I am a little in the dark about surgery but was wondering if I could ask you some questions? Firstly, is a J-pouch the most common surgery that's done for UC? Or is it only for select patients - and if so, what rules you out? What are some of the complications that can happen or you've experienced? Did you have a bag initially? Do you go to the bathroom normally, e.g. Normal urge, formed bowel motion? I'm sorry if all that is a bit personal (I hope not), I'd just like to know how it works.
I would say the j pouch is the most common surgery now for UC. Many people opt just for a permanent ileostomy because they don't want multiple surgeries so it's a personal decision. I have 2 family members with j pouches so for me it was a no brainer to go for it since I saw how well they have done all these years. There are some people who are not candidates for a j pouch. If you are obese a surgeon will not do the surgery and recommend losing weight first. Also people who have very long torsos may not be a candidate. There could be an issue with the small intestine reaching down to form the J pouch. I think those cases are rare though. I go to the bathroom about
4x a day. It's not formed stool like when I had a healthy colon. It's looser...semi formed I'd say. I have no urgency. I can hold it for a long time if I have to although the longer I wait, the more uncomfortable it gets. I had a two step procedure so yes, I had a temporary loop ileostomy for 3.5 months in between surgery 1 and 2 (reversal).
Marianne- age 48
DX Pancolitis in 2005. Family history of UC. Symptoms started shortly after I quit smoking
Tried every drug-even Remicade & Cyclosporine-Tried diets-nothing worked.
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy) 6-25-10
Step 2: Take down surgery (Ileostomy reversal) 10/8/10
No more UC and no more drugs! Very happy j-poucher