Mesalamine (Rawasa) enema side effect?

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Sam1996
Regular Member


Date Joined Oct 2014
Total Posts : 74
   Posted 6/16/2017 10:29 PM (GMT -7)   
Hey guys,
I don't know if this is paranoia, but I swear that since about day 4 of my Mesalamine enema (4g/bottle solution) treatment my skin has been hurting (I'm now on day 12). Has anyone else had a side effect like this, or know why it might be happening? I'm not on prednisone right now.
21 years old
15 mg Mercaptopurine, 100mg Allopurinal, 2 satchels vsl3 DS probiotics (aka. life savers)
remission since age 16

Casey_LB
Regular Member


Date Joined Mar 2015
Total Posts : 187
   Posted 6/16/2017 11:38 PM (GMT -7)   
No. I used Rowasa for months without​ any side effects.
Male 54
Dx'd w/ UC 2013, flare since 4/14
Asacol HD 800mg, 6/day
Start Remicade 12/24/14, nonresponsive, DC'd 3/15
Start Humira, 8/1/15, nonresponsive, DC'd 12/1/15
Hydrocortisone enemas helped, regressed after stopping,

Start Entyvio 12/4/2015.
Restart hydrocortisone enemas 12/8/2015
Start UMass IBD_AID diet 12/1/2015
Improved, not full remission w/ Entyvio, hydrocortisone, IBD-AID

quincy
Elite Member


Date Joined May 2003
Total Posts : 29859
   Posted 6/17/2017 7:43 AM (GMT -7)   
And it wasnt at all before starting the enemas?
Where is your skin hurting specifically?

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 7 @ 2x daily with meals; Vitamin D 4500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

Sam1996
Regular Member


Date Joined Oct 2014
Total Posts : 74
   Posted 6/17/2017 8:15 AM (GMT -7)   
my hips and my butt. I have some stretch marks from prednisone over there, and the general area started hurting a few days into the enema treatment. Its like an itchy/stretching/fragile feeling feeling. Maybe its nothing but idk
21 years old
15 mg Mercaptopurine, 100mg Allopurinal, 2 satchels vsl3 DS probiotics (aka. life savers)
remission since age 16

quincy
Elite Member


Date Joined May 2003
Total Posts : 29859
   Posted 6/17/2017 8:52 AM (GMT -7)   
You were just off the pred?
Any rash?
q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 7 @ 2x daily with meals; Vitamin D 4500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

noodlesnoodles
Regular Member


Date Joined Nov 2015
Total Posts : 273
   Posted 6/17/2017 9:05 AM (GMT -7)   
Pred makes my skin on my hips/butt feel like that. Like it's made of thin tissue paper lol.

I found that going heavy on the moisturizer helped a bit with the itchy feeling.
28 year old female
Issues began in July 2014
Capsule endoscopy in late March 2017 showed "suspected Crohn's Ileocolitis"
After colonoscopy on April 14, 2017, was officially diagnosed with Ulcerative Pancolitis (w/ backwash ileitis)
Current meds: Apriso 4 x daily, Prednisone 20 mg, Entocort 9mg daily, Canasa 1000mg suppositories (PM), Vit E suppositories (AM), B12 injections every 2 weeks

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 11035
   Posted 6/17/2017 4:16 PM (GMT -7)   
I doubt it is the prednisone.
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; 75mgs 6MP, 4.8g Lialda, and rowasa

I swore to myself that once i was off of prednisone that I'd burn both the pills and bottle with great hedonistic enjoyment: booze, food, and dance. And if I ever need a colectomy... ;-)

sfc425
Veteran Member


Date Joined Jul 2010
Total Posts : 701
   Posted 6/17/2017 4:49 PM (GMT -7)   
been on rowasa for about 3 years, no side effects

Sam1996
Regular Member


Date Joined Oct 2014
Total Posts : 74
   Posted 6/17/2017 10:33 PM (GMT -7)   
No I haven't been on prednisone for years. I just wanted to note that I wasn't on it. I don't have a rash either

quincy
Elite Member


Date Joined May 2003
Total Posts : 29859
   Posted 6/18/2017 9:09 AM (GMT -7)   
Try uso g it every second night and see if you notice a change in symptoms. Back issues can cause numbness.

I think you should inform your GP about that so see if you have anything else going on.

What supplements are you taking?

How long on the immuno meds?
q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 7 @ 2x daily with meals; Vitamin D 4500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

Post Edited (quincy) : 6/18/2017 10:12:04 AM (GMT-6)

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