I'm new to this board and just wanted to introduce myself and rant a bit. I apologize in advance because this will probably be very long and all over the place.
I'm Carly, 28 years old and recently diagnosed with UC. I went into my colonoscopy expecting that diagnosis after diagnosing myself with UC or colon cancer (thanks to my medical degree on google :P) anyways. I had my scope on 2-13-17 and don't remember a whole lot from the day due to being sedated and whatnot, I was whisked out of the hospital in a daze with very little paperwork explaining anything to me and 2 prescriptions. Lialda and some type of suppository. I have yet to take either yet due to a combination of my insurance and pharmacy not communicating well and my fear of taking medications. I have a 19 month old son whom I'm still breastfeeding, he is very much a boob addict and comfort nurses very frequently throughout the day and night. My GI told me it was fine to continue breastfeeding while taking this medication and from what I've read online a majority of people/drs agree with that but I'm still very hesitant. I don't feel comfortable nursing him while taking medications, I don't want to stop breastfeeding for many reasons, but I'm scared for my health if I don't start taking my medication soon.
I've also found myself being extremely emotional, and have been crying most of the day. I've always been so healthy...4 months ago I was completely fine, and now I feel like my world has been turned upside down. Don't get me wrong, I'm extremely grateful I don't have cancer, but I can't help but feel like this is the beginning of the end. This is how I'm going to die. I can't see any light at the end of the tunnel. One day I will get colon cancer, or I'll have to get surgeries and end up with a colostomy bag (I think that's what it's called?) I'll be on a series of medication every day for the rest of my life. I don't get to eat pizza and french fries with my child like most people can. I'm going to live in constant fear of this spreading and getting more severe over time. I'm just...scared. The more I read online the more I cry, I feel consumed by this.
Again, I apologize for how lengthy this is, and how emotional I am. I'm hoping someone can make me feel better about this condition, and show me that there is light at the end of the tunnel. This is all very new to me and I'm terrified thanks for reading.
I'm still breastfeeding my nearly 24 month old and she is healthy as a horse--only ever had a couple of head colds and mild ones at that. I take a lot of mesalamine and I've taken other things too, but nothing has shown to affect her.
Breastmilk is magic--I believe it will prevent my daughter from developing autoimmune disease--maybe if my mom had breastfed me I wouldn't have so many food sensitivities and chronic illness. Studies show these medications don't affect the babies or the docs would never say they're ok. And you MUST take care of yourself and get your disease under control. Or you'll be like me--laying on the couch all day while my toddler watches too much cartoons, wishing I had paid more attention and taken better care of myself and avoided getting this sick. Best wishes to you!
37yr female, diagnosed and hospitalized 2004
Currently: 3 Apriso AM/PM, Rowasa enema PM, 60mg Prednisone (40mg AM/20mg PM) liquid diet, currently waiting for approval to start Humira.
Previously failed Remicaid. Previously used: Asacol, Lialda, Delzicol, Pentasa, Cortenema, Canasa, Entocort and Uceris.
I'm Gluten-free. Supps: VSL#3, Cal/Mag, Vit D, Krill oil