Posted 6/15/2017 2:58 PM (GMT -6)
I am getting on fine. I am not having accidents, the stools are not usually that loose, and yet I am going more than once a day and it is absolutely clear to me that while I am alright, I am certainly not 100% *well*. And I'm sure that is a result of the sulfasalazine I'm on (which I have to say I take rather flexibly, usually around 2-3g a day).
I was on Remicade a while back (before I started the sulfasalazine). On it for a few months. Then on double dose. Absolutely pointless. Did nothing, good or bad.
Should I agree to go onto Entyvio (which is the next recommendation)? If I start having the infusions, they will start two months after my last (double) Remicade dose.
I don't know why but I am concerned about the PML risk which I saw was only theoretical and very rare but still worrying to me. Also because this drug is new I don't know what the effects will be in a few decades.
What do you think? Also if you are / were on the drug, how long was your very first infusion?