Hey friends - 54 weeks after my biggest flare, and two rounds of pred with EXCEEDINGLY slow taper this last time, has brought me into----dare I say it? Remission. I drink coffee. I go out in the car. I eat food.
Almost got there in April at 2.5 and busted into renewed symptoms.....doc let me pop back up and try pred again at 20 and here we are. But I am done. 25 pounds up on a 5 foot frame and whatever bird bones I have now. No more.
I welcome all the good energy in the universe as I am finishing the pred this week! You don't even have to reply, just put out the vibes that I stay happy and healthy. Next step is straight into Humira, which is ok if that's the case, but I think I've bought myself some more time.
While I truly believe it was just my body deciding to heal, I did the following: Turmeric capsules 1x day for last 3 months; about 1.5 months of Isatis Cooling; glutamine powder in the AM for 3 months; stuck with Renew Life 50 Billion probiotic; kefir and banana in nutrabullit in the AM.
Great support on this board and 1) hang in there if you're flaring and 2) cheers to everyone doing well.
48 yo female, dx 13 years ago, max Lialda, misc supplements and prob.