Advice on Qing Dai

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Lover of Life
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Date Joined Jul 2017
Total Posts : 15
   Posted 7/8/2017 3:23 PM (GMT -6)   
I started flaring October 29, 2016 due to trying to gradually get myself off Asacol everyday (stupid I know!). Waited too long to see the Dr. but in January (week before my wedding) went to a new Dr. and was put on Canasa that normally worked great for me. Helped with the symptoms but I never went into remission. Oh and I got engaged in October 2016, married January 2017, sold a house in March 2017 and bought a house in March 2017.....can you say completely stressful 6 months which really doesn't help the situation!

Got a colonoscopy in March 2017 and it didn't show any progression of the disease but still definite inflammation. This new GI doesn't like steroids long term so didn't want me to stay on Canasa but I won't take prednisone ever again. So after a colonoscopy, I had been on Canasa for a couple months. Ran out but there was still a little blood in my stool. After being off Canasa about a week the urgency, blood and mucus returned. I finally was switched to Lialda because Asacol wasn't doing the job anymore. When I switched to Lialda he also put me on Flagyl because he didn't want me to continue Canasa. That was a disaster. After 2 days I had more blood in my stool then before, bright red blood just dripping after I went, mucus, stomach pain....it was terrible. Called him a week later he got me in and I begged to get on Canasa. So he gave it to me for another month. about a week later I ordered the qing dai because I figured that it was worth a shot and I was sick of it all. I'm an active person and the symptoms suck as we all know!

Of course I can't say it's only the qing dai because I also started the Lialda about month ago and have been on Canasa about 3 weeks now but in the 2 1/2 weeks I've been taking the qing dai the urgency, mucus and blood have decreased significantly. The biggest difference I notice it that I feel great! I've always had a sensitive stomach but not the terrible cramps and pain I read about on here that some have. Maybe because my issue is more the rectum and not so far into the intestines? Don't know, but all I know is that my stomach has felt amazing for the past couple weeks. Still eating bland foods and being really careful and the blood isn't completely gone but it's much less. As opposed to the previous member's post, my stools have become formed and very regular. Once maybe twice in the morning (I workout in the morning so that always gets things moving), then in the late afternoon. Haven't experienced the constipation at all, but as with everything, drugs/supplements effect everyone differently.

I'm going to stick with the qing dai and definitely make sure I get the 3gm a day per the member post above. Guess something in me changed and the Canasa just isn't working like it used to so I need to find something to kick this flare and I'm NEVER going to try to get off the maintenance meds again!
Hoping to hear others that are trying this herbal remedy.

Post Edited (Lovel of Life) : 7/8/2017 3:32:07 PM (GMT-6)


MarjieKay
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Date Joined Jun 2017
Total Posts : 611
   Posted 7/8/2017 3:44 PM (GMT -6)   
Wow! my stomach was hurting pretty badly at 3.5, I can't image longer than 4 days. I hope this is temporary. I did buy some fiber supplements and began those yesterday (probably what made things move).

Ok, I'll debate this. Since I have been B & M free, maybe allowing clean monitoring is best at this point. Thanks for your input smile

Want2know
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Date Joined Jun 2017
Total Posts : 5
   Posted 7/8/2017 7:17 PM (GMT -6)   
Lovel of Life, yes, that was a surprise to me, how the qing dai eases the abodominal pain and crampiness, and I think maybe arthritic pain too. If not a cure, at least taking the supplement presents some relief.

MarjieKay
Veteran Member


Date Joined Jun 2017
Total Posts : 611
   Posted 7/9/2017 4:43 AM (GMT -6)   
I'm glad you're getting some relief with your current protocol, Lover of Life !

This can be kind of confusing since most of us are employing several methods concurrently and some of these are such that they take time for the benefits to be seen. I am taking a new probiotic and experimenting with dietary changes AND taking both oral and rectal mesalamine.

Tough to parse out what is doing what......so adding this in right now seems like a fruitless idea for me. I am going to save it for a time when I'll be able to judge it's results better (plus I am already seeing a hefty reduction in symptoms).

Good luck everyone!
F, 51
2008 Diagnosed with colitis
2017 Diagnosed with Chronic Ulcerative Colitis

Currently taking Pentasa, Rowasa

VanHuyten
New Member


Date Joined Mar 2018
Total Posts : 1
   Posted 3/11/2018 8:02 PM (GMT -6)   
eekseel said...
The recommended dosage is 2-3 gram a day, (1.5gr 2x per day, or 1gr 3x per day). Most people going this route have either been taking supplements that don't contain enough qingdai, contain none at all, or haven't been taking it correctly or long enough to know whether or not it works for them (4 months).


