Luck, mojo, good energy...I'll take it all!

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TP177
Regular Member


Date Joined Feb 2010
Total Posts : 75
   Posted 11/8/2017 3:40 PM (GMT -6)   
Hey friends - 54 weeks after my biggest flare, and two rounds of pred with EXCEEDINGLY slow taper this last time, has brought me into----dare I say it? Remission. I drink coffee. I go out in the car. I eat food.

Almost got there in April at 2.5 and busted into renewed symptoms.....doc let me pop back up and try pred again at 20 and here we are. But I am done. 25 pounds up on a 5 foot frame and whatever bird bones I have now. No more.

I welcome all the good energy in the universe as I am finishing the pred this week! You don't even have to reply, just put out the vibes that I stay happy and healthy. Next step is straight into Humira, which is ok if that's the case, but I think I've bought myself some more time.

While I truly believe it was just my body deciding to heal, I did the following: Turmeric capsules 1x day for last 3 months; about 1.5 months of Isatis Cooling; glutamine powder in the AM for 3 months; stuck with Renew Life 50 Billion probiotic; kefir and banana in nutrabullit in the AM.

Great support on this board and 1) hang in there if you're flaring and 2) cheers to everyone doing well.

- Tinypete
48 yo female, dx 13 years ago, max Lialda, misc supplements and prob.

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 12546
   Posted 11/8/2017 3:42 PM (GMT -6)   
Congrats! Here's to a long remission. Cheers!
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

Urgency Roused "Oh the places I've pooed from culverts to shady bathrooms" the memoirs of a UC patient. Run, don't walk, to you local bookstore...

Serenity Now
Veteran Member


Date Joined Jan 2009
Total Posts : 2109
   Posted 11/8/2017 4:34 PM (GMT -6)   
I'm more than happy to send you positive energy/vibes!
Female, 51, Vancouver BC
Pancolitis: Currently in remission

Jan-Mar2009: Asacol HD. Resulted in severe joint pain and no discernible benefit.
May26-Sep4/2016: Mezavant 4800 mg
Sep5/2016 - : Mezavant 2400 mg

songlady
Veteran Member


Date Joined Aug 2009
Total Posts : 3648
   Posted 11/8/2017 4:57 PM (GMT -6)   
Sending positive vibes your way!
Age 61. Diagnosed UP 1983, UC 1986
Humira started 6/5/17
Lialda, 4 pills a day
Failed 6 MP (Liver enzymes skyrocketed)
Metamucil - 2 doses/day
Various probiotics
Multivitamin, vit. D3
two hips replaced thanks to pred.
Bentyl as needed as of 8/31/17

countess18
Regular Member


Date Joined May 2016
Total Posts : 232
   Posted 11/8/2017 7:33 PM (GMT -6)   
you deserve it after being on prednisone so long!!
Thanks

T
diagnosed proctitis April 2016 s/p a c diff infection age 53
very mild proctitis 5cm-20cm per sig scope in December 2016
sig scope Oct ’17 now w/left side UC - 1st 50cm normal due to Rowasa new inflammation 50-70cm -
currently on Rowasa enema in Pm, prednisone taper 5mg per week, balsalazide 3/ 3x day cannot tolerate Lialda or probiotics
past meds- cortifoam, canasa, rowasa,

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16285
   Posted 11/10/2017 2:45 PM (GMT -6)   
Much positive energy to you! I hope you stay healthy for a very long time.
Co-moderator: Ulcerative Colitis
Currently: no meds. 6/15 Step One J-pouch Surgery Complete! 9/15 Step Two Complete! 11/15 Step 3 Complete!

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish.
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