I am three weeks post colectomy surgery, and here's what I can tell you from my experience:
Having your body in the best shape possible before surgery helps you have the best recovery possible. I would have liked to have been off of prednisone, but that wasn't possible. I tried to rest, walk each day, eat as much healthy food as I could handle, and stay positive. After surgery, I've tried to maximize my recovery by resting a lot, walking a lot, eating as much healthy food as possible, and staying positive. So far, so good.
I think the other piece of recovery, though, is governed by the randomness of UC. So much of UC doesn't seem logical, and its symptoms and experiences are so personal.
I also worried that I wasn't sick enough to really get an improved outcome from the surgery. I was having 5-8 bm a day, and I was afraid the jpouch would actually be worse. I was really dreading the ostomy stuff. So far, I have found that the ostomy isn't much of an issue. Maybe I am emptying it 5-8 times a day, but bathroom trips aren't the huge mental and physical experience they once were: I go, and then I'm done and don't think about
it. For me, that's a huge relief. Who knows what my outcome will be after the jpouch, but I'm hopeful it will continue to positive.
Overall, I think you have to take as many of the facts as you can get, then decide how they apply to you personally. How will YOU feel if you have the surgery? Do you and your doctors think YOU will feel better? Whether you're going 5 or 50 times a day, if you feel miserable, you are miserable. It's OK to want to feel better.
I know surgery is hard for most of us to reckon with. But you know what? Ditching meds is pretty awesome!
I am relieved to have a huge part of my brain back that had been consumed by the logistics of dealing with UC: what to eat, how I felt, how I might feel, when to take meds, when I was going to have to go to the bathroom, etc.
So all that is just my experience and opinions, but I hope it helps you sort through your situation.
Diagnosed with ulcerative colitis in 2011. In remission until 2015 with Lialda and prednisone.
No response with Entyvio or Remicade, azathioprine.
Opted for three-step j pouch surgery. Completed step one, subtotal colectomy with ileostomy, May 2017.