Posted 2/28/2017 7:41 PM (GMT -6)
Thanks to many of you for answering my questions over the past weeks since I was diagnosed!
I have been fortunate to have a *very* responsive GI who has been in touch almost daily for the past week. Today, he called (while on vacation no less) and we got a plan together. I am not in remission yet but frequency has *greatly* decreased to 1 bathroom trip per day, no cramping, still bleeding and still some tenesmus/straining on that one visit. The tenesmus returned after we stopped Rowasa (see below).
Beginning day after tomorrow, I'll start my prednisone taper, decreasing from 40mg, by 5mg every 7 days.
In the meantime, I'm starting Rowasa enemas again tonight (we agreed that the reaction I had a couple of weeks ago - diarrhea and cramping - may have been due to adding a lot of fiber the day before and not just the Rowasa, so we will see how it goes). I am also starting Colazal tomorrow.
We are also going to start a progestin-only birth control pill to get my periods back under control, since I'm perimenopausal and cycling every 3-3.5 weeks which has really exacerbated my UC symptoms. I had previously been on LoSeasonique to stop periods but stopped my pill a month ago, right before diagnosis, because I had read about increased risks with estrogen and UC. The GI agreed that a combination pill was less desirable because of risk of blood clots, but that a mini pill should not cause issues.
So, question given all of the above: I'd like to try to avoid the upper GI side effects (especially nausea) of Colazal if at all possible. Does anyone have tips? Take with food, water, etc.?