very sad news ... hopefully the nerve block will still be tried (maybe they are just confused and slow). One treatments I don't think you mention is tricyclic antidepressant.
For dysaesthetic vulvodynia or when there is continuous burning pain in the vulva, tricyclic antidepressants, such as amitriptyline, may be of benefit to some women to alter pain perception .... tricyclic antidepressants are commonly used for the treatment of vulvar dysesthesia (McKay, 1993).25 Reduced doses (50 mg to 100 mg) of amitriptyline and desipramine have an analgesic effect.26 (Biegon, 1980). The doses are below that used for antidepressant effect (150 mg to 300 mg); therefore, the incidences of adverse effects, including cardiac and sedative effects, are lower.
I think this was used before the anti-seizure med you tried became more predominant.
Post Edited (DBwithUC) : 11/27/2016 7:43:12 PM (GMT-7)