Have you tried a biological? Those were really well for arthritis and are good for j-pouches. I use them for my jpouch
Try not to get too down, I was never promised anything by my GI or surgeon other than I'd feel better once my colon was removed, I was so sick at the time.
I instantly got chronic pouchitis after my surgeries and spending 55 days in the hospital for those 3 surgeries. I had looked forward to not taking any more meds but it wasn't the hand that I was dealt.
A couple years later I needed my hip replaced due to long term Prednisone use and I may need the other one at some point replaced too.
It totally sucks, but the way I look at it is that if I complain or get too down about
it then I feel that it just makes it worse for me. I promised myself that I'd make the best decisions that I could and that's all that I can really do. I have a great GI, surgeon and make sure that I have insurance that covers everything that I need.
DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014
Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!www.healingwell.com/community/default.aspx?f=38&m=3755226