Your Senators will be voting this week to label you with Pre-existing Conditions

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ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4809
   Posted 6/26/2017 10:01 AM (GMT -7)   
In a dramatic roll back of protections and coverage, this week the Senate is expected to vote to change Healthcare in the US for the worse.

TrumpCare will undermine critical protections for people with pre-existing conditions (like us), defund Planned Parenthood, raise premiums for American families, gut Medicare and take away 23 million American's insurance from them.

If you would like to contact your Senator to express your opinion before they vote there is a website that makes it easy to find their phone numbers and gives you some talking points. /www.trumpcareten.org/

There are 10 senators who are critical to this vote, they are in Alaska, West Virginia, Maine, Nevada, Arizona, Colorado, Ohio, Pennsylvania, Louisiana & Arkansas hence the name name TrumpCare Ten /www.trumpcareten.org/
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4809
   Posted 6/26/2017 2:20 PM (GMT -7)   
So the CBO came out, 22 Million americans will lose their health care by 2026 BUT the majority will lose it next year (2018) with 15 million losing right away.

Here's the big problem for people with an IBD:

CBO: many people could also face much bigger out-of-pocket costs because of higher deductibles and end to annual/lifetime caps.

this is making people's' health coverages worse. Call your Senators. they may vote on this in a couple of days.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 11019
   Posted 6/27/2017 1:24 PM (GMT -7)   
Sounds like it is delayed for now at least smile

I knew my senator, Bernie Sanders, would be all over it.
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; 75mgs 6MP, 4.8g Lialda, and rowasa

Poopcation, it's a day without pooping and it would totally be a restful vacation! Think of all I'd get done when not worrying about or sitting on the throne repeatedly!

Nostalgic Cowboy
Regular Member


Date Joined Oct 2016
Total Posts : 53
   Posted 6/27/2017 7:07 PM (GMT -7)   
Placing lifetime limits on coverage is messed up. I imagine some folks would hit that on biologics alone if they stayed on them for a while.

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4809
   Posted 6/27/2017 7:24 PM (GMT -7)   
My biological (Stelara) is $40,070 every 8 weeks. Which comes out to $260,400 every 52 weeks(a year). That is before the IV loading dose which is 4x's the normal dose. Also, before all the doctors visits, tests and other medications. I would be close to my 1m lifetime cap within about 3 years. Plus the 105 days in the hospital, 4 surgeries that I have had and a new hip. The GOP would have no problems kicking me to the curb.

I have 4 preexisting conditions; IBD, chemo meds, Lymes and a hip replacement. I never asked for this, I do the best that I can and I try not to complain.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

Nostalgic Cowboy
Regular Member


Date Joined Oct 2016
Total Posts : 53
   Posted 6/27/2017 8:08 PM (GMT -7)   
It's insane. Some of these people ought to be locked up for attempted murder.

I've heard some of the "healthy" folks claim that it's not too difficult to avoid the healthcare system--just eat right, exercise a little, don't smoke and avoid excessive alcohol consumption... if they only knew how little control they actually have on their health, perhaps they would realize how the proposed healthcare bill screws over so many people.

I guess this is what we can expect when the ones who are designing our healthcare system are the people who have had extremely limited experience with it.

Can we pool our resources together to try to buy one of the crappier states and start our own country? Perhaps name it Healingwellandia
23 yr. old male.
Diagnosed with UC in August 2015. Haven't found remission since diagnosis.

Tried medications:
Canasa, hydrocortisone enemas, Apriso, Humira, Entyvio, Rowasa, Lialda, Remicade, LDN

Current Medications/Supplements/Vitamins:
sulfasalizine, VSL #3, turmeric, boswellia, GI revive, l-glutamine, colostrum, vit. D, zinc, fish oil

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 11019
   Posted 6/27/2017 8:15 PM (GMT -7)   
Healingwellandia, i like it! smile
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; 75mgs 6MP, 4.8g Lialda, and rowasa

Poopcation, it's a day without pooping and it would totally be a restful vacation! Think of all I'd get done when not worrying about or sitting on the throne repeatedly!

