-6)


UC555
Regular Member


Date Joined Aug 2016
Total Posts : 66
   Posted 8/7/2016 8:51 AM (GMT -6)   
Yeah that makes a lot of sense if you have a gluten intolerance. Would you guys of noticed a worse reaction than my increase in intestinal noises/gurgling if you had of had 8 slices of white bread over 2 days during a flare? Do you think these noises are a bad sign?

My diet before diagnosis last month wasn't the best but not awful, usually porridge for breakfast with whey, baked potato with a meat protein and beans or a sandwich for dinner, tea could be anything from a homecooked meal to fast food, no alcohol, quite a few sweets through the week though. Does this make a difference?

I'm thinking of trying some mashed potato later with a tuna steak, I usually love mashed potato but the thought of having it without lashings of butter isn't exciting me at all, especially because I'm going to the park soon with my wife and kids and they're all getting fish and chips from the chippy, their version sounds so much better than mine haha.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30508
   Posted 8/7/2016 10:27 AM (GMT -6)   
What meds are you taking?

What is the extent of your UC......limited or throughout?

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 6 twice daily with meals; Vitamin D 4500 IU
~URSO for PBC(or PSC?) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

imagardener2
Veteran Member


Date Joined Jan 2010
Total Posts : 5702
   Posted 8/7/2016 10:56 AM (GMT -6)   
8 pieces of white gluten bread in 2 days would cause constipation then later bleeding for me, porridge does the same for me due to the fiber.
Only you can tell if noises are good/bad for your gut, obviously something out of the normal is going on.

My diet before UC was very healthy, diet did not cause UC for me but now my UC gut is not the same healthy body part it once was so I help it heal by being careful to eat food that does not aggravate it.

Are you avoiding butter because you are dairy-free at this time? When I make mashed pot. I use chicken broth rather than milk to mash them, then a lesser amount of butter, although butter does not annoy my gut at all. Try seasoning your potatoes with herbs and salt and pepper. You can make your own oven fried chips using olive oil, they are delicious, season as you like. The way I make my oven chips is to bake a potato, let it cool then slice it and put it on a cookie sheet with olive oil and a bit of salt. Turn them over in 10-15 minutes and brown the other side. Yummy. Every time we have a baked potato for dinner I make extra so the next day we have oven fried potatoes. You can also cook in a pan on stovetop but takes more oil and careful monitoring not to burn them.

Post Edited (imagardener2) : 8/7/2016 10:59:37 AM (GMT-6)


UC555
Regular Member


Date Joined Aug 2016
Total Posts : 66
   Posted 8/7/2016 12:16 PM (GMT -6)   
Hi Quincy, I'm currently taking 40mg of pred and 4.8mg of ozacol. I made another thread earlier titled "newly diagnosed with uc, pred advice" if you'd like any more details. Don't have a clue about the extent TBH, was just told you've got UC and sent on my way.

imagardener2, maybe I spoke to soon about the bread not causing any discomfort. I decided to try the tuna and mashed potato out about 2 hours ago and it went down nicely, then about an hour I got a abdominal pain/tenderness that I haven't had before, not unbearable or that bad I need painkillers but quite uncomfortable. I'm presuming this can't of been the potato so soon so maybe the bread? The other days I've had it later in the day so maybe I was asleep by the time any discomfort came, today I had at 07.30am and the pain came about 6pm.

The chicken broth and mash idea sounds great, would give it some much needed flavour, I've been scared to try salt and pepper. I'll have to try those oven chips out to if I find out I can tolerate potato. Think I'm going to lay off the bread for a few days and focus on the potato, see if this pain goes away.

Craving something sweet at the minute even if just a drink, really want to take it 1 step at a time though so I'm resisting. Crazy to think that 1 month ago I could eat whatever I wanted, starting to think life might never be the same again.

Thanks for all your replies, it's really helped today speaking to people who know what I'm talking about.

imagardener2
Veteran Member


Date Joined Jan 2010
Total Posts : 5702
   Posted 8/7/2016 12:49 PM (GMT -6)   
First start asking for copies of all your medical reports, colonoscopy, blood tests, everything. Keep a file at home and google anything you don't understand. Or ask here, there are some very smart people.

