Genuinely am sorry surgery didn't work out for you but you seem like your trying to bring others down just bc this didn't work out for you. I am open to hearing the negative outcomes of surgery because i know it's certainly possible. It just sounds like you are trying to shut down the idea of it being a positive outcome for other people. And you don't know me- I haven't made up my mind yet. I change my mind everyday and probably will still have my doubts if i end up lying in the bed waiting to go under. And if i did have my mind made up what the hell is wrong with looking for reassurances? If the surgery option is inevitable what do you have left if you don't have hope and positive outlook? nothing. So I want to go in with positive energy and hope even if that mean everything doesn't go as planned.
I'm sorry. I know I am prone to being negative. I do know that most people have a positive outcome; I absolutely think you should go in with hope that you will be one of them.
I read your previous post as well. I can understand wanting to read about
other people's experiences; but since every experience is unique, I can't see how it helps with decision-making. I did ask some questions before my first surgery, but none of the answers (with no disrespect intended to anybody) prepared me for the sheer reality afterwards. Maybe I'm alone in that, I really don't know.
And DB I think you are right. Although most in my ostomy group have good outcomes several say there were things they had no idea about before surgery that their doctor never mentioned. Most were minor issues or complications but all were surprised. I realized then how good my surgeon was with patients for how well he educated me.
I liked my surgeon. She did both surgeries, and did a good job both times (the Crohn's coming back wasn't her fault). But she didn't go into the possible short/long term complications at all - everything which happened afterwards took me by surprise, from (stupidly) getting addicted to oxycodone to developing an ileus. I felt like death after my second surgery; every time I complained about
it to my surgeon or one of her team, they would cheerily say "it's the operation!". Okay, but why didn't you tell me about
this before? -_-
In my experience at least, the stoma nurses had a lot more experience with patients post-surgery than my surgeon did. For a few months after my first operation, I saw them every week or once a fortnight, whereas I saw my surgeon once. They didn't just deal with ostomy folks; they also saw j-pouch folks as well.NCOT, my surgeon saw me every 2 weeks post-op 1 (every day in the hospital) and saw me 10 days after my jpouch surgery (again, every day in the hospital). Now he said once every 3 months unless complications or anything come up then just come see him. He's also the chief surgeon at my hospital so a busy man. As far as feeling terrible post-op, that's to be expected with any major surgery that takes 5 hours, 5 incisions and a total removal of an organ. Just think about
all the muscle tissue they had to cut through. As far as getting hooked on oxy, again that's common sense with pain killers. There's a reason it's a federal crime and serious jail time for selling these things on the street. I think you're blaming your surgeon for not warning you of things that are pretty straight forward, common sense and logic. If not, you should have asked.