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M00NMAN18
New Member


Date Joined Sep 2016
Total Posts : 8
   Posted 6/17/2017 10:12 AM (GMT -7)   
Greetings everyone.
I want to share my story with you.
My symptoms first started with blood..then came diarrhea and after that blood and diarrhea.
I would eventually get my symptoms in check using cortisosteroids everytime I had a flare up, apart from that nothing ever seemed to work.
I had 3 different biopsies done, in three different hospital, neither of them confirmed any kind of trace of UC.
Then during a "remission" I had a colonoscopy..err I think the proper term is chromeocolonoscopy or something done(and biopsy) the colonoscopy doctor told me that my colon was entirely clean and there wasn't even a single trace that there was an inflammation, it looked like a normal colon except.. it was full of polyps.
I've always had flare up during springs EXCEPT this Spring where I had polyp removal, doctor told me he removed 90% of polyps but not all, since there was too many(50+) Thankfully they were not cancerous.
now..during remissions I didn't have any dietary restrictions, I just ate everything and drank everything, alcohol and very sour fruit would make my bowels move slightly faster(SOMETIMES I'd get 2BM a day and that's all)
Now I'm having a flare up again and I'm preparing to get colonoscopy and remove the remaining colon polyps. I just wanna know if UC can behave this way? And if polyps can cause diarrhea(currently I have 3-5 BM a day whereas during flareups when I had much more polyps I had 6+ and sometimes even 20)
Thank you for your attention.

DBwithUC
Veteran Member


Date Joined Feb 2011
Total Posts : 3941
   Posted 6/17/2017 12:15 PM (GMT -7)   
not UC until biopsies say so

need some other diag
11/08: ischemic colitis and scope perf colon. 12cm colon/ileocecal resected. IV antib:sepsis.
01/10: Dx: Mod. UC pancolitis. Rx: Lialda 3x.
02/11: Major flare w/antib:sinus. Rx: 40mg Pred taper. 6mp.
07/11: Histol remiss rt/trans; worse sigmoid. Rx: Rowasa & hydrocort
---
Curr: 1-2 soft-formed stool, no urgency: Lialda 2x, NO PRED, probiotics, Vit-D/C

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 11035
   Posted 6/17/2017 4:17 PM (GMT -7)   
Ditto DBwithUC, if the biopsies say no then you do not have UC.
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; 75mgs 6MP, 4.8g Lialda, and rowasa

I swore to myself that once i was off of prednisone that I'd burn both the pills and bottle with great hedonistic enjoyment: booze, food, and dance. And if I ever need a colectomy... ;-)

momto2boys
Veteran Member


Date Joined Jun 2013
Total Posts : 1866
   Posted 6/18/2017 4:52 AM (GMT -7)   
What you are describing is exactly like what my paternal grandfather went through, except that smoking is what help the bleeding and d in check. He would have scopes that looked great except for havin many inflammatory polyps but biopsies were negative for IBD. Granted, this was in the late 80's and early 90's that he was scoped. Doc told him to keep smoking if it worked for him since he had been a smoker since he wa 9! I honestly believe he had UC, and when I told my own father what I was going though before I was diagnosed he said his dad had these symptoms every time he quit smoking.
Hopefully this next scope will give you a better sense of what is happening. Good luck!
41 yrs old diagnosed with proctosigmoiditis 6/13/13
meds- 2 Lialda + sfRowasa nightly - supplements: probiotics (1 VSL3 cap, 1 culturelle and 1 reuteri) 1 gram krill Oil, 2 TBSP p. seed powder, 2 g curcumin. Allegra for seasonal allergies as needed. Allergic to sulfites. Currently gluten/dairy free (except yogurt) and eating lots of RS.

noodlesnoodles
Regular Member


Date Joined Nov 2015
Total Posts : 273
   Posted 6/18/2017 6:37 AM (GMT -7)   
I had a colonoscopy with negative biopsies and wound up having UC anyway. My doctor said it happens to 1 patient every 3-4 years in their relatively small clinic. Like you, my first colonoscopy was done during a period of relatively few symptoms.

It is good you are getting a second colonoscopy. Make sure the doctor takes biopsies again.

That said, polyps can bleed and blood can act as a laxative in the colon and that may be the reason for your symptoms.
28 year old female
Issues began in July 2014
Capsule endoscopy in late March 2017 showed "suspected Crohn's Ileocolitis"
After colonoscopy on April 14, 2017, was officially diagnosed with Ulcerative Pancolitis (w/ backwash ileitis)
Current meds: Apriso 4 x daily, Prednisone 20 mg, Entocort 9mg daily, Canasa 1000mg suppositories (PM), Vit E suppositories (AM), B12 injections every 2 weeks

M00NMAN18
New Member


Date Joined Sep 2016
Total Posts : 8
   Posted 6/21/2017 4:43 AM (GMT -7)   
Thank you all for your replies.
I will try to make this as short as possible.
I started having bloody stools at age of 15, after the blood I had diarrhea, I had colonoscopy done and biopsy samples taken.
The biopsy did not confirm UC.
No meds worked for me, no ASA meds or such, they have never worked for me.
What did seem to work at first was a specific antibiotic.. for some reason, I'm not sure why and neither are doctors since any lab test returned negative except that one time I had cryptosprodium but I if I correctly I did a course on that, from there on I have never done any more of lab work.
Then I had a HUGE flare-up, the steroid creams, the antibiotics, ASA meds, neither of them worked.
Only thing that worked as.. prednisone and you must know how terrible that drug is.. anyway I had second colonoscopy done during flare-up, doctor said he found ulcers and took biopsy from multiple sites, neither of biopsies confirmed Ulcerative Colitis or cancer, so we sent a sample to foreign, German hospital and received such diagnosis
"We have examined the biopsy you have sent us and found no traces UC, However there MIGHT be a mild case" I'm not sure what mild case ism but I've had blood diarrhea with 20 BM+ and I wouldn't call that mild.
During "remissions" induced by prednisone I could eat whatever I want in large quantities, drink alcohol and soft drinks, only coffee seemed give me a quicker BM(But it was limited to that 1-2 time)
Now.. I've had flare-ups every Spring and sometimes Fall and I was sick of swalloing prednisone since that was only thing that worked so I wanted to get surgery and remove colon.
I had another colonoscopy done, for the the third tome to one of best, world-famous doctors, to know how "scarred" my colon was and get advice on surgery, I've had that colonoscopy done where they use some kind of dyes to get a better view.
Anywho, to my surprise..
Doctor told me that my colon was absolutely clean, as if it there never has been any kind of disease, he also explained to me that even if I was in remission I would STILL have a different kind of colon with different signs(I was in remission for 3-4 months by that time), biopsy also returned that I didn't have UC however what he did find was.. A LOT of polyps, I mean around 80 in sigmoid colon if I remember correctly, so I was scheduled for Polypectomy in January, The doctor told me he removed "most of it" but not all since there were too many and I just let that one slide, Spring passed without a flare, I thought that was it and I had made it, but nope a week ago the same flare started(first gasses, then a bit of blood then diarrhea with blood, on some days stools are slightly harder with a bit of blood on some times there is more diarrhea and more blood)
What I find interesting is that during previous flare-ups I had 10-20BM+ a day and now I have 3-6 at most.
I have scheluded another colonoscopy to take a look at my colon during this flare-up and I am also planning to get rid of remaining polyps.. Also what I find interesting is that whenever I feel like having a BM, I have this feeling as if someone was pushing me below bellybutton, kind of where sigmoid colon is located, could this be because of leftover polyps? Can they cause such things? Please don't hesitate to give me your opinion, Thank you.
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