This isn't my thread, so I am curious why you're ignoring the OP and focused so much on my semantics, and prying at them.
do folks really come to forums like this to given information they can get just about anywhere ?
People come to healing well as it's a support forum, to encourage and help others, share experiences, listen when they need to vent, to feel a connection with others, and when they're flaring and nothing's working. Most specialist doctors have short 4 minute appointments, and many people have lots of questions (especially the newly diagnosed as and those flaring and deciding about
new classes of medications). Therefore, I think there's great value in talking about
standard medical recommendations for uc and treatments as it isn't available "just anywhere" in an easy to understand format. Unless someone is familiar with the appropriate medical jargon and the right sources then it's not easy to just google many of the complex questions asked here. I believe there's value in discussing alternatives, and I recommend them, as they might help manage some of their symptoms. Some, but not all, benefit for adding a diet or supplement to their toolbox, and they're generally do no harm.
so what is your opinion ? do you believe everyone with UC will need to be on meds forever ?
I believe what I post, mr soy, so I can restate it if you wish. Yes, I believe medications are forever for the vast majority of uc patients and I am backed by the medical establishment in that assertion. Alternatives can be combined with medications and those alternatives are also forever, as they don't cure any more than medications do. Only our j-pouch or end-ileo friends are spared from taking something daily for life (unless they have pouchitis). I've read medication noncompliance is a big issue with uc and other chronic illnesses and results in preventable hospitalizations and expenses. I've read that those who stay compliant have the longest remissions and the the shortest flares. So, I encourage folks to take their medications whether they're doing good or bad. I've tried a number of supplements and diets and seen no positive results on my uc symptoms. Yet, I still recommend alternatives to others.
facts and figures have little value to me - most are outdated and non-relevant - i believe most people want to hear real stories from real people about what's gong on today -
We're all here to tell our personal stories but anecdotal evidence shouldn't be the primary driver of our decisions. Rather I believe in scientific research, facts, figures, and the advise of our medical professionals and doctors. I bet the majority of us trust facts and those who are professionals in that area. Do they know everything and have a solution for every case? No, but there's new research ongoing, a lot of them are smart
cookies and will eventually find a cure. They've given me remission and provided me great relief from my uc symptoms. I often cite my sources, provide odds, and link to additional information as I believe it provides great value. I'll choose facts over Mr Steven Colbert's "Truthiness".
Moderator Ulcerative Colitis
John, 38, in a minor flare, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/8wks; 50mgs 6MP, 4.8g Lialda, 20mgs predWith UC I've become a poop-ninja, sly and sight-unseen doing what having insane urgency demands.
Post Edited (iPoop) : 9/5/2016 6:08:44 AM (GMT-6)