Advice on Qing Dai

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WorriedUCer
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Date Joined Jul 2014
Total Posts : 346
   Posted 6/6/2017 9:51 PM (GMT -6)   
Hi guys,
I've been flaring for the past two weeks, more gradual than usual, however the last few days it's really stepped it up and I've started bleeding this morning. I'd ordered some Qing Dai powder and it has just arrived and is a dark blue fine powder which seems to stain my hands. I just want to double-check that this is what I should be taking? Does it stain your teeth when you take it?

hateuc
Veteran Member


Date Joined Jun 2010
Total Posts : 2353
   Posted 6/7/2017 12:28 PM (GMT -6)   
I think (although not positive) that it is one of the ingredients in Isatis Cooling. I have been hearing some positive things about this particular herbal formula. I know that doesn't answer your question directly but wanted to add this in. Hopefully someone who has taken Qing Dai alone will chime in.
B
UC diagnosed in 2010 but had prob. in 2009
2 Lialda/day Rowasa nightly, periodic anucort supp, Cortifoam as needed(needed more than I would like)
VSL#3, slippery elm
Metamucil capsules
Trying Gluten free (why not!)

eekseel
Regular Member


Date Joined Apr 2017
Total Posts : 110
   Posted 6/7/2017 1:21 PM (GMT -6)   
The powder form gets you the most qingdai. I measure out a small spoonful which I assume to be 1-1.5 gram and mix it in warm water and slam it back while it's suspended. It doesn't dissolve well and quickly settles to the bottom so I'll mix some more water in the cup and slam it again to get it all. Do this twice a day. You can just put it in your mouth and drink it down that way but I mix it with wheatgrass powder or whatever else as part of my ritual. Avoid touching it because it will stain, it's indigo dye afterall. I haven't noticed any teeth staining, there's always Crest White Strips if it becomes a problem.

Post Edited (eekseel) : 6/7/2017 1:39:05 PM (GMT-6)


WorriedUCer
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Date Joined Jul 2014
Total Posts : 346
   Posted 6/7/2017 4:13 PM (GMT -6)   
Great, thanks guys, and eekseel, how quickly before you noticed a benefit?

eekseel
Regular Member


Date Joined Apr 2017
Total Posts : 110
   Posted 6/7/2017 8:06 PM (GMT -6)   
Amazingly Ive only been on it for a couple weeks and have noticed incredible benefits. No blood, zero. Hardly any food bothers me anymore. I got adventurous and partook in some trigger foods and noticed some aching but that's no surprise.

I've then since stopped taking uceris and if things improve over the next few months hopefully the Lialda which has never done much for me, but the doctors just keep pushing it. I was very skeptical but i'm surprised that a plant of all things could garner such results in such a short period of time. We'll see where i'm at in 6 months.

WorriedUCer
Regular Member


Date Joined Jul 2014
Total Posts : 346
   Posted 6/7/2017 11:27 PM (GMT -6)   
Wow, that's great, I'm so happy to hear that for you! Today is only day 2 for me and no difference yet, although I did notice my stool was a different colour this morning due to the dye, so fingers crossed it starts to take effect soon.

st_uc
Regular Member


Date Joined Mar 2014
Total Posts : 186
   Posted 6/21/2017 8:56 PM (GMT -6)   
Where are you guys buying Qing Dai from?

eekseel
Regular Member


Date Joined Apr 2017
Total Posts : 110
   Posted 6/22/2017 12:38 AM (GMT -6)   
The first search result on amazon for qing dai. Some have had success with Isatis Cooling but not sure how much you're getting there. Acuatlanta.com sells it as well with reasonable shipping.

WorriedUCer
Regular Member


Date Joined Jul 2014
Total Posts : 346
   Posted 6/22/2017 4:04 AM (GMT -6)   
St_uc, I actually have some high-strength Qing Dai here if you want, depending on where you're located? I originally bought in but it was taking too long to ship so I found some somewhere else, but it hasn't really worked for me, so I still have the sealed second bottle here.

eekseel
Regular Member


Date Joined Apr 2017
Total Posts : 110
   Posted 6/22/2017 7:31 AM (GMT -6)   
WorriedUCer, how long have you been on it? How much have you been taking? Have you been consistent with it? Have you noticed anything at all?

st_uc
Regular Member


Date Joined Mar 2014
Total Posts : 186
   Posted 6/22/2017 7:45 AM (GMT -6)   
eekseel,

Is your Qing Dai blue in color powder? DO you buy the following?

https://www.amazon.com/Qing-Dai-Concentrated-Granules-Treasure/dp/B06XFCWW4D/ref=sr_1_1_a_it?ie=UTF8&qid=1498139077&sr=8-1&keywords=qing+dai

eekseel
Regular Member


Date Joined Apr 2017
Total Posts : 110
   Posted 6/22/2017 9:03 AM (GMT -6)   

st_uc
Regular Member


Date Joined Mar 2014
Total Posts : 186
   Posted 6/22/2017 12:01 PM (GMT -6)   
On box does it say Polygonum tinctorium or Indigofera tinctoria?