Your stomach discomfort sounds (with previous gurgles) like your GI system is having trouble processing food. Yes lay off all bread and maybe cut out strong fiber for a few days. Take a fiber pill instead.

It's so hard to pinpoint which foods cause what because of the delay in reactions. Some obvious fast reactions come from stimulants like chocolate, coffee and tea, etc but others take as long as a day or more because they get "stuck" due to inflammation. Doctors have quit telling UC people "eat more fiber" because not all of us can tolerate fiber. There are absolutely no foods that everyone can tolerate so you have to make your own list.

Mesalamine enemas are very helpful to heal the lower area which is where all UC starts. Even if your diagnosis is proctitis they will help. If he/she says "no" get another GI.
Diet=gluten-free modified Paleo+potatoes+low dairy, low fruit, no seafood (IBS),low fiber diet
In remission April 2010 after 10 years of UC after no remission ever
gluten-free (bleeding stopped), dairy-free (less IBS) started remission path+food diary
daily: 4 g curcumin pills (no piperine) and 1 Ginkgold tablet
rarely: VSL#3, mesalamine enema, Canasa supp

UC555
Regular Member


Date Joined Aug 2016
Total Posts : 66
   Posted 8/7/2016 1:21 PM (GMT -6)   
It could only be the bread or potato, most probably the bread because I doubt potato could cause discomfort within an hour of eating it? Bread is now banished again for the time being. Went down so nice aswell, gave me some much needed energy.

Does a fibre pill have a different effect to eating fibre? Which 1 do you guys take?

I'll definitely ask for copies in the future that's a good idea, not so sure if it will work with the NHS though, can't be as pushy about things when your not paying unfortunately.

fishface
Regular Member


Date Joined Mar 2013
Total Posts : 47
   Posted 8/7/2016 4:28 PM (GMT -6)   
I am also NHS and my GP, hospital etc has been fine about giving me printouts of blood tests, sig results, etc. (Well, when their printers are actually working!)
I so get you about the food boredom. I was particularly fond of chillies. And chocolate cry
Had UC since Nov 2011. Allergic to mesalamine. Can't take steroids. Some luck with VSL3. In remission since June 2013 via nicotine.
Flaring again Jul 2016 thanks to high-dose vitamin D.

imagardener2
Veteran Member


Date Joined Jan 2010
Total Posts : 5702
   Posted 8/7/2016 4:49 PM (GMT -6)   
Does a fibre pill have a different effect to eating fibre? Which 1 do you guys take?

It does for me. I cannot eat high fiber foods, causes constipation. People here take different types of fiber pills but the only one my gut tolerates is non-flavored Citrucell (pill not granules). You may have try a couple to find one that suits you.

NiceCupOfTea
Elite Member


Date Joined Jan 2010
Total Posts : 10488
   Posted 8/7/2016 4:49 PM (GMT -6)   
Such a drastic change of diet is probably playing havoc with your gut flora and even starving it out. Doubt you're making things any better for yourself and more likely just making them worse. Cutting out all carbs is a particularly bad idea.

The meds are there to do the healing. Admittedly they don't always work; but then if meds don't work, it's even less likely that diet will. (Yes, there are very rare exceptions to this, but zero exceptions for severe disease. Dunno what yours is classed as, mind.)
Dx Crohn's in June 2000. (Yay skull)
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP

UC555
Regular Member


Date Joined Aug 2016
Total Posts : 66
   Posted 8/8/2016 4:05 AM (GMT -6)   
Fishface- that's good to hear, i need to go to the doctors today to pick up another pred prescription so I'll try and get some printouts from them. Don't get me started on chillies/spice. I could happily eat chicken/fish and potato all day long if it had some spice with it. I miss Indian food badly and it's only been a few weeks.

Imagardener2- I don't think constipation will be a problem with me that's for sure, it's strange how were all so different though, 1 extreme to the other with some of us. I seem to see a lot of people mention psyllium husk on here, might give that a go.

Nicecupoftea- your view is very interesting, certainly different to everything else I seem to have read. Do you tend to keep your diet just the same whether your in a flare or not then?

