Posted 12/27/2016 2:26 PM (GMT -6)
You need a better GI it sounds like to me. You're on 20mg of prednisone? That's often not a high enough dose to induce remission. Sounds like you have multiple issues, all stemming from the fact that your doctor hasn't been upfront with you about your condition and treatment. You should be on maintenance medication along with the steroids - you should have been on maintenance meds a long time ago actually. You should have likely started on a higher dose of steroids to get things to 100% too. After 13 years, you should probably have a better idea of what symptoms are common of a flare up. Yes, blood in the toilet, not just once in a while, for me, it was all the time. Depends on the severity of the ulcers. Symptoms vary greatly between people, but in severe cases, it can lead to debilitating symptoms, include nausea, cramps, gas, nocturnal BMs, urgency/inability to hold it, tenesmas, frequent movements (sometimes 20+ a day), nothing formed, fatigue, anemia - an awful mess. When was your last scope? What is the extent of your UC?