WorriedUCer
Regular Member


Date Joined Jul 2014
Total Posts : 346
   Posted 6/23/2017 2:35 AM (GMT -6)   
I was consistent in taking it and was taking about 6 to 8 capsules a day all up. Enough that I noticed it was colouring my stool. Persisted with it for close to two weeks but stopped when I hadn't noticed a difference other than a headache. I'm sure I'll try it again when I'm desperate but I get more benefit from probiotics so'd rather spend my money on that. Not everything works for everyone so don't let my experience dissuade you, I wish you all the best

WorriedUCer
Regular Member


Date Joined Jul 2014
Total Posts : 346
   Posted 6/23/2017 2:38 AM (GMT -6)   
I know some people recommend persisting with things for longer, but my UC is characterized by lots of short sharp flares so it tends to just fix on its own, and I'd rather that than incorrectly attributing it to something that I know hasn't been working. Unless a drug has a long half life or pharmacokinetic like imuran, I don't really believe something should take 6-8 weeks to work, you should know if something makes a difference
Mild-Mod UC - diagnosed 1995; antiphospholipid syndrome - diagnosed 2014; painful bladder - diagnosed 2003
Meds: Mezavant ; enoxaparin

st_uc
Regular Member


Date Joined Mar 2014
Total Posts : 186
   Posted 6/23/2017 7:43 AM (GMT -6)   
I have been taking Isatis cooling now for 2 weeks and not seeing any improvement. Have not tried single Qing Dai. I may discontinue Isatis cooling in next few days.

Post Edited (st_uc) : 6/23/2017 8:05:18 AM (GMT-6)


Want2know
New Member


Date Joined Jun 2017
Total Posts : 5
   Posted 7/4/2017 8:31 AM (GMT -6)   
Hi, Everyone, first time post. Have been reading about UC on your boards due to recent problem with proctitis, probably infectious per colonscopy/biopsies two weeks ago. Put on Canasa BID, but so far that has not been much of a fix.

The colonoscopy findings match the course of the disease. Back in May had a week of escalating diarrhea with mucous, blood, pain, urgency (x20/day), food intolerance. This problem started four weeks after treatment with clindamycin for infection at site of an axillary node dissection (T1A breast cancer). Clindamycin from what I've been told is frequent culprit for C. Diff infections. Was going to hospital for daily radiation treatments when this issue started, so it's likely I was exposed to C. Diff then.

Went to ER, 01May17, at end of that first week of diarrhea. Treated with flagyl and cipro. After antibiotics, things improved but problems returned within a couple of weeks, had stool culture (neg), and since problems were escalating, had colonoscopy 20Jun17. Felt great for two days after colonoscopy on, but again problems returned = frequent urgency, but also constipated, discharging mostly mucous (sometimes clear, sometimes pink or brown tinged), some flatulence, occasional accidents, food tolerance poor, lots of left abdominal pain (pain, pain, and more pain), tired, napping frequently, pain in large joints, can't go out many days due to potential accidents...

As following through with clinicians' plans has been slow and provided little relief, I started researching alternate solutions. Plus I was progressing back to not just pain, pain , and more pain, but surprise accidents...

So I'm posting here because? Reviewing qing dai and other supplements mentioned on the boards and elsewhere, I ordered the CC Herbal and started with a half capsule daily. (Going with a supplier who'd been around a while seemed a good bet, related to quality, a concern often mentioned by contributors.) The CC Herbal has Qing Dai and two other ingredients: Huang Qin and Mu Xiang.

First day, lots of pain, cranky, tired, some diarrhea, and swore I wouldn't take another. But second day, noticed the upper GI tract was very happy, and greater portion of lower abdomen was quieter, so I took another half capsule -- again cranky, but more energy, more relief from pain because stool moving through, less pain the remainder of the day.

Today took the third half capsule this morning, lower GI immeditely a little busier, but less pain. Hoping for the best.

I don't know if Qing Dai or the other ingredients have resulted in the improvement, but I'll keep you posted.

Googling Qing Dai, there is a prospective clinical trial in 2016 for its use with UC patients. The trial included 20 subjects and the authors were encouraged by the outcome. Colonoscopy images are included with the article: https://www.karger.com/Article/FullText/444217.

