Hello everyone, going through a low moment right now and was hoping for some advise or support.
My back story, i was diagnosed with UC in September 2016 and was put on a low dosage of (asacol) Mesalazine, move forward a few weeks still and no improvement so went up to taking mesalazine 800mg tabs 6 times a day yet still no improvement. Later i went into hospital for 3 days with breathing trouble, later found out to be lung infection most likely down to my massive drop in weight and how run down i was.
upon leaving the hospital i was prescribed Pred starting at 30mg tapering down 5mg a week. It was a miracle I was fixed over the space of 1-2 days,i had energy to go out, stools were more formed, no urgency and blood went a few days later. I got down to 15mg then the symptoms returned. I spoke with the doctor who started another cycle of pred starting at 30mg reducing by 5mg a week. Once again i was fixed, but as soon as i got down to 15mg the symptons returned again.
I then started seeing a Gastroenterologist at the hospital, my medication changed completely to, 3g Salofalk granules, 1g mesalazine suppositories, 50mg azathioprine (now 100g) and 40mg of pred reducing every 1-2 weeks depending on how i feel.
15 days ago i reduced my pred to 10mg and since then i have been in a slow decline, my energy levels have been dropping, my stools became less and less formed and 4-5 days ago blood returned and its getting worse by the day.
I'm calling the doctors in the morning and hope i can see somone his week, i'm not sure what i should do in the mean time. Stay at 10mg since im so close to getting off pred or increase it to make life easier for the next few days.
Any advise on what meds i should try next or recommendations on what meds work for other people? (apart from pred)