Posted 10/4/2016 8:11 PM (GMT -6)
I haven't posted in a while since I discovered that my UC and horrible neck pain (and other issues) were due to lyme and coinfections, including brucella, bartonella, ehrlichia, babesia, mycoplasma, and a positive stool test for proteus mirabilis. None of my MD doctors care or admit any of the above info, but I have started treatment with a lyme literate doctor and have already had significant improvement on several symptoms. Since starting the treatment, which includes a quality strep-free probiotic, my bowels have been really good.
Sometimes I wonder if I will even be able to stop treating my UC, but with antibiotic treatment for lyme and coinfections looming, I do feel I will need the anti-inflammatory UC medication eventually.
I work for one of the largest cities in the US and they have been cutting my benefits for a few years now. Today I received a letter from the healthcare management company that informs me that they will stop covering my brand name Colazal. Is anyone here still on brand name Colazal? I know since Valeant took over Salix there had been some supply issues.
The letter informs me that my doctor may ask the company to "consider approving coverage."
The list of alternatives includes:
Lialda (tried it and had some weird side effects - foot pain and massive Gas problems)
Balsalazide (tried it for 2 years, HORRIBLE IBS symptoms which I suspect due to cheap chinese pharma fillers, gluten, shellac, who knows what else)
Sulfasalazine, Sulfazine/Sulfazine EC
If you read this far, thank you. I was wondering if this is a new nationwide trend, and if brand name Colazal is going the way of the do-do bird. Is anyone still on it? Have you had to fight to have it covered or locate supplies? Also wondering if anyone has any feedback on whether any of the above alternative meds are safe or similar to Colazal?
Thank you guys, and I obviously recommend testing for lyme and coinfections with a lyme literate doctor if you have UC based on my current experience.