Welcome. Great group of people here to share with. I've been on and off this site over the years.
Let me start by saying I was diagnosed with Pancolitis as well, which sometimes my doctor thinks shows signs of chrones. I've been through every scary thought and still do at some points during just about
every day. What has helped me is preparing for the worst as if I'm planning for an adventure, then knowing that I've done what I can to prepare for if it happens and put it to bed.
Let me give you an example. I take meds (immunosuppressants) which scare the poop from my literally to stay in somewhat of a remission. I actually posted on this site the other day seeking a bit of moral support for my own thoughts too! I don't always take the care of myself like I should and I only have me to blame for that. I am however a pretty active guy and I thank God every day that I am able to enjoy this privilege.
What I did was spent time online googling hiking with ostomy etc etc. I know, probably overkill, but my doctor discussed surgery with me too and I needed to know how to continue to live my life on my terms if this happened. As much as this prospect still scares me, I'm a little bit more at ease knowing it's very possible. I found a great blog of a great woman who hikes and has an ostomy and does some pretty extensive trips. This shows that life can still happen. I also worked with a man who did physical labor with no real issues, only later to find out he also had one. There are also some great people here who have real experience and are happy to have their lives back that can help you if you ever got to that point!!
So Gordon, I hear you. Loud and clear. Take care of yourself and focus your energy on the now. Get yourself out of this flare if you can. Take a moment to think about
the what ifs, but deal with the next step when you get to the next step. DBwithUC is right also, there are a lot of advances on the horizon. Hang in there. This isn't the end of your life, it's the beginning of your new way of thinking about
(sorry for spelling or terminology or grammer mistakes - I typed this very quickly lol).
Male - 35yrs old
Diagnosed w/ UC Dec 08 - pancolitis
Pentasa down to 4g daily, 50mg Azathioprine
Multi V, probiotics, fish oil
Post Edited (LeafsFan) : 8/11/2016 7:07:46 AM (GMT-6)