Generally it is recommended to be on at least 4,000mgs of oral and 4,000mgs of rectal-route mesalamine/5ASA. The max on pentasa oral is 4,000mgs a day. Rectal-route, you can see about
getting the 4,000mg enemas if they are available within your area (not all countries have them). You can always ask about
mesalamine rectal-foams and suppositories and do multiples (say an enema in the PM and a suppository in the AM).
The one thing UC never, ever gives us is predictable bowels. 1st day I will poop once, 2nd day I will poop 4 times, 3rd day I will poop 2 times and so on. There's just no knowing adds to our anxiety: If I knew I poop twice every day then there'd be no guessing "am I truly done now?". Instead I worry, what if today is a 4 day, I'm away from a bathroom and it is urgent... Thanks UC...
Constipation is often from rectal inflammation. As you heal you will have less episodes of constipation.
Skinny, pencil width stools are a sign of rectal inflammation. Inflammation thickens the walls of the large intestine and rectum, which makes the inside diameter (where stool passes) much, much narrower. In fact, really, really badly inflamed areas can prevent an endoscope from passing through.
"need to try something beginning with Anxthropiane (sp?)" That's Azathioprine/Imuran/6MP, an immunomodulator. If the max dose mesalamines aren't enough then it is a good idea to try the azathioprine. It's a slow acting medication though, and expect 3 months before you see results. I've been on 6MP for 3+ years and have yet to experience a side effect.
Moderator Ulcerative Colitis
John, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g Lialda, and 2X rowasaChoose your own UC Adventure! You're driving to work and urgency strikes. Do you try and hold it as work is 5 miles away (goto page 12), look for the next highway exit (p13), or immediately pull over and poop in the woods (p14)
Post Edited (iPoop) : 8/21/2017 6:32:36 AM (GMT-6)