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 12344
   Posted 8/8/2016 5:45 AM (GMT -6)   
When I was on 40mgs of prednisone no single food really agreed with me. Rather everything I ate caused discomfort, blood, diarrhea, etc. It's not to say it's impossible, but certainly I'd bet it's much harder to measure the results of an elimination diet when flaring badly.

Everyone's elimination diet solution is different and individual. Only you can tell what it is, through experimentation, trial and error. It takes time, patience, and repetition to find true problem foods with a food diary that tracks what you ate and your uc symptoms the next morning. Some (but not all) IBD patients have troubles with gluten and/or dairy either as an intolerance or as a sensitivity. So, they're commonly mentioned as things to eliminate, and then reintroduce and see if they bother you. I enjoy dairy and gluten, no troubles.

Certainly don't starve yourself. Eat foods that are believed to be safe and easy on your gut. Things like rice, chicken, potatoes, soups, etc. Raw foods are harder on the gut to digest, take more time to digest, and can give us troubles when we're flaring (our digestive track moves very fast when flaring). Very spicey foods, high fiber, caffeine, and alcohol can all aggravate our digestive tract when flaring and are best avoided until you exit your flare. Bland foods are your friend when flaring.

I tried diet modifications and had zero improvement in my uc symptoms, some swear by them, so everybody is different. Just look for tangible results, and if you don't see them then eat normally. With uc there's no one-size-fits-all solution that works universally with everyone. It's not that easy.
Moderator Ulcerative Colitis
John
, 38, in a minor flare, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/8wks; nightly rowasa; 20mgs pred

Prednisone + All you can eat buffet = Amazing (But expect to be forcibly removed after the 3rd hour of eating by some rather angry restaurateurs)

Post Edited (iPoop) : 8/8/2016 5:50:05 AM (GMT-6)


UC555
Regular Member


Date Joined Aug 2016
Total Posts : 66
   Posted 8/8/2016 6:26 AM (GMT -6)   
It seems a confusing illness, so much conflicting information out there. Maybe I've been looking at it the wrong way, I've seen it as the less I put in the quicker I will heal, can't keep losing weight at this rate though. 9lbs down in 11 days.


Great news for you that you can tolerate Gluten and Dairy, I don't want to imagine a life without cheese/pizza. What are people's opinions on sugar during a flare? I've cut it out completely but haven't seen many people that mention avoiding it.

When people say certain foods bother them do they mean that they start another full blown flare and then you have to go through all the pred again for weeks on end?

ambling
Veteran Member


Date Joined Feb 2011
Total Posts : 710
   Posted 8/8/2016 7:35 AM (GMT -6)   
Hi uc555,

You ask great questions, and I wish there were clear answers.

Remember that people post about things with which they are personally familiar.

There is much trouble discerning between something that; seems to trigger a flare, worsens symptoms, or actually causes a flare. No one can generalize about these things, though they may try!

It is hard to know when people talk about 'sugar' whether they are speaking of carbohydrates in general, or 'table sugar'.
Carbohydrates (simple and complex) are essential for the human body.
The types you use in your diet are determined by your response, and need. Simple sugars are easily digested, and can be extremely useful when calories are low and energy needs high. Complex sugars take slightly more time to digest, but are also extremely useful. Foods often contain combinations of different types of carbohydrate, protein and fat. Understanding the chemistry involved is far from easy.

Because of the complexity and individuality, you might here people (including medical professionals) saying that a bland diet is helpful in the early stages. They usually also say to make it as nutritious as possible. And that is usually as far as they are able to go.

It sounds like you are doing just that, and doing that well.

It is individual, as many suggest.

All the best to you.

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 12344
   Posted 8/8/2016 7:53 AM (GMT -6)   
"It seems a confusing illness, so much conflicting information out there."