Per the article, the trial was partially sponsored by the Ministry of Health, Labour and Welfare of Japan. Of interest is that the article gives some background on the long-time use of Qing Dai for UC and other medical problems in China (various inflammatory diseases, UC, and dermatosis, such as psoriasis).

Others at HW have cited a Qing Dai clinical trial with fewer subjects and perhaps the trial is at the end of this link?... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3645393/

Well, enough said.
Cheers to all and thanks to all who contribute to Healingwell.
The boards have provided a fast education on proctitis and colitis for me -- what to ask, what to expect. Wasn't receiving much information from providers.
Guess the business at hand for us all all is to hope for the best and carry on.
: )
Dee

MarjieKay
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Date Joined Jun 2017
Total Posts : 611
   Posted 7/4/2017 9:46 AM (GMT -6)   
Thanks for posting, Want2know. I have held out buying this because I have tried so many other herbals with lackluster results. I think I am going to hop on this train......I am really happy for you with such positive results !

Want2know
New Member


Date Joined Jun 2017
Total Posts : 5
   Posted 7/4/2017 1:55 PM (GMT -6)   
Hope it works for us both. Keep your fingers crossed. : )
Dee

Lover of Life
New Member


Date Joined Jul 2017
Total Posts : 15
   Posted 7/8/2017 11:31 AM (GMT -6)   
I started taking 1gm of qing dai 2xday after reading about it here and then doing my own research. It's been 2 1/2 weeks. Just wanted to see if anyone taking this could give their 2 cents on how their experience was or is with it. There's a couple threads I've read about it but wanted to see if more would be willing to share. Thanks!

eekseel
Regular Member


Date Joined Apr 2017
Total Posts : 110
   Posted 7/8/2017 12:50 PM (GMT -6)   
The recommended dosage is 2-3 gram a day, (1.5gr 2x per day, or 1gr 3x per day). Most people going this route have either been taking supplements that don't contain enough qingdai, contain none at all, or haven't been taking it correctly or long enough to know whether or not it works for them (4 months).

Post Edited (eekseel) : 7/8/2017 1:37:05 PM (GMT-6)


MarjieKay
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Date Joined Jun 2017
Total Posts : 611
   Posted 7/8/2017 1:38 PM (GMT -6)   
I also ordered the one from CC herbal and it has Qing Dai, Huang Qin and Mu Xiang. Just started today and will keep the thread posted. Although I have been using both oral and rectal mesalamine so my report may not be definitive.

I am trying to decide if I should wait on this or not? I have a colonoscopy coming up in 3 weeks.

Want2know
New Member


Date Joined Jun 2017
Total Posts : 5
   Posted 7/8/2017 2:25 PM (GMT -6)   
about dosing, I stayed with half a capsule of the CC Herbal for five days and it quelled GI pain and gasiness, urgency, mucous, my chronic GERD, diarrhea, and the major joint pain and fatigue that has accompanied this bout of what I'm told is proctitis due to infection. However, it also seemed to have pushed me back into my old problem of constipation. So I stopped.

Today, a couple of days later, the GI tract has started to work again and some of the mucous/urgency has also returned. But, the GI tract still has less pain, less distention than it has had since this infection started, actually for years before that.

However much one should take, for me a little took care of a major issue quickly and more completely than Flagyl. My GI tract, upper and lower, along with the surrounding abdominal muscles, have not been this calm since it seems, forever. It's like we are on vacation and we are enjoying the respite form pain.

MarjieKay
Veteran Member


Date Joined Jun 2017
Total Posts : 611
   Posted 7/8/2017 2:52 PM (GMT -6)   
OK, that convinces me I should wait. I have been battling constipation the last month. In fact I finally went today after 3.5 days without a single BM. I have been doing the dairy free, red meat free no raw veggies diet my doc recommended and not sure it's working well. If this might have a further deleterious effect on my "movement" I'd better wait for a better time.

Plus I haven't seen any blood or mucus now in a week or so thanks to the mesalamine, I am thinking. I guess I'll table this for now. Good luck to you guys with it though !

Want2know
New Member


Date Joined Jun 2017
Total Posts : 5
   Posted 7/8/2017 3:09 PM (GMT -6)   
LOL. I wish that 3.5 days has been the extent of what I've experienced.
And it didn't matter what the diet was. : )

But back to the question for you, sounds like introducing new meds or supplements right before the colonscopy might not be in your best interest. But three weeks out, maybe no problem.

Hope everything is resolved quickly for you.
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