Adhesions are definetly up there in my suspicions, annoying that the only way to see them is more surgery.
As with when the pain comes - I dont really see a pattern, it comes in flare ups for a week or two where its really bad and after everything I eat. My stoma seems to become quite inactive during mid day and won't poop from around 12 til 4pm but I think thats normal for my body. Feels like a lot of pressure behind the stoma at times.
One type of pain that I get frequently is the kind that takes your breath away because its so bad, all around the middle area of my abdo and it comes with very sharp pains.
Some weeks its very very mild and only have one day out of the week where its very bad.
My doctors have said it would take a long time to recover but as you said I think its gone on a bit too long now. They seem to be pushing it away and not really listening hence why I have had no scans and no scopes.
I'm a 16 year old female and had a loop ileo formed, still have part of my rectum so I can get a jpouch if I want to in the future.
Some of the cramping could be due to periods and ladies issues. My GP(GP is just the family doctor you can go to with any concerns and they can refer you to people) suspects maybe a bit of bowel has stuck to a part of my reproductive system and thats why it hurts so much in my cycle(all month cramping) or it's endometriosis. Been referred to a gyno doc but will have to wait 6months or more to see them.
Thank you for your replies
Post Edited (Ziggs) : 7/27/2017 2:40:06 AM (GMT-6)