Something is very wrong. Last night I accidently locked my dog out of my house for 2.5 hours. I don't feel like I'm "present" but I think I feel a bit better in the evening. Someone commented that I'm starring into space and that I'm not following conversations. I firmly believe I am over medicated with gabapentin. I now think I'm coming down with a sinus infection. May have to postpone HB
. Will see how I do today.
Thanks everyone. I'll recheck my blood and also check thyroid.
As far as imuran---if my blood turns out ok I may have to continue. I have fistulating chrons which is the worse kind of chrons. Lucky me. I had never heard of fistulas until Aug when my lady issues started. So bascially I have a tunnel that's connecting my rectum to my vag which is why I'm passing gas through there and why I now have vulvodynia. I believe the fistula is pressing on my pudendal nerve which runs right through the pernium. I also have another that continues to abscess. This one has formed 2 exits on either side of my hole. I pass gas through there. As you can imagine, these complications are far from pleasant. Everyday I'm grateful that I'm "only" passing gas vaginally, not stool. I'm paranoid. This has also made me considerably depressed (anti depressants made me worse). I'd imagine a man with ED would feel a bit like me. Not like a woman. I have an increased lack of control in my life due to my bowel. Now it's invaded my front end. No intimacy, no tampons...and I fear passing gas, peeing and passing stool from there.
Fistulas are very hard to close. I'm lucky to now add HB to my arsenal, but I'm not myself at all. And I'm very worried.
As far as Gaba SuzyQ. Yes it's working about
70%. I'm still unable to shower more than twice a week and still don't use soap, wash my hair etc. I still burn at times when I poop. But I'm not where I was a few months ago when I was days away from taking my life. You guys heard my anguish. I'm terrified of that pain returning which is why I don't think I can reduce the gaba. However, after much pestering, I finally, FINALLY have an appointment with the pain clinic next Thurs. I see the neurologist. He may agree to do a botox injection. In which case I may be able to get off the gaba or reduce it. I hope the injection itself doesn't hurt. I wish I had someone to go with me....
Thanks Ewa--I've used a vaginal probiotic when we didn't know what was going on. As far as diet, all those things including beans would absolutely send me flaring. I can't even handle nut flours. I eat well and healthy but a person needs a little pleasure in life so a bag of chips while watching The Bachelor isn't going to hurt. This disease has almost twice killed me. And if I'm going out....it better be with chocolate cake in my mouth!!