Posted 3/23/2017 6:17 PM (GMT -7)
I am 33 years old and when I was 18, I started feeling the symptoms of Ulcerative Colitis. At the time, I was very fit. I played soccer, football, swam, and ran for my school. However, I started bleeding from my rectum and feeling tired all the time.
By 22, I was on so many drugs I can’t even count – nor do I remember what they’re called, for the most part.
By 24, I was taking oral steroids. My UC was so aggressive that I was taking steroids (I think it’s called Prednisone) three times a year (starting with 8 pills and dropping).
I had my large intestine removed at 29 and when creating a j-pouch, they messed up (their words) because they took too much of the rectum. Further, I have a large abscess that feels like I need to “catch” a BM, or else I get extremely gassy and in extreme pain. This will last for days.
A year after surgery, I had my bag removed. However, my diet is brutal. I can no longer eat health. In fact, if I eat vegetables, especially any greens, I will be in pain for days, to the point that I can’t physically do anything.
Further, I got a major hernia because I lost a lot of muscle and apparently, my frail body couldn’t handle the muscle I already had – plus, obviously, the holes from the surgery.
Anyways, I went from 185lbs with 6% body fat to 235lbs withGod only knows how much body fat. After my surgery, I injured my back because my body couldn’t handle my new weight and now suffer from DDD (Degenerative Disk Disease) meaning that it’s very hard to exercise.
I NEED a proper diet. But how, if my body rejects vegetables and most fruits? Even boiled, I struggle to eat veggies. Is there anything I can do/take for the body to accept veggies? This has led to pouchitis every few months and I am very worried about needing a bag for life.
I have slipped into a huge depression. I have a wife of 3 years (dated for 8) and an almost 2-year-old toddler. The depressing part is that I can’t even play around with him. This makes me realize how big of a failure I am as a father and feel that he would be better without me – if not now, in the future.
If I cannot get my diet in check, I think that I might take my life. I can’t live in pain for much longer. I have no idea what to do. It’s devastating circle – I can’t eat properly so I gain weight; because of my weight, I cannot exercise without being in pain; because of lack of exercise, I am getting bigger which means the pain is greater, etc.
Has anyone gone through this? Is there a diet for this?
I don’t know what to do anymore and feel that I will be biting steel if I cannot get this figured out. The pain is too great. I know it’s selfish but having a father/husband constantly being a vegetable is worse than having one 6 feet under.
Any help would be great. Please.