Exactly that is uc in a nutshell. You'll find lots of contradictory information, worked miraculously for someone, did absolutely nothing for another, even made another's symptoms a lot worse. Uc is a disease defined by it's clinical appearance and symptoms without knowing the actual cause. Some have suggested uc is actually an umbrella of multiple distinct diseases with different causes and solutions that just happen to look the similar under a microscope/colonoscopy. There's medical journal articles and a lot of glowing testimonials for specific treatments that make it sound easy that there's a clear solution and convince ourselves of it. However, your results will vary, there's no guarantees, and it could do nothing or, worse yet, even make things worse.
Moderator Ulcerative Colitis
John
, 38, in a minor flare, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/8wks; nightly rowasa; 20mgs pred

Prednisone + All you can eat buffet = Amazing (But expect to be forcibly removed after the 3rd hour of eating by some rather angry restaurateurs)

Post Edited (iPoop) : 8/8/2016 7:56:28 AM (GMT-6)


CCinPA
Veteran Member


Date Joined Dec 2014
Total Posts : 965
   Posted 8/8/2016 10:39 AM (GMT -6)   
When I am flaring badly, I eat very lightly -- mostly liquids, chicken, eggs, noodles. cheese, bananas. As symptoms start improving I slowly add other foods. When in remission I eat almost everything, though if I eat a lot of fresh fruits and raw vegetables it speeds things along too fast. And certain foods I won't touch ever -- like sauerkraut -- because they gave me problems even before I ever had UC.

It's possible the bread may have bothered you if you hadn't had any for a while and then ate 4 slices in a a single day. Too much after not having any for a while. Perhaps if you try again and just have 1 piece of bread/day for a couple days and see how it goes.

Diet mod is very individual. Even healthy people can be bothered by certain foods that don't affect others. It's a trial and error thing. Basically go slow on adding foods back that you had previously eliminated so you can let you body adjust to the "new" food again and then you will be better able to see if something bothers you.
57 yo female diagnosed w/UC to mid transverse 1/1/13, now UC or Crohn's colitis
Current meds: Entyvio 7/22/16, Asacol HD 2 Tabs 3x/day, Prednisone, Capozide 1/day (hypertension). omeprazole. OTC: Loratadine 1/day, multivitamin 1/day, homemade Nopal water. Past: Apriso, Colazal, Lialda, Uceris, azathioprine- had to discontinue due to elevated liver enzymes.

NiceCupOfTea
Elite Member


Date Joined Jan 2010
Total Posts : 10488
   Posted 8/8/2016 11:36 AM (GMT -6)   
UC555 said...
Nicecupoftea- your view is very interesting, certainly different to everything else I seem to have read. Do you tend to keep your diet just the same whether your in a flare or not then?


Yeah, but that's because I'm never not in a chronic flare. I've had Crohn's colitis for 16 years and for the vast majority of that time my disease would rumble/simmer along at roughly the same pace for months or even years at a time. But every so often I would have an acute flare-up and when it was over, my baseline activity would be a little worse than before.

The acute flare-ups were usually brought quickly under control with steroids, but while they lasted I couldn't really eat anything, bland or otherwise. These days, after two surgeries, the cycle seems to have reset itself and I'm in a chronic but stable flare: c'est la vie.

The severest diet I tried - an elemental liquid diet - made me much worse and I didn't last for longer than 2 weeks (it was meant to be a 6 week course). I also tried changing my diet in other ways, but found it didn't make the blindest bit of difference whether I ate the most expensive organic meat or pop tarts: it all caused diarhoea, pain and fevers when it passed through my lower GI tract. The *only* thing which helped was to eat less, so I did. Eventually I ended up semi-anorexic and very underweight. The only thing which reversed it was becoming so bad I needed to be on steroids almost continuously for 18 months; on steroids I was 'well' and could eat handsomely.

I don't post much on this board partly because I find myself getting more and more impatient with some of the diet posts. People should feel free to follow whatever diets they want to of course; and even posting about it is fine. I just don't have much time for the notion that I am expected to "respect" diet as an equal treatment to meds. I don't believe it and the science is with me on that one. People may not like it, but GIs say that diet doesn't make any difference for a reason: that's because it mostly doesn't (and what little evidence there is favours Crohn's (small bowel Crohn's at that) over UC).

People who have severe disease also need to get on the strongest meds as early as possible, and not waste time on diets, if they want the best possible chance of saving their colon.

