We've had a few people with pocuhitis.
Look up the following members to see some less than rosey stories:
Firstly, bootstrap aka RonnieLee - iPoop posted her blog above. She's been battling chronic pouchitis - she states that in her most recent post. She also posted something about the "realities of living with a jpouch" and much of it is true. The noises, the cleaning up... probably worse with pouchitis - in better state than presurgery regardless.
SolomonSeal - got a jpouch and hates it.
Blksteeda - pouchitis and many unexpected issues throughout surgery - in much better state than presurgery
ks1905 - pouchitis - in much better state than presurgery
Silent Lucidity - Nonfunctional pouch, reverted to ostomy.
It's important to realize that there are people who aren't 100% happy after. Good to have perspective from both sides and understand why the decision is so difficult and risky. The stat says 90% of people are happy....
I would add that many of the above people were happy with their ostomies prior to having their j-pouches built/connected. Some of their complaints were that they were happy with their Ostomies and when they had their pouches they had problems, so it's more that they chose j-pouches and didn't stay with an ostomy after their colectomy (colon removal).
DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014
Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara and Sulfasalazine
Post Edited (ks1905) : 10/21/2016 1:51:08 PM (GMT-6)