@Bruce - I dunno what to say really. Except that yours seems a very fragile remission if just one food can make you come out of it that quickly. Personally I would rather have surgery than be on the SCD for life, but that's just me.
Well the time it takes to come out of remission is not that fast. If I have not cheated on the diet for a very long time (say a year) and I start eating grains/rice/potatoes every day all of a sudden it could take up to a week or so for full blown bloody diarrhea. If I've been on the diet for only a few months (and when I say on diet I mean there is no blood or mucus, 1 BM per day, not fully formed), then if I cheat, it could take a week to develop full blown flare. I know you don't want to call it a flare, but not sure what to call it if it's bloody diarrhea where I have to go to the bathroom up to 10 times day depending on severity of cheating.
After all of this, each and every time if I return to SCD, all symptoms go away, where I am back to remission (this can take a couple of weeks). So frankly, I don't know what to say either. As for surgery, I just can't do it unless I have to, surgery may have some good success stories, but there are many bad outcomes too. And even in good outcomes, you never have only 1 BM per day like on SCD. Having said that, I don't claim SCD is a picnic, it is darn hard for me stay on it and I would do almost anything to get off of it, save surgery.it does sound like you have some persistent food intolerances that cause diarrhea and motility issues, and that these cause inflammation, which then bleeds. .... or the diarrhea and motility issues cause your UC to flare (possibly through dysbiosis) and the autoimmune aspect of UC causes inflammation that then bleeds.
What separates these two scenarios with identical observed symptoms is the autoimmune component. This is why the distinction is made between symptoms and UC. This is why a distinction is made in a symptom-flare-up and a UC-flare. IF there is no uptick in the autoimmune response producing inflammation, it is not UC - it is some other type of GI distress that has irritating symptoms. IMO, these fine distinctions are why we often end up feeling like someone put words in our moth, or denied we had UC. Definitions matter.
Most people just want the symptoms to go away and don't think too much about
the underlying pathology. Inflammation w/o symptoms only matters for colon cancer risk. I am not sure if the colon risk differs across chronic inflammation due to food intolerances versus chronic inflammation from UC - my suspicion is it does not.
maybe i've missed something the last 14 or so years, but how is autoimmune response measured ? what is the test for it ?
dx'd with pancolitis 12/21/03
current supplements:vit D, cal/mag, Psyllium Seed powder/Heather's Acacia fiber/ L-Glutamine/Hemp powder slurry 1x/week - grain free/paleoish diet that includes 100% grass fed beef, raw goat milk, & local organic free range eggs, lots of all natural well water, exercise, sleep as much as possible & enjoy this great life that God has blessed me with !