Edit: Sorry, I am just unbelievably cranked today. In large part as a result of my crap stomach, ironically enough. And, no, there is no food under the sun which won't give me symptoms: the concept of eating x, y and z foods and having no symptoms doesn't exist for me. The benefits are I can eat small amounts of everything, 'cos why not. The drawbacks are if I want a respite I can't have one: I have to eat.
Dx Crohn's in June 2000. (Yay skull)
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP

Post Edited (NiceCupOfTea) : 8/8/2016 12:53:45 PM (GMT-6)


Verucasalt2.0
Regular Member


Date Joined May 2016
Total Posts : 210
   Posted 8/8/2016 1:16 PM (GMT -6)   
@NiceCupOfTea, I'm basically in your camp, been there done that with the diet thing. I now worship at the alter of Humira to keep things tamed. When you're flaring, you're flaring and you're only eating because you have to, so you choke down the least amount of food that will cause the least harm. That's how it is in my case. Sorry you're not feeling well. 🙁

I'm just gonna leave this here for you. I'm sensing you could use a laugh. I have a coworker, love her but she's driving me batty with her constantly going on about her "leaky gut" problems and her new found religion of going gluten free. I'm ready to chuck a copy of Wheat Belly at her head. Another co-worker sent this to me and it's pretty frick'n funny.

/youtu.be/Oht9AEq1798
Dx'd with UC 2/15, also have: psoriasis, psoriatic arthritis, Graves and Thyroid Eye Disease
Current meds: Humira + Balsalazide, levothyroxine, Zyrtec + Flonase for allergies
Supplements: iron, Biotin, tumeric, probiotics

What does not kill us makes us stranger - Jessica Jones

UC555
Regular Member


Date Joined Aug 2016
Total Posts : 66
   Posted 8/8/2016 2:10 PM (GMT -6)   
Wow, thanks for all the responses guys.

Well I just fell off the bland elimination diet wagon, ate a sausage roll, a muffin, some biscuits, sweets and a glass of mango juice. Was really good but feeling a little stupid now. Definitely think I went in too hard with the diet straight away though and restricting myself so much probably made it inevitable to happen at some point. Let's see what tomorrow morning brings.

Nicecupoftea- sorry to hear about what you've been threw over the past 16 years, I'm sat here moaning over a few weeks when you've had 16 years of it. Sounds awful. Would it be safe to say that at this point youve given up on ever finding true remission?

NiceCupOfTea
Elite Member


Date Joined Jan 2010
Total Posts : 10488
   Posted 8/8/2016 6:03 PM (GMT -6)   
@Verucasalt - Thanks for the link; it gave me a few chuckles! I've never heard of the guy before but I'll check out a few of his other videos on the basis of that one.

@UC555 - Yes, I have given up I'm afraid :-/ I did best when I had an ileostomy for two years and am thinking about going back to one - this time for life. However, I'm incredibly anxious about the prospect in case it doesn't cure the pain (at least I know it will cure the urgency!). Having an ileostomy should make things a lot better, but after my experiences I don't like dealing in 'shoulds' anymore: I want cast iron guarantees!

Anyway, glad you enjoyed your binge but hope you don't suffer any consequences from it tomorrow.
Dx Crohn's in June 2000. (Yay skull)
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP

Canada Mark
Veteran Member


Date Joined Jan 2013
Total Posts : 3529
   Posted 8/8/2016 9:07 PM (GMT -6)   
Hi UC55

I have a suggestion possibly, but it depends on your current bowel movements over the last while.

Finding foods your system reacts to is simple really.... provided you have pretty solid stool. That's the key. If you have loose stool and/or mucus it can be much harder.

If you have solid stool you now have a 'history' so to speak of seemingly safe foods from your strict diet. Take for example adding your white bread. In this case if you return to a day or two of your 'safe foods', does the issue go away? If yes, wait another day or two and perhaps try yet again with white bread. If the same reaction occurs you know your system does not like it. Now you can cross white bread off your list and move on to adding/trying more foods one at a time in the same manner.

The plus side (if you had solid stool) would also be that you know that if you fall off the bandwagon for whatever reason, you can always pick up by returning to you safe foods for a few days. I;ve been there lot's of times.

Life became easy for me to identify very specific food triggers this way, but I had to get to solid stool to really fine tune things.

