@NiceCupOfTea, just out of curiosity, how much advertising do you see for biologic drugs? I'm guessing not a lot or none? Jeez, here in the states we are hit over the head with TV commercials and magazine ads for Humira, Entyvio, Stelara, Otezla, Xeljaaz, cosentyx....it's pretty ridiculous. By the way they advertise, every other person has some bowel or auto immune disease. Maybe these drugs could be cheaper if big pharma didn't spend billions afvertising them but the bottom line is their bottom line, profits. And just a noted difference, the USA has the highest cost for healthcare, not surprising.
And ha, as I type this, a friggen commercial for Humira is on my TV. @Notsosicklygirl, it must be nice to watch those commercials without a thought. I'm scared of surgery but I'm coming to the way of thinking, if things get bad, how much time should I waste going from drug to drug, keeping myself in remission? I'm not getting any younger, so this is a concern for me.
Oh ffs, edited to ad that another commercial for a drug called Movantix was just on. It's a drug for constipation you get from being on opiates. 😱
We are bombarded with those commercials in CA too. I guess they are likely nationwide.
I wouldn't worry too much about
surgery. It's unlikely you will need it, but I am with you, at a certain point, don't give up too much of your life.
I wouldn't say my result is perfect. I got through the surgeries easily, minimal time in the hospital and no complications. It has been a really long road though in general. I was "fine" for quite a while, but not what I would consider "great" - after months, I have come up to a point where I would say I am doing fantastic but a lot of it is perspective. I go to the toilet a lot more than a normal person, but it's not life altering, definitely less life altering than the UC, doctors appointments and drugs were in my case. I was seeing the doctor literally every few weeks at one point - always getting pricked and prodded. Nothing worked, it was getting to be a big problem with work too. I was constantly unavailable. I haven't had any days where I was unable to work in months. Granted, I do go to the bathroom more than other people, but it takes me the same amount of time it takes to pee and I am off all drugs. It's definitely a trade-off. I certainly never wanted to poop more often. The more time that passes, the less I go. I also never expected to get my pre-steroid figure back so that was a huge silver-lining. I'd take my old figure + poops WAY before being chubby, drugged and dealing with UC
Co-moderator: Ulcerative ColitisDiagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: no meds. 6/15 Step One J-pouch Surgery Complete! 9/15 Step Two Complete! 11/15 Step 3 Complete!