Yes, sorry for discussing this in your thread TBlock, but I am thrilled you are feeling so good right now.....I hope it keeps up into eternity !
MarjieKay - So going back, you'd give up 8 years med-free, and would've taken maintenance doses because your current flare is so bad? or because you think it was spreading the whole time? How long have you been in this flare? From my recollection of what I've been reading, yours is fairly mild, but was your current diagnosis of proctosigmoiditis more severe?
@ photogirl, I cannot say anything with certainty. This is my current dilemma. I didn't know anything about
UC back when I was first diagnosed with proctitis . I do remember my doctor saying I'd need meds for life if it were to return once I stopped the steroids......I just never believed that.
Knowing myself the way I do, no.....I wouldn't have stayed on the meds. The 8 years was just a regular 8 years for me with zero issues. And compared to many here, my symptoms are very easy to deal with.
My case IS mild, but the inflammation was very hard to tamp down completely this time. I had symptoms for 19+ months, but I admittedly tried 6 different approaches before going in to have a new colonoscopy. In hindsight, I NEVER would have waited that long. At the first sight of blood, I would have made an appt.
It has taken 4 months to hammer my symptoms into submission and I still have inflammation right now in my entire rectum and part of my sigmoid. That is like burning embers. I still have a burning sensation after every BM.....so I know I am not even out of the woods yet.
All of this and I still envision a life OFF meds......so........I don't know. I have no idea what is going to happen. I am awaiting my biopsy reports and plan on continuing my current med/supp protocol while I gather as much data as possible. maybe I will find the solution (for me)?
One thing is for sure though, I take this disease way, way more seriously than I ever did before. I hope the next few years science can get something definitive figured out for everyone!