If you have loose stool it can be a bit more tricky - when I had loose stool I concentrated on how I 'felt' after and for the next 24 hours and iterated through the same process. As stool becomes firmer you can fine tune and retry things. It's hard but eventually you will figure things out.

Anyway, hope this helps some. Best of luck!

PS - I have discovered weird things this way - Like I can eat salt and vinegar potato chips, m&m's with peanuts etc just fine... heck my system loves home made fresh popcorns with butter - but spring mix salad does me in 100%. Same with medium rare streak yet well done ground beef and hamburger is fine. It;s funny in a way but for me foods are that specific. Anything with wheat will give me mucus. remove the offender and in 24 hours the mucus goes away. Crazy.

PS - I'll fell off the diet wagon more times than I can count.... haha. So don't feel bad. We all do.

UC555
Regular Member


Date Joined Aug 2016
Total Posts : 66
   Posted 8/9/2016 1:48 AM (GMT -6)   
Well, this morning has been bitter sweet. Went to the loo twice in the first hour of being up when I've only been going once a day for the last 4 days, seems a bit of a backwards step. On the other hand their was no blood the first time which had me excited, the 2nd time their was a little blood but not as much as previous days. Not sure what to think, are sausage rolls and chocolate muffins the answer or the problem? Was expecting a lot worse this morning so I can't complain too much.

Nicecupoftea- I can only imagine how sceptical of doctors/gi's you must be after 16 years of pain. Did the ileostomy cure the pain last time? Why did you choose to go back after 2 years if you don't mind me asking?

Canada Mark- Your idea sounds like it could really work and that's kind of what I was already thinking when starting this diet. Unfortunately my stool is far from formed so it's making changes quite difficult to notice. Thinking of maybe getting a fibre supplement today to help with this but not sure which to opt for, Metamucil,psyllium etc. Also read conflicting information (surprise surprise) on whether it's a good idea taking fibre during a flare.

NiceCupOfTea
Elite Member


Date Joined Jan 2010
Total Posts : 10488
   Posted 8/9/2016 4:15 PM (GMT -6)   
UC555 - You ate more food than usual, so I'm not surprised you had an extra BM. The lack of blood is definitely a good sign! I know people demonise carbs nowadays, but I can't see anything wrong with a sauasage roll or muffin. There's only something wrong with those foods if you overeat them to the point of becoming obese - but that rarely applies to those who get UC or Crohn's.

Anyway, to answer your question, yeah, the ileostomy did cure the pain for a while. I actually was in crippling, 9/10 pain before surgery - the sort of pain which would drive me into A&E for pain relief and IV steroids. The steroids would quickly knock the pain on the head, but once I had come off them it would come back again sooner or later (usually sooner). I've never had that sort of pain again after my first surgery. But the thing about an ileostomy is, the way it is designed is awkward. The surgeon has to bend the intestine at a 90 degree angle to force it through your stomach wall, which creates a narrowed part immediately behind the stoma. This makes it harder for food to get through and can cause partial obstructions. Most foods are fine, but rubbery ones or ones which can't be broken down (e.g. mushrooms, sweetcorn) can cause issues.

I reckon that was my problem, as otherwise I was in remission. It was never a particularly bad problem; whatever obstructions I got were very mild and quickly cleared themselves. But I didn't like having to think about it, and thought a reversal would solve that particular problem - how wrong I was. The pain is worse and far more frequent than with an ileostomy, and I'm not sure why. I apparently don't have a stricture.

Another reason I had the reversal was that I was supposedly clear of Crohn's. I developed diversion colitis in my rectum, but biopsies were taken and I was assured it wasn't Crohn's. Everything I read about diversion colitis said it went away after reconnection - how wrong I was. (Later on I found out that the biopsies taken from my surgically removed colon hadn't shown Crohn's. What I mean is, I had severe disease in every millimetre of my colon but the pathology didn't point to Crohn's. If I had known that earlier I would have been more sceptical about the "diversion colitis".)

In short, I knew there was every possibility of the Crohn's returning but I was taking a gamble on it not returning for a few years and there being a few new drugs by the time it did. Instead it returned immediately and the only new drug I have is vedolizumab (which I'm waiting to get on, but it will take a while).
Dx Crohn's in June 2000. (Yay skull)
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP
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