Bad experience with suprep: colonoscopy tomorrow

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Jane974
Regular Member


Date Joined Feb 2017
Total Posts : 251
   Posted 4/2/2017 10:14 PM (GMT -6)   
Hi Everyone,

I took suprep 2 hours ago and drank a ton of water afterwards following the directions of the prep. I am in remission technically until possibly now.

I don't recommend suprep. It tasted worse than any of the bowel prep's i've tried despite chilling, using straw and tons of lime...really bad taste.

I started getting sig abdominal cramps at about 7/10 now on the pain scale and serious bloating. I only had one small BM and 2 hours and 15 min have passed. I also have my period but the initial pain was 2-3/10 and after the prep went to 7/10.

Question: 1) Should I go to the ER for the pain or wait? Is 7/10 pain normal?

2) Pain is likely high because I only had one small BM after almost 2.5 hours. Everything i read online said that many people got results with 15-30 mins.

Thanks!

Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 4/2/2017 10:18 PM (GMT -6)   
What you are describing is not normal for the the Suprep. Instead of going to the ER, maybe you should contact the on call GI and see what they recommend.
SHERRY
Moderator-Allergies/Asthma, Alzheimer's, IBS, Co-moderator-UC
Diagnosed Left sided UC '92 - meds: Apriso, Remicade) Unable to tolerate MOST mesalamines* Currently in Remission, IBS, Diverticuliar Disease, Fibro, Sacroiilitis, Raynauds, OA, PA, Rosacea, Psoriasis, Dry eye syndrome (which caused a blockage -had the DCR surgery 2015 success!), allergies-Zyrtec

DBwithUC
Veteran Member


Date Joined Feb 2011
Total Posts : 4205
   Posted 4/2/2017 10:20 PM (GMT -6)   
Unless you think you have a bowel obstruction, I would not go to ER. The stuff should work given time, and the pain is likely due to pressure form mild constipation. the chemicals themselves do not cause pain.
11/08: ischemic colitis and scope perf colon. 12cm colon/ileocecal resected. IV antib:sepsis.
01/10: Dx: Mod. UC pancolitis. Rx: Lialda 3x.
02/11: Major flare w/antib:sinus. Rx: 40mg Pred taper. 6mp.
07/11: Histol remiss rt/trans; worse sigmoid. Rx: Rowasa & hydrocort
---
Curr: 1-2 soft-formed stool, no urgency: Lialda 2x, NO PRED, probiotics, Vit-D/C

Jane974
Regular Member


Date Joined Feb 2017
Total Posts : 251
   Posted 4/2/2017 10:59 PM (GMT -6)   
Thanks guys! i'm glad folks are still awake! BwithUC, I think I don't have a bowel obstruction because I went to the bathroom today before the prep and everything looked completely normal and a good amount came out. The pain only started an hour after the suprep solution. Think you are right with the constipation angle.


Sherry, I called the GI on call (great idea) and he said pain is likely because I have not emptied after drinking the solution (only went once a tiny amt) and told me to get a fleet enema and see if that moves things along. sent partner to go get one of those.

I still have pretty sig bloating (look pregnant) and abdominal pain is 7/10 ....ugh! Pain is worse than UC cramps.

I really hope things move along and I can do this colonscopy!!!!

Post Edited (Jane974) : 4/2/2017 10:09:35 PM (GMT-6)


loulou82
Regular Member


Date Joined Feb 2014
Total Posts : 76
   Posted 4/3/2017 8:50 AM (GMT -6)   
Jane, sorry to hear you've had horrible symptoms taking the suprep. It did take about 2 hours before the bowel prep worked for me although I took something called moviprep. Hope things moved along for you and youre able to go through with the colonoscopy today.
34, Left sided colitis. Diagnosed 03/17
Hashimotos thyroiditis & acid reflux

Currently taking:
04/17 predsol enemas, 20mg Omeprazole, 100mcg levothyroxine
Prev tried:
01/17 reaction to pentasa enema, 03/17 reaction to entocort enemas

Waiting follow up with GI to start oral meds
Diet: Gluten free, limited dairy
Supplements: lglutamine, glycine, biotin, Omega3 & vitD

Jane974
Regular Member


Date Joined Feb 2017
Total Posts : 251
   Posted 4/3/2017 1:08 PM (GMT -6)   
UPDATE: after a long night without sleep, I was able to do the colonoscopy! the suprep did not work for me and caused intense abdominal pain without any BM's for hours. I also vomited the entire second dose of the prep. Anyhow, I ended up taking two fleet enemas in the end and was able to make it through the procedure no problem!

Now I know to call the doctor on call and keep fleet enemas just in case. Next time I am definitely not doing anything that requires liquid and am asking for laxative pills given the vomiting from the prep.