Bull101
Regular Member


Date Joined Feb 2015
Total Posts : 459
   Posted 6/28/2017 10:23 AM (GMT -7)   
NostalgicCowboy said...
It's insane. Some of these people ought to be locked up for attempted murder.

I've heard some of the "healthy" folks claim that it's not too difficult to avoid the healthcare system--just eat right, exercise a little, don't smoke and avoid excessive alcohol consumption... if they only knew how little control they actually have on their health, perhaps they would realize how the proposed healthcare bill screws over so many people.

I guess this is what we can expect when the ones who are designing our healthcare system are the people who have had extremely limited experience with it.

Can we pool our resources together to try to buy one of the crappier states and start our own country? Perhaps name it Healingwellandia


Understandable thinking, but you'd go bankrupt in a month. Problem is the health care system needs the healthy people to pay into it to pay for the unhealthy people to cover their costs or else it all doesn't work. If no healthy people paid anything, then you'd be stuck with that $10,000 infusion off the bat without ANY coverage.

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4809
   Posted 6/28/2017 11:25 AM (GMT -7)   
DutchessCountyJim said...
Whats stopping the price of a drug from going to a million dollars per dose? 2 million? ... I know someone that had a med. delivered from India at 1 % the USA cost. He says it's high quality pharma. --- And that Indian company made a profit!


Well... The GOP in 2003 passed the Medicare Part-D that prohibits Medicare from negotiating drug prices, so manufacturers can just name their price and then Medicare has to pay it. This effects all drug prices in the US since the largest buyer medications in the World pays the prices so other insurance companies have no bargaining power for pricing of meds.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5135
   Posted 6/28/2017 1:00 PM (GMT -7)   
Today's Repub Party totally sucks! All they care about are corporate profits & their own investments & campaign contributors. If McConnell & Ryan had Crohn's, multiple myeloma, or Parkinson's, they'd be singing a different tune, and the same for that super-rich, bullying blimp with the yellow wig who loves to defund anything that improves women's health, especially. A pox on these devils! Voting creeps like them into public office is just plain dumb!!!!!!!!!!!! I know we should not get political here, but these people are determined to take our country backward to some past Utopia that never existed. They couldn't care less about the poverty & suffering their greed causes. / Old Hat (36 yrs with left-sided UC; presently in remission taking brandname Colazal)

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4809
   Posted 6/28/2017 1:17 PM (GMT -7)   
We are discussing health care in America, this isn't about an Election/politics.

The GOP is so bad that Sen Mitch McConnell would not meet with the March of Dimes about the Sen HC bill; McConnell is a survivor of Polio (contracted it at 2 yrs old) and the March of Dimes helped fund the Polio Vaccine. https://tonic.vice.com/en_us/article/a3zbmz/mitch-mcconnell-polio-refused-march-of-dimes-meeting-over-senate-health-bill

McConnell then had disabled protesters arrested at his office and had some removed from their wheelchairs. www.cnn.com/2017/06/22/politics/protests-mitch-mcconnell-office-health-care-bill/index.html

This is how much respect the GOP has for sick, disabled and poor people.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 11019
   Posted 6/28/2017 1:36 PM (GMT -7)   
The thing to remember is we're a minority (those who have chronic health conditions) who require lots of expensive medical care and medications. And politicians are trying to please the majority who say things are too expensive. As such, we have a big target on our backs. Now minorities are never, ever ignored and disparaged by the majority, now are they? Never...

The solution is what the rest of the world over has, every other wealthy 1st world country has universal healthcare. The USA is unique with it's private, employer-sponsored-healthcare model, which frankly is beyond saving. Employer-sponsored health insurance plans dramatically expanded as a direct result of wage controls imposed by the federal government during World War II where wages could not be raised but new benefits were created to attract applicants when they was a surplus of jobs and a lack of applicants. The whole model is beyond reproach, convoluted, and costly. By nearly every measure the USA pays more and gets worse results than other countries. There's many who aren't insured due to cost which is beyond shameful. But there's lots of money to be made, and protecting the status quo is deeply ingrained in politics and the special interests who lobby for it, and pay politicians campaigns generously to keep it as it is.
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; 75mgs 6MP, 4.8g Lialda, and rowasa

Poopcation, it's a day without pooping and it would totally be a restful vacation! Think of all I'd get done when not worrying about or sitting on the throne repeatedly!

