I had surgery and life is way cheaper afterwards. I go to the bathroom more, and I probably spend a few dollars more on toilet paper, but I've eliminated all the costs associated with doctors and medications. It has been fantastic in that respect. Unfortunately, with surgery, results vary. It would be great if we were all guaranteed a fantastic result, but since we aren't, it's risky. On the other hand, there are statistics to support a very high chance of a good result, so that helps make it a little easier. If you're really against drugs, and you're not responding to anything, surgery can be a good solution. It's also the only one where you're likely to be med free for the long term. Even if you were to get things under control with drugs, how long will it last? No one knows.. I can't say surgery is all roses, but with the limitations you've put on yourself re money and drugs, I don't know of anything else that will provide relief.
Some of the non-medical routes I've seen mentioned here repeatedly are curcumin, clay, fermented foods, slippery elm, charcoal, SCD diet, probiotics, FT - but you're already doing VSL I see... just depends how long you want to spend suffering. You should try things one at a time and give them each a good amount of time to see where it's going. If you tried everything, you could spend years hoping for a result. I wanted to get on with life, so I had surgery. They always remove the whole colon in the case of UC. Collectomy is the first step. Then they build the jpouch, then they reconnect you. If you have 2 steps it's 8 weeks with an ostomy. If you have 3, it's about
20 weeks! I did 3 and it wasn't the end of the world. I needed time to heal. I live like as I did before UC. Always out and about
, beach, restaurants... My quality of life is much better.
this is from our resources thread:ALTERNATIVEClinical Trials: clinicaltrials.gov/Diets:Fecal Bacteriotherapy: http://en.wikipedia.org/wiki/Fecal_bacteriotherapy IVIG - Intavenous Immunoglobulin: http://www.ncbi.nlm.nih.gov/pubmed/1728132LDN - Low Dose Naltrexone: http://www.lowdosenaltrexone.org/User InSoFL's story about LDNNicotine
: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2014383/Phosphatidyl Choline:
Must be compounded to release properly http://www.annals.org/content/147/9/603.abstractProbiotics:
Can be in pill form, yogurt, kombucha, kefir, fermented foods. Common oral pills/powder are Align, Culturelle, Florastar, Naturen, and VSL#3. Supplements:
Aloe Vera, Bitters Compound, Bromelain, coconut oil, Deglycrrhizinated Licorice (DGL), Digestive enzymes, Flaxseed, Folic Acid, Ginger, Grape Seed Extract, Grape Seed Extract, Nopal Water
, Holy Basil, Peppermint, pineapple, Omega-3, Oregano, Psylium Husk (metamucil or Citrucel), Slippery Elm, Turmeric/Curcurmin/Boswellia, Vitamin D, and vitamin-e enemas. Triple Antibiotic Therapy:
amoxicillin 1500mg/day, tetracycline 1500mg/day, and metronidazole 750 mg/dayhttp://www.nature.com/ajg/journal/v105/n8/abs/ajg201084a.htmlTumeric (Curcumin) Use in UC: Research on Safety and Dosing (see links below)Wellbutrin
: some studies have shown Wellbutrin to be effective as a TNF Blocker.Worm (Helminthic) Therapy: http://en.wikipedia.org/wiki/Helminthic_therapyMedical Marijuana
Co-moderator: Ulcerative ColitisCurrently: no meds. 6/15 Step One J-pouch Surgery Complete! 9/15 Step Two Complete! 11/15 Step 3 Complete!
Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish.
Post Edited (notsosicklygirl) : 5/1/2017 11:57:04 AM (GMT-6)