My results: GI said colon looked completely normally visually. He said that there was inactive inflammation in the rectum only. He took biopsies so we'll see what he finds.

Does anyone know what that means if there is inactive inflammation in the rectum? He said you can see there was inflammation there previously.
UC since 2001, severe GERD secondary to mesalamine
Remission for 12 Years! (2005- 1/2017) due to SCD diet, fish oil, & ocassional low dose asacol.
NOW: nearing remission: SCD Diet, balsalasize (low dose), fish oil, VSL 3, accupuncture. recently added: psyllium seed, D3
*only tolerate low dose mesalamine

"It is during our darkest moments that we must focus to see the light" -Aristotle Onas

DBwithUC
Veteran Member


Date Joined Feb 2011
Total Posts : 4205
   Posted 4/3/2017 2:03 PM (GMT -6)   
it is called scaring or cell deformation from past chronic inflammation. may get better over time.

I think the question of why the prep did not work needs investigating. Unless once you did the fleet, a lot of liquid came out, the question is why did this liquid laxative not work? Do you have IBS? It has to mean something that a powerful laxative did not work on you.
11/08: ischemic colitis and scope perf colon. 12cm colon/ileocecal resected. IV antib:sepsis.
01/10: Dx: Mod. UC pancolitis. Rx: Lialda 3x.
02/11: Major flare w/antib:sinus. Rx: 40mg Pred taper. 6mp.
07/11: Histol remiss rt/trans; worse sigmoid. Rx: Rowasa & hydrocort
---
Curr: 1-2 soft-formed stool, no urgency: Lialda 2x, NO PRED, probiotics, Vit-D/C

loulou82
Regular Member


Date Joined Feb 2014
Total Posts : 76
   Posted 4/3/2017 2:35 PM (GMT -6)   
Definitely give that prep a miss next time. That's good news your colon looks completely normal, hopefully the inactive inflammation will improve soon too.
34, Left sided colitis. Diagnosed 03/17
Hashimotos thyroiditis & acid reflux

Currently taking:
04/17 predsol enemas, 20mg Omeprazole, 100mcg levothyroxine
Prev tried:
01/17 reaction to pentasa enema, 03/17 reaction to entocort enemas

Waiting follow up with GI to start oral meds
Diet: Gluten free, limited dairy
Supplements: lglutamine, glycine, biotin, Omega3 & vitD

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 13188
   Posted 4/3/2017 7:11 PM (GMT -6)   
When i was in a remission, the report showed only inactive inflammation. UC is chronic and involves permanent changes to the architecture of our large intestine (e.g., your blood vessel pattern become erratic). They likely saw something similar. If the biopsies confirm then you could be in a remission.
Moderator Ulcerative Colitis
John
, 38, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; 75mgs 6MP, 4.8g Mesalamine DR, and rowasa

Have an acquaintance who poo poos your UC suffering? Give them Gatorade with colonscopy prep before embarking on a long car ride, then perhaps they might start to get our urgency and anxiety!

Jane974
Regular Member


Date Joined Feb 2017
Total Posts : 251
   Posted 4/4/2017 12:12 PM (GMT -6)   
Thanks everyone!

I found the sheet where the GI doc wrote his impressions. He wrote the the colon looked normal but there were minimal vascular changes. He did not say inactive disease--that was my interpretation.

I couldn't find any info on minimal vascular changes. Is this related to active inflammation? Is this what you guys are referring to in regards to changes to the architecture of the colon?

Thanks again!
UC since 2001, severe GERD secondary to mesalamine
Remission for 12 Years! (2005- 1/2017) due to SCD diet, fish oil, & ocassional low dose asacol.
NOW: nearing remission: SCD Diet, balsalasize (low dose), fish oil, VSL 3, accupuncture. recently added: psyllium seed, D3
*only tolerate low dose mesalamine

"It is during our darkest moments that we must focus to see the light" -Aristotle Onas

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 13188
   Posted 4/4/2017 2:05 PM (GMT -6)   
Yes vascular change is a permanent architectual change indicating IBD from repeat patterns of inflammation and healing with a chronic illness patient.

A normal large intestine has an orderly and predictable pattern of small blood vessels and capillaries. IBD patients have a chaotic and seemingly random pattern of blood vessels and small capillaries, it's quite distinct when viewed from a colonoscopy or endoscope. When inflammation occurs, the walls of the intestine swell to multiple times their normal thickness (looking like a lead pipe in an xray). When we heal our intestine returns to a normal thickness. That process really jumbles up the pattern.
Moderator Ulcerative Colitis
John
, 38, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; 75mgs 6MP, 4.8g Mesalamine DR, and rowasa

Have an acquaintance who poo poos your UC suffering? Give them Gatorade with colonscopy prep before embarking on a long car ride, then perhaps they might start to get our urgency and anxiety!