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 15414
   Posted 6/28/2017 3:04 PM (GMT -7)   
Old Hat said...
Today's Repub Party totally sucks! All they care about are corporate profits & their own investments & campaign contributors. If McConnell & Ryan had Crohn's, multiple myeloma, or Parkinson's, they'd be singing a different tune, and the same for that super-rich, bullying blimp with the yellow wig who loves to defund anything that improves women's health, especially.


So true. People really only care about what impacts them. If we all didn't have conditions, we might be singing a different tune. John is right too, we are the minority, many people don't know anyone with preexisting conditions & some people are so clueless they think chronically ill people caused the condition upon themselves by eating poorly, being unfit, drinking alcohol... (or whatever they choose to believe - often they know everything and no amount of facts can teach them).

Interestingly, now that I am not dependent on drugs & doctors, this is less stressful for me. I worry for everyone else, but i don't worry so much for myself at the moment. When things were bad, in the past (pre ACA), and I was uninsured, I worked really hard to get, and maintain a job at a company with insurance. If you're of working age, I'd suggest that is your best option at the moment.
Co-moderator: Ulcerative Colitis
Currently: no meds. 6/15 Step One J-pouch Surgery Complete! 9/15 Step Two Complete! 11/15 Step 3 Complete!

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish.

Nostalgic Cowboy
Regular Member


Date Joined Oct 2016
Total Posts : 53
   Posted 6/28/2017 3:22 PM (GMT -7)   
I realize it's a tricky issue, but I still don't completely understand the people who complain about premiums being too high.

Sure, premiums have increased, but if one is really confident he/she won't need healthcare in the future, why not just pay the individual mandate penalty or choose a high-deductible health plan?

Doing so would--hopefully--appease these people who complain their insurance premiums are too high, but still allow those who have chronic conditions or are simply more risk averse to have good coverage.

I mean if one ends up coming down with a chronic condition under the proposed healthcare bill, he/she might be better off just doing without health insurance (assuming you can negotiate prices by paying cash and/or find helpful drug assistance programs available).

I understand that non-elderly people who develop a chronic condition are in the minority, but I firmly believe that the people who want peace of mind by knowing they are covered if their health goes down the drain make up the majority. This is just human psychology/risk preference. Most people are risk averse. Very few are risk neutral. And hardly anyone is risk-seeking. Anyone who claims to be risk neutral, ask them if they are willing to bet half of their annual income on whether coin lands on heads... I doubt you will find many who will take you up on that offer. Anyone who claims to be risk-seeking, ask them if they are willing to bet their entire net worth on a die landing on six... I doubt you will find anyone to take you up on that offer.

My point is that health is a fairly precarious thing. More so than what the average healthy person realizes. Prior to being diagnosed with UC, my doctors would've classified me as incredibly healthy.

Hardly any of the healthy people I know really understand what a financial burden having a chronic condition can be. We're relying on folks who have no understanding of/sympathy for sickness to make a logically sound decision.

The truth is that, as of 2012, half of Americans had chronic conditions. A lot of these folks supporting this healthcare bill today will develop a chronic condition in the future. And when they do, they too will be getting screwed over by this bill. This bill would negatively affect us fairly soon, but it would negatively affect an incredibly large amount of people sometime not too far off in the nebulous future. Obviously, I don't take any joy from this fact--it's just reality.

I'm not even that big into politics and don't consider myself a Democrat or liberal. I suppose one could argue this bill contradicts what is morally right, but even disregarding that I believe this bill contradicts basic logic.

