How are your symptoms? Are you in miserable pain, anemic, nauseous, not sleeping? If you're stable, there is absolutely no reason they should be making you feel like you NEED surgery. You don't need surgery unless you have a perforation or toxic colon really. People have severe flare ups and don't have surgery. I was in a pretty severe flare up for a LONG time, well over a year, and I just ate very minimally and did my best to get through each day. Eventually my condition really deteriorated, as did my overall health and I got pneumonia... Long story, but I didn't have surgery because of the severe flare up. I don't like that they are pressuring you. If your symptoms are decreasing, you can probably hold the course, continue with the entyvio infusions, try to taper off steroids slowly and see where you are. You could also add 6mp/imuran to see if that helps you get off the steroids, but right now, you need to focus on getting better (and take the advice of your doctor since you had the past infection with 6mp).
Like soy said, they can't force you to stay at the hospital - and if you feel like you're well enough, that's up to you. Of course, if you leave against their recommendation, it can create issues with your insurance company. That's what they told me at least when I tried to leave.
Surgery could be a good option, but it shouldn't be presented as your only option. You need to make your own decisions when you feel comfortable and well-informed. Surgery is a huge step, and it's very final, you want to find the right surgeon and do research - fully understand what you're getting into. It's not something that should be pushed on someone.
Co-moderator: Ulcerative ColitisDiagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: no meds. 6/15 Step One J-pouch Surgery Complete! 9/15 Step Two Complete! 11/15 Step 3 Complete!
Post Edited (notsosicklygirl) : 12/16/2016 9:10:27 PM (GMT-7)