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Hampy
Regular Member


Date Joined Feb 2017
Total Posts : 45
   Posted 6/16/2017 9:24 AM (GMT -7)   
Hi all just thought I'd share my experience today, I went for pee looked down and the bowel was completely purple... I Won't line I nearly had a heart attack. I calmed my self down thought do I feel well? Yes am I in pain ? No so I did abit of googling and saw some threads on uc patients wee interacting with bleach and stains on the seat bowel etc! I went for another wee normal colour then added a tiny bit of bleach and sure enough the bowel went purple!!!

Has anyone else experienced this??.. I will of course keep an eye on this as well as mentioning to my consultant

quincy
Elite Member


Date Joined May 2003
Total Posts : 29859
   Posted 6/16/2017 9:55 AM (GMT -7)   
Do you use bleach in the toilet?
And was there any purple on toilet paper? Dont know if you are m or f, but that's one way to check the colour.
q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 7 @ 2x daily with meals; Vitamin D 4500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

momto2boys
Veteran Member


Date Joined Jun 2013
Total Posts : 1866
   Posted 6/16/2017 10:02 AM (GMT -7)   
That has happened to me when we put bleach tabs in the toilet and I am on 4 g of lialda! It scared me half to death.
41 yrs old diagnosed with proctosigmoiditis 6/13/13
meds- 2 Lialda + sfRowasa nightly - supplements: probiotics (1 VSL3 cap, 1 culturelle and 1 reuteri) 1 gram krill Oil, 2 TBSP p. seed powder, 2 g curcumin. Allegra for seasonal allergies as needed. Allergic to sulfites. Currently gluten/dairy free (except yogurt) and eating lots of RS.

Hampy
Regular Member


Date Joined Feb 2017
Total Posts : 45
   Posted 6/16/2017 10:08 AM (GMT -7)   
Hi thanks for the reply I'm male to clarify I went for a per wasbt looking down when I did the water was purple so no toilet paper used I went again an hour later after drinking water and the wee was normal only when I added bleach the water in biweekly went purple!!!

Yes I nearly crapped me self
Diagnosed with proctitis Jan 2013 was given pentasa suppositories 1g
14/02/2017 first flare up diagnosed with ulcerative colitis currently in remission 4g of oral pentasa and 1g pentasa suppository at night

Hampy
Regular Member


Date Joined Feb 2017
Total Posts : 45
   Posted 6/16/2017 10:13 AM (GMT -7)   
The wife has just informed me she did in fact use bleach in the toilet today ... relief!
Diagnosed with proctitis Jan 2013 was given pentasa suppositories 1g
14/02/2017 first flare up diagnosed with ulcerative colitis currently in remission 4g of oral pentasa and 1g pentasa suppository at night

WorriedUCer
Regular Member


Date Joined Jul 2014
Total Posts : 339
   Posted 6/16/2017 3:42 PM (GMT -7)   
Oh my god, the exact same thing happens to me!!!! I've been baffled by it for ages and it's even gotten to the point where I'm afraid to use other people's toilets when I'm at their place because it's so weird. Last time, I cleaned the toilet and I came back 20 minutes later and the water was black!!!
I've been thinking if only we could get someone to do a swab on our toilet, they may figure out what's causing our disease - my rationale, all pathogenic bacteria care about is transmission, if it's something that transmits via aerosol then it causes coughing or vomiting, if it's the fecal route it causes diarrhea. We obviously have a pathogen in our bowel that transmits via the fecal route and so will be shed in large numbers this way; in much the same way people infected with C.diff have a "cloud" of C.diff around them (the pathogens way of trying to be transmitted) after using the bathroom. The current problem is they can't can't find the UC-causing pathogen in the bowel because there are so many trillions of bugs in there. But if we could get someone to test our toilet, there would be significantly less bacteria there and only the most pathogenic would survive, thereby narrowing down the search.

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 11035
   Posted 6/17/2017 4:02 PM (GMT -7)   
Yeah it's definitely the mesalamine. Both oral pills and rectal-route can do this. Bleach can make it turn purple or even black.
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; 75mgs 6MP, 4.8g Lialda, and rowasa

I swore to myself that once i was off of prednisone that I'd burn both the pills and bottle with great hedonistic enjoyment: booze, food, and dance. And if I ever need a colectomy... ;-)
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