Just come back from my first appointment with my GI following a colonoscopy i had in March during which my GI was going to prescribe me oral mesalazine until I explained the reaction to the enema I had and so carried on with steroid enemas instead.
Today's appointment I went in prepared with a list of questions about
all the different types of treatments etc well all my questions went out the window! He asked how I had been and I explained that when I had tried stopping the enemas the bleeding has returned, I still have cramping etc. He proceeded to talk about
mesalazine and how when you have a reaction to the enema you might not always get the same reaction from the oral version (which I already knew thanks to the advice I've received off you all on this forum). Then he said what I wasn't expecting; the biopsies were indeterminate or inconclusive and I needed to stop the enemas and go in for a sigmoidoscopy when my symptoms worsen, bleeding etc. He explained that he could treat me but prefers to get an accurate diagnosis first which is strange because he was going to give me oral mesalazine straight after the colonoscopy I had in March. I could kick myself because I got so upset at that point because I've waited 4 months since being hospitalised and 2 months after the colonoscopy to be told I've got to stop the only thing that is stopping me being very ill, to get ill again so that he can take some more biopsies and hope that they don't come back inconclusive again. (Sorry for venting but I just feel like I'm headed back to how I was in January again without getting anywhere
I do understand and appreciate that I need to have an accurate diagnosis but it is frustrating that I have come away with nothing really only the horrible prospect of stopping the enemas and getting ill again, having a sigmoidoscopy and more biopsies and waiting another 8 weeks before knowing if I will have an accurate diagnosis or not. He was very vague when I asked what the biopsies come back with and he just said there is abnormality but it doesn't say what type. Type of what??
The following were the results from my colonoscopy report in March:
"Normal rectum and sigmoid, but a patch of inflammation in the splenic flexure, an area which the predsol enema could not reach.
Patchy Erythematous Mucosa
Patchy Granular Mucosa
Multiple erosions with no bleeding"
Just wondering if anyone else has had a similar experience when being diagnosed, any advice etc?