budesonide foam escape plan

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firelord
Regular Member


Date Joined Mar 2013
Total Posts : 49
   Posted 11/2/2016 8:22 AM (GMT -6)   
Hi everyone,

this summer I have started to have a bad reaction to mesalamine enemas, it seems that they were causing bleeding so my GI changed my prescription to budesonide foam enemas and I have been on them since then. And it's been quite effective, at least blood has disappeared for a while. So I've been more or less ten weeks on them, sometimes having one daily, sometimes having one every other day, trying to taper. But I've had no success, blood comes back soon.

Lately I've tried to introduce mesalamine suppositories to help me to retire the enemas but although they seem to help with the rectal itching and occasional pain they do not help with the bleeding, maybe even they make thing worse cause I see more blood while I use suppositories.

So right now I'm stuck with the rectal budesonide, again I've come back to one enema daily trying to get rid of the bleeding and next week I'll call my GI again.

What are my options? It's possible that I've have developed a mesalamine intolerance after months using mesalamine enemas without problems? I find even more weird that I continue having mesalamine pills in high dose without problems. I am also concerned because I should quit using budesonide as soon as possible, don't want to experience bad side effects.

I know that next in the line are immunomodulators but it would be a pity to use that card for my proctitis when I've had perfect blood and calprotectin test in july and september.

That's it for now, this illness is getting more complicated every day...
Proctitis. Limited (5cm) but stubborn. Mesalamine pills and enemas, foam and supps. Budesonide foam Clipper

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 13200
   Posted 11/2/2016 8:33 AM (GMT -6)   
Mesalamine-based enemas include sulfates an allergen for some, so perhaps that's your actual allergen and not the mesalamine (especially since you tolerate the mesalamine pills just fine). Sulfate free rowasa might be an option, sfRowasa.
Moderator Ulcerative Colitis
John
, 38, in a minor flare, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; 50mgs 6MP, 4.8g Lialda, 12mgs pred (tapering)

UC means always being able to out-fart your spouse no holds barred.

firelord
Regular Member


Date Joined Mar 2013
Total Posts : 49
   Posted 11/2/2016 8:58 AM (GMT -6)   
I think that medication is not available in Spain. Probably I'd ask for some mesalamine foam but I don't know if that could make a difference.

Salofalk enema E.D.O. :
BENZOATO DE SODIO (E 211),POTASIO, METABISULFITO DE,EDETATO DE DISODIO,XANTANO, GOMA DE,ACETATO POTASICO

Salofalk foam E.D.O. :
SODIO, METABISULFITO DE (E 223),POLISORBATO 60,CETOESTEARILICO, ALCOHOL,EDETATO DE DISODIO,PROPILENGLICOL
Proctitis. Limited (5cm) but stubborn. Mesalamine pills and enemas, foam and supps. Budesonide foam Clipper

TroubledTurds
Veteran Member


Date Joined Jan 2004
Total Posts : 8358
   Posted 11/2/2016 9:20 AM (GMT -6)   
have you tried the diet modification card ? some folks find great benefit in addition to their meds or even in lieu of -

what is your current dosage of oral mesalamine ?
dx'd with pancolitis 12/21/03
current supplements:vit D, cal/mag, Psyllium Seed powder/Heather's Acacia fiber/ L-Glutamine/Hemp powder slurry 1x/week - grain free/paleoish diet that includes 100% grass fed beef, raw goat milk, & local organic free range eggs, lots of all natural well water, exercise, sleep as much as possible & enjoy this great life that God has blessed me with !

firelord
Regular Member


Date Joined Mar 2013
Total Posts : 49
   Posted 11/3/2016 3:03 AM (GMT -6)   
I'm a little skeptical about diet modification, I've never found a clear pattern between what I eat and my symptoms. I try to eat healthy and that's hard enough. My oral dosage is 4g of mesalamine, and I also doubt it does anything...
Proctitis. Limited (5cm) but stubborn. Mesalamine pills and enemas, foam and supps. Budesonide foam Clipper
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