Hi, I recently purchased the Qing Dai from amazon but the bottle came with nothing to measure the 1.5gm. I called the company to ask them how much is a gram but they had no idea. Can someone please let me know if they have a way of measuring it?

Thanks

eekseel
Regular Member


Date Joined Apr 2017
Total Posts : 110
   Posted 3/12/2018 10:48 AM (GMT -6)   
A gram is a gram, buy a digital scale.

freddyj
Veteran Member


Date Joined Aug 2011
Total Posts : 1284
   Posted 3/12/2018 1:49 PM (GMT -6)   
Worrieducer,

I have used isatis cooling bow for a few months and I do think there is a benefit. Im a little worried that the herbs come from china and are therefore coming from a really polluted country. Id prefer to have good, organically grown material I could feel better about but hey. If its working thats huge. I have had a basically unending flare going for almost 8 years so improvement is huge. Its part of a combination of things, essentially all plant based. Was on remicade and the rest.

I have also read a few things regarding liver issues from this, so thats a thought. I don’t know how the long term use affects liver or other aspects of health negatively.

Do you know is the stuff you are buying is grown in China or if its organic? Or coming from China, “organic”? I just saw the thread and will peruse it all, but wondering where you are getting it. Good luck!

Connor77
Veteran Member


Date Joined Jul 2016
Total Posts : 523
   Posted 3/12/2018 11:12 PM (GMT -6)   
If they are GMP standard, then they are checked for heavy metals.
DX left-sided UC 2015, 3 fulminant flares since then
Started FMT clinical trial Feb 2018
Dx w/mycobacterium avium paratuberculosis (MAP) Sept 2017
Stopped AMAT @ 6 weeks due to intolerance of meds
Others: Entyvio every 4 weeks, Low Dose Naltrexone 3mg at bedtime, natural ferments
Current status: lingering rectal bleeding, otherwise healthy

eekseel
Regular Member


Date Joined Apr 2017
Total Posts : 110
   Posted 3/13/2018 9:39 AM (GMT -6)   
I haven't had any liver issues going on a year now. I had hepatic function checked 4 months in and the doctor saw no irregularity. The ones affected in the study were "mild and rare". Just get it checked every so often.
Diagnosed UC 2009 - Moderate Pancolitis since 2015.
April 2017 stopped Lialda after 5 years, in remission after 6 months Qing Dai (3grams daily) + 60mg sulforaphane (140g brocolli sprouts, juiced) + good multivitamin, fish oil, CBD oil, cardio and other odds and ends.

You can only lead a horse to water...

Dawgg
New Member


Date Joined Feb 2017
Total Posts : 15
   Posted 3/13/2018 11:24 AM (GMT -6)   
Qing Dai is the only thing that ever helped me (other than steroids). After 25 years of UC and a partial colectomy 3.5 years ago, I still had blood in my stool every day starting 6 months after surgery. Tried Qing Dai two years ago (more out of desperation) and all symptoms disappeared over night. I couldn't believe it. After some extended travel for 3 weeks with no access to Qing Dai blood came back. Coming home, took about 3 gramms of Qing Dai and didn't have blood the next morning. I think I got lucky, Qing Dai seems to suppress the inflammatory processes in my colon. Last two sigmoidoscopy exams (all I have left) show no more inflammation. It unfortunately doesn't seem to work for everybody.

Tastes bad though, so I mix about 3 gramms daily with ground flax seed, add water and gulp it down. I'm also taking curcumin, moringa leave powder, and boswellia, but Qing Dai made the difference.

eekseel
Regular Member


Date Joined Apr 2017
Total Posts : 110
   Posted 3/13/2018 12:00 PM (GMT -6)   
I used to take the powder straight until I bought a capsule machine. It's so much better, I just pop a few qingdai with my supplements and I'm good.

I've been waiting for the day to see more people report on their successes. It's ben a long time coming. Doesn't work for everyone but so many aren't even willing to try it or give it long enough to work. For me bleeding didn't stop overnight but it was gone in a few days and I haven't had a single drop of blood since, after years and years of consistent bleeding.
Diagnosed UC 2009 - Moderate Pancolitis since 2015.
April 2017 stopped Lialda after 5 years, in remission after 6 months Qing Dai (3grams daily) + 60mg sulforaphane (140g brocolli sprouts, juiced) + good multivitamin, fish oil, CBD oil, cardio and other odds and ends.

You can only lead a horse to water...
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