Jane974
Regular Member


Date Joined Feb 2017
Total Posts : 251
   Posted 4/4/2017 3:39 PM (GMT -6)   
iPoop said...
Yes vascular change is a permanent architectual change indicating IBD from repeat patterns of inflammation and healing with a chronic illness patient.

A normal large intestine has an orderly and predictable pattern of small blood vessels and capillaries. IBD patients have a chaotic and seemingly random pattern of blood vessels and small capillaries, it's quite distinct when viewed from a colonoscopy or endoscope. When inflammation occurs, the walls of the intestine swell to multiple times their normal thickness (looking like a lead pipe in an xray). When we heal our intestine returns to a normal thickness. That process really jumbles up the pattern.


Thanks, ipoop. That is very helpful. My GI was not able to explain this to me when I asked what it meant!

Many of you guys have more knowledge of IBD than any of the GI docs i've seen!

FlowersGal
Veteran Member


Date Joined Feb 2017
Total Posts : 501
   Posted 4/4/2017 3:56 PM (GMT -6)   
YAY for being in remission! Go, You! :-D

Weird that suprep did that to you! Sorry you had to go through that, but glad you were able to get through the colonoscopy fine.
Partial Colectomy for diverticulitis Sept 2014
UC Diagnosis March 2016 - 18 days in hospital with pancolitis
Apriso .375 g x 4/day
Canasa suppositories as needed
Methotrexate 2.5 mg x 4/week
Levothyroxine .50 mcg/day
Zoloft for depression
Supplements: Zinc, L-glutamine, VSL #3, Folic Acid, CoQ10, turmeric,
Started Entyvio Wed., 3/29/17
Constant flares since March 2016 only relieved by Prednisone

Jane974
Regular Member


Date Joined Feb 2017
Total Posts : 251
   Posted 4/4/2017 5:29 PM (GMT -6)   
FlowersGal said...
YAY for being in remission! Go, You! :-D

Weird that suprep did that to you! Sorry you had to go through that, but glad you were able to get through the colonoscopy fine.


yay for being in remission smile I'm still waiting on the pathology report though before officially celebrating! smile I think i'm going to book a nice week long vacation if the pathology report comes back normal.

Yeah, suprep was the most difficult out of the many preps I've taken. The taste did not sit well with me and induced lot's of vomiting and pain. Next time i'm going with laxative pills or enemas.

DBwithUC
Veteran Member


Date Joined Feb 2011
Total Posts : 4205
   Posted 4/4/2017 5:39 PM (GMT -6)   
enemas are only a prep for flex sig.

use lots of fluid with laxative pills or you will not get washed out, and the scope might get canceled.

But why do you think laxative pills will work when liquid laxative did not? Don't you think the pills will just cause cramping and pain if you are unable to evacuate after taking them?
11/08: ischemic colitis and scope perf colon. 12cm colon/ileocecal resected. IV antib:sepsis.
01/10: Dx: Mod. UC pancolitis. Rx: Lialda 3x.
02/11: Major flare w/antib:sinus. Rx: 40mg Pred taper. 6mp.
07/11: Histol remiss rt/trans; worse sigmoid. Rx: Rowasa & hydrocort
---
Curr: 1-2 soft-formed stool, no urgency: Lialda 2x, NO PRED, probiotics, Vit-D/C

Jane974
Regular Member


Date Joined Feb 2017
Total Posts : 251
   Posted 4/4/2017 5:49 PM (GMT -6)   
DBwithUC said...
enemas are only a prep for flex sig.

use lots of fluid with laxative pills or you will not get washed out, and the scope might get canceled.

But why do you think laxative pills will work when liquid laxative did not? Don't you think the pills will just cause cramping and pain if you are unable to evacuate after taking them?


I think your question as to why the prep did not work is a good one. I drank more than enough liquid so that was not the issue. There was something in the suprep ingredients that did not sit well with me and for some reason I did not get intense pain when taking many laxative pills during the previous colonoscopy. Suprep has sodium sulfate, magnesium sulfate and potassium sulfate in it whereas the pills are a bit different. I think I was having stomach pain because I was not emptying hours afterwards. It was not until I took the enema that I went to the bathroom and then the pain went away. Additionally, I got my period the same day as the prep so I may have had more sensitivity to everything and more likely to get abdominal cramps. I have never had a colonoscopy prep while having my period.

Plus, the second dose I vomited entirely due to the taste and being on an empty stomach. I would have been able to stomach pills without any flavor in the early AM.

The two fleet enemas did in fact empty me enough for the colonoscopy along with the one dose of suprep.

Post Edited (Jane974) : 4/4/2017 4:57:07 PM (GMT-6)

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