Old Hat, that's the funny thing. They didn't put me on Imuran until October. Up until that point, I was taking Asacol, and they put me on Prednisone during that hospital at the same time they started the Remicade. When they put me on Imuran, they took me off Asacol. When they took me off the Remicade (last infusion was November), the only meds I was taking was Imuran. In January when it was time for my Remicade infusion, they tried pushing Entyvio down my throat as an alternative and using the scare tactic - "You'll lose your colon". I refused and said I did it your way for 5 months, now it's time to try it my way. I mean, I could barely walk at this point or
open a bottle because of the joint pain. I most certainly did not want to take another drug that could do God only knows what to my body. It is all so frustrating. It wasn't until the end of January they put me back on Prednisone. Like I said, I should have waited it out, but I freaked out and was afraid I was going to FLARE again because I had two days of a little bit of blood and mucus. As we know, going from a little to a lot can happen pretty fast and I didn't want to go into another full blown flare. It wasn't unitl 2 weeks ago that I started Lialda after refusing Entyvio AGAIN!!
On the bright side, I got my FCP results back yesterday. Are you sitting down? 41, which is in the NORMAL range. My CRP is also normal....and that's while weaning off prednisone. Fingers crossed. I am still waiting for my pathology report to be uploaded to my portal so I can read them for myself.
I'm hoping to find a GI doc like you recommend. They are hard to find, especially at a teaching hospital. LOL.
Post Edited (Trixy's Got Butt Trouble) : 4/10/2017 5:30:11 PM (GMT-6)