the OP said...
I talk to people who see some of the best IBD specialists in the world.
oftentimes I hear that patients are frustrated with the attitued they get from their doctors
and this makes me upset, yes its nice that you might be an expert, but if you dont listen to your patient, surely you will miss something. and even if you wont, your patient is likely to switch to someone else who doesnt give off an air of superioity
do you have this kind of doc? how do you communicate to avoid these issues?
I try to have minimal contact with doctors for CHRONIC conditions. For example with UC that last time I had to interact with my doctor was to get a prescript
ion for antibiotics. But I recently needed medical expertise for a detached retina which is obviously an ACUTE condition. This was an emergency and I didn't have the time to check out his credentials.
This guy definitely did not reaffirm my faith in the medical establishment. Most doctors seem to be late for their appointments but I would have thought a retinal surgeon would be an exception. I waited 4 hours!
in his office before he could see me. Meanwhile the infamous 'black curtain' was slowly descending down my field of vision indicating my retina was coming apart.
That was only his first screw-up. To make a long story short I now have some permanent damage to my eyesight. I decided to travel several hundred miles for a 2nd opinion to perform some auxiliary surgery to fix another one of his screw-ups.
When I returned home the doctor said that I had gone against medical advice (his advice!) and he not only dropped me as a patient, but I am now blackballed from the 4-5 retinal surgeons in his medical practice. This is more than a minor inconvenience since they are the only retinal surgeons in the area. If the 'black curtain' ever returns, in one eye or the other, I would have to travel 7 hours for treatment. Hopefully my eye will hold out.
I don't have any faith or trust in doctors at all.