Post Edited (NostalgicCowboy) : 6/28/2017 4:40:48 PM (GMT-6)


imagardener2
Veteran Member


Date Joined Jan 2010
Total Posts : 5603
   Posted 6/28/2017 7:44 PM (GMT -7)   
I care so much about this and other upcoming votes that I changed my voter registration to R so that my elected officials would pay attention to me when I call their office to tell them how they should vote. They have paid attention because MANY other people like me have been calling their elected senators and representatives.

This proposed healthcare bill hurts people like us with chronic illness but also hurts our economy and people in nursing homes, and women and children and so many more. We are a better country than this.

Call your elected officials. Make a difference.

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 6/29/2017 12:38 AM (GMT -7)   
As a woman with a pre-existing condition, I'm doubly screwed. But since I'm old, it doesn't matter. The insurance corporations can charge me 5x what they charge younger people, then they don't have to pay anything because my problems are "pre-existing." Once again, it seems they've handed the pen to the insurance executives and invited them to write the law.

In case you couldn't tell, I think the current proposals are mean-spirited and punish the victims. I don't have any idea how to fix it given the prevailing level of greed; that's part of the reason I would never run for office.
Thyroid forum moderator

Ulcerative colitis; 11thyear of remission with Remicade. Inflammatory osteoarthritis; osteonecrosis from steroids. Grave's disease post-RAI and now on Levothyroxine. Type II diabetes induced by steroids. #ucsucks

IamCurious
Veteran Member


Date Joined Jan 2010
Total Posts : 3072
   Posted 6/29/2017 6:08 AM (GMT -7)   
Many Americans cheered and voted Republican when they promised to replace ObamaCare with a new health care system. But the Repubs weren't interested in reforming health care, they only cared about restricting Medicaid spending and cutting ObamaCare provisions that taxed the rich to help pay for it. So they are now wondering why everyone is balking when they are trying to pass their own health policy, (which includes the tax cuts for the rich), that is even worse than ObamaCare.

I won't judge the Repubs, that is what they always do so I am not surprised. But I am still angry at the Democrats, the supposedly party of the people, who refused to pass a single-payer health care system when they controlled both Congress and the White House in 2009-2010.

The good news is that I believe people will inevitably realize that the only way to end the current chaos in Washington over health care is to pass a single-payer system that is similar to what works in the rest of the civilized world.

MarjieKay
Veteran Member


Date Joined Jun 2017
Total Posts : 611
   Posted 6/29/2017 6:22 AM (GMT -7)   
imagardener2 said...
I care so much about this and other upcoming votes that I changed my voter registration to R so that my elected officials would pay attention to me when I call their office to tell them how they should vote.


This is pure brilliance. I may have to do this myself.

I think there is merit to the idea that demolishing medicaid seems to be a higher priority than creating a fair and balanced health care program. On NPR yesterday in an interview someone had quoted Paul Ryan as saying that is something he's dreamed of doing since college.

But, I digress.....not here to be political. But this really IS a topic that should unite us all.

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4809
   Posted 6/29/2017 7:06 AM (GMT -7)   
MarjieKay said...
imagardener2 said...
I care so much about this and other upcoming votes that I changed my voter registration to R so that my elected officials would pay attention to me when I call their office to tell them how they should vote.


This is pure brilliance. I may have to do this myself.



I was thinking about this too, but decided against it even though I would love to vote against my GOP Congressional Rep TWICE; I feel that my vote is better as a democrat so we get the best Dem Rep available. There are 9 people who have already official announced that they will be running for the Democratic Primary in my District for 2018 and more rumored on the way. We need to put the best democratic candidate against this current pathetic excuse for a congressman that I have representing my district.

Right now I am still registered as an independent.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4809
   Posted 6/29/2017 7:13 AM (GMT -7)   
jujub said...
As a woman with a pre-existing condition, I'm doubly screwed. But since I'm old, it doesn't matter. The insurance corporations can charge me 5x what they charge younger people, then they don't have to pay anything because my problems are "pre-existing." Once again, it seems they've handed the pen to the insurance executives and invited them to write the law.

In case you couldn't tell, I think the current proposals are mean-spirited and punish the victims. I don't have any idea how to fix it given the prevailing level of greed; that's part of the reason I would never run for office.


