"Glad Xeljanz is working for you. How long have you been on it? One concern I have with biologics is that for many they only work for a short amount of time and then you're back to square 1. I imagine at some point I will have to go on them though. Entyvio would probably be my first choice."
but there are also lots of folks who do well on them for many years - why not start now - and if going back to square one is in your future, wouldn't it be better sooner than later ?
just my loony thoughts speaking -
Personally, if I am able to feel OK without the biologics I would prefer not to take them. I may get bad enough that I require them, but for now it seems I am at my worst when diet is uncontrolled and I am in a calorie surplus. When I am dieting (i.e. a calorie deficit) and diet is more controlled my symptoms are much much better.
Xeljanz is not a biologic so there is no risk of developing antibodies. The main risk (as far as I can see it) is if your UC progresses beyond what the drug can handle....at a safe dose....especially because there might be some risks of thrombosis on higher doses, although that has not been confirmed for UC yet but has for RA patients.
I was very opposed to immunomodulatory therapy in the beginning but after having too many accidents crapping my pants, including on the beach far from a toilet...I decided I don't want to live my life like this any more....
Sometimes I have been to cafes/restaurants where there was literally nothing on the menu i could eat...especially at lunchtime, here (Netherlands) it is based mostly around sandwiches. Or maybe there's a soup but they put gluten in it. Or a salad but I couldn't handle raw vegetables. Etc etc.. My comment was however more about when a friend cooks dinner or at catered events, when there isn't any choice.
Yes I could make myself do it and I did for years....now that I don't have to any more, it is very liberating and I enjoy it.
Oh and I tried ginger at some point...I found it aggravated my system (more cramps).
Sure, I can understand that. Like I said, I don't mean to pass judgment. I'm sure certain areas of the world aren't as easy, and you're right that sandwich shops and the like can be difficult. If I was crapping my pants in public and diet wasn't controlling that I would likely take whatever I needed to as well lol.
From what I've read Xeljanz is a biologic, just a different type than remicade and other TNF-alpha inhibitors (as it's a JAK inhibitor). Just reading the potential side effects on Wikipedia scares the crap out of me. Like I said, after my issues with medications in the past I am very side effect averse. So I may very well reach a point where I need biologics/immunosuppresants, but I hope I can continue with diet for the time being. I'm drained from constant worry about