If you live in one of the states with the 10 Senators that are in www.trumpcareten.org then you have more of a voice than I have in this debate. Reach out to your Senators. This fight is not over, they did the same in the House with it being defeated and then they rammed it through in a second vote.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

imagardener2
Veteran Member


Date Joined Jan 2010
Total Posts : 5603
   Posted 6/29/2017 8:03 AM (GMT -7)   
ks1905 said:
I feel that my vote is better as a democrat so we get the best Dem Rep available.

I can change my voter registration back and forth as often as I want to. When I need to vote for a primary I can decide which primary candidate needs my vote more or less. It's not a permanent decision.

I respect your decision for whatever registration you choose. Married to a reg. Independent who rails against people who voted 3rd party and cost the election, well those and the Russians.

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 11019
   Posted 6/29/2017 8:18 AM (GMT -7)   
Over the years, the republican party has been very organized like a team, in getting all party-initiatives passed regardless of personal objections. Kudos to their organization, party-loyalty, and strategy. They're having a little more difficulty as their umbrella includes a lot more folks underneath it now than ever before, but I don't doubt they will at least pass something to change healthcare for the worse before the midterm elections (the embarrassment and frustration within their leaders is just growing and saving-face is a must). A lot of time and tries to at least pass something is left, so it's but a temporary victory.

I was registered as an independent in NH (a purple, swing state that could go either Rep or Dem), as well and was for many, many years. It's fun to vote for whichever party I want to within the primaries and then get to choose a party again on the actual election day. I try to be strategic, where my vote will make the most difference based on current polling. I'll help a party when I believe in the candidate and that he/she needs a boost of my vote. In primaries, I'll cast a protest vote on the weaker candidate of a party that I disagree with when the good candidate in my preferred party is considered to be a shoe-in (based on numbers) as a weaker/crazier opponent in my non-preferred party is good for my preferred party later during the general election!

Now I'm in VT, and I believe they chased out all of the republicans many, many years ago. Anybody who calls themselves a republican here is nothing but a moderate-democrat. I think VT and CA are in a race to see who can create the best liberal-utopia they can haha.
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; 75mgs 6MP, 4.8g Lialda, and rowasa

Déjà-poo: The act of pooping again only a short time after you last pooped

Post Edited (iPoop) : 6/29/2017 9:26:39 AM (GMT-6)


Bull101
Regular Member


Date Joined Feb 2015
Total Posts : 459
   Posted 6/29/2017 9:39 AM (GMT -7)   
Also, another issue, is that the majority people who contribute to the system via taxes (in terms of total money contributed, not sure about # of people) have healthcare through their employer and won't actually be using the system. Hence, the less you contribute to the system you don't use, the better....

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 11019
   Posted 6/29/2017 10:30 AM (GMT -7)   
I'm sure that most young and healthy people look at paying for health insurance as a huge waste of money, just like i do with auto insurance. As I've been driving for 23 years and never claimed an at fault accident or had a comprehensive claim where my insurance would pay me back. So, insurance seems like a waste to throw $1k plus away every year for peace-of-mind.

Those who complain the loudest about insurance being too expensive are those who are the least to use health insurance, and all they care about is premium not copays and deductables. Thus copays and deductables have been creeping up for decades.

I'm sure the mom and dads out there use insurance for their kids. I know i was always getting sick, got stitches on multiple occassions, and broke a femur, doing all the stupid things a boy does when given a vast outdoors to play in, a bicycle, sleds and other toys, and boredom.
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; 75mgs 6MP, 4.8g Lialda, and rowasa

Déjà-poo: The act of pooping again only a short time after you last pooped

Post Edited (iPoop) : 6/29/2017 11:36:18 AM (GMT-6)


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5135
   Posted 6/29/2017 3:02 PM (GMT -7)   
IamCurious-- here's hoping you are right about single-payer acceptance, but the USA should also have direct election of the President/Veep by now-- which never seems to catch on, alas. / Old Hat (36 yrs with left-sided UC; presently in remission taking brandname Colazal)
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