Jpouch vs bag surgery limbo

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NeedUChelp
Regular Member


Date Joined Oct 2017
Total Posts : 46
   Posted 11/8/2017 5:28 PM (GMT -7)   
As some of you know with my recent posts, surgery is the next step for me in this bad flare of mine with no response to any other treatments and no access to a majority of medication because it will conflict with my auto immune hep. I've basically been pointed in the direction of a jpouch automatically, but some connections I've made online with fellow UC/Crohnies have shared the whole "the bag isn't even that bad, I am sticking with it for now" POV. With my huge fears of surgery, I could see myself sticking with the bag to avoid more surgeries/ recovery time as long as I was happy with myself accepting the bag as my new friend on my body(with therapy and some self love, I could definitely see it not being the end of the world!). My question is, say I opt for Jpouch- (mine would be 3-step) and I find my life enjoyable enough after the 1st step with my end ileostomy, Am I able to just stop there? Or if I want to decide on making it permanent, does it require another surgery? This girl online told me she was just "stopping there" but the whole "temporary" word throws me off? Thanks in advance for feedback and answers smile

Plucky
Regular Member


Date Joined Jun 2013
Total Posts : 344
   Posted 11/8/2017 6:14 PM (GMT -7)   
I was told that eventually you will require a second surgery, either to continue with the j-pouch or to remove the rectum--but I'm sure some people have stopped at one surgery.
I had my colectomy 3 weeks ago and I'm pretty sure I'm sticking with the bag.
37yr female, dx UC '04, dx changed Crohn's Colitis '17
Currently: Total Colectomy Oct. 2017!
Previously used: Remicade, Humira, Stelara, Imuran, 6MP, Apriso, Asacol, Lialda, Delzicol, Pentasa, Cortenema, Cortifoam, Rowasa, Canasa, Entocort, Uceris, Uceris foam, Prednisone
I'm Gluten-free. Supps: VSL#3, Cal/Mag, Vit D, Krill oil, EZFE

NeedUChelp
Regular Member


Date Joined Oct 2017
Total Posts : 46
   Posted 11/8/2017 6:18 PM (GMT -7)   
Okay interesting yea probably to remove rectum and sew closed your bottom. I'm trying to put off any surgeries I don't need and just focused on feeling better so if that means sticking with the bag and learning to adapt and love myself that way so be it! What are your deciding factors right now leaning towards sticking with the bag?

Plucky said...
I was told that eventually you will require a second surgery, either to continue with the j-pouch or to remove the rectum--but I'm sure some people have stopped at one surgery.
I had my colectomy 3 weeks ago and I'm pretty sure I'm sticking with the bag.

Bull101
Regular Member


Date Joined Feb 2015
Total Posts : 448
   Posted 11/9/2017 7:10 AM (GMT -7)   
I've had some issues with my JPouch but I'd still go for the jpouch every time over a bag.

2 step surgery won't allow you to stop (or you won't want to) since this is a loop ileo. 3 step you get a end ileo which is the same as permanent ileo in the first step, but you need a 2nd surgery to remove the rectum and sow it shut.

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 10822
   Posted 11/9/2017 8:07 AM (GMT -7)   
I would familiarize yourself with the terminology and try to use them. An ostomy, an appliance, a j-pouch versus and end-ileo.

With a 3-step procedure, you do get to tryout an ostomy and see whether it might work for you. After step-1, you have what can become a permanent end-ileo, should you decide you do not want to proceed. Yes, you would need to get your rectum removed eventually, and have them give you a barbie-butt if you wanted to keep an end-ileo indefinitely.

There's pro's and con's to everything.

With an end-ileo, you are dependent on ostomy supplies and changing them on a regular basis. Getting the right fit wafers, appliance, and everything needed is key. There is a trial-and-error process. You can swim with an ostomy and do pretty much anything you need. You can get slings to hold the pouch and it can be invisible under most clothing. Ostomies need to be emptied and the frequency can vary based on what you eat, it is easy and quick to empty them in a public restroom. Ostomies don't completely preclude you from getting another surgery, sometimes the stoma needs adjustment (might narrow over time etc.). Blockages can be an issue with an ostomy. You want to chew your foods well. You need to be comfortable with your body image with an ostomy, often younger patients who are dating and more concerned with body image choose the j-pouch. Older patients are less bothered by the prospect.

With a j-pouch, you do not need any supplies. Just sit on the toilet and poop like you do not, sans the urgency and pain. Nobody would know you have a j-pouch as it is internal and invisible (other then a few small scars, and hey they're cool right?). An ideal outcome, a j-pouch involves 4-6 bms a day without an urgency that are quick and equally spaced throughout the day. Some do get inflammation of the pouch, a pouchitis, as either an occasional annoyance or a chronic issue. When chronic pouchitis you have to go back on UC meds. It's better than having a UC by a wide margin, but an annoyance to need them again. If you get chronic pouchitis then you truly have crohn's disease as UC by definition cannot occur within the small intestine. We're never 100% sure we do not have crohn's.

I wouldn't choose something because you will have less surgeries. I would choose whatever best suits your needs and lifestyle. I know you are scared of the prospect of 1 surgery never mind 3.

If you are curious and want to know more, there are also some good blogs out there that really help you get a handle on what the process is like -

Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

Urgency Roused "Oh the places I've pooed from culverts to shady bathrooms" the memoirs of a UC patient. Run, don't walk, to you local bookstore...

Post Edited (iPoop) : 11/9/2017 8:12:15 AM (GMT-7)


momto2boys
Veteran Member


Date Joined Jun 2013
Total Posts : 1856
   Posted 11/9/2017 10:21 AM (GMT -7)   
Another thing to consider is that with the end-ileo, skin irritation around the stoma site. My grandmother had an end-ileo for Crohn's and she had chronic rashes for the last 8 years of her life from old, fragile, sensitive skin (this started 6 years after she had the surgery). To be fair, she was pretty old and was blind in one eye at this point as well, so she may not have been keeping the area as clean as a younger person would, but it really bothered her. I think she was still happier with the surgery than not, a j-pouch was never an option for her.
42 yrs old diagnosed with proctosigmoiditis 6/13/13
meds- 2 Lialda + sfRowasa every other night- supplements: probiotics (1 VSL3 cap, 1 culturelle and 1 reuteri) 1 gram krill Oil, 1TBSP p. seed powder, 2 g curcumin. Allegra for seasonal allergies as needed. Allergic to sulfites. Currently gluten/dairy free (except yogurt) and eating lots of RS.

NeedUChelp
Regular Member


Date Joined Oct 2017
Total Posts : 46
   Posted 11/9/2017 2:31 PM (GMT -7)   
All good advice thank you. And definitely will make my decision based off of my experience after the first surgery, I will only choose to "settle" with the bag if I feel I am happy definitely. Although I can not say for certain because I haven't experienced it yet, I am not TOO concerned about the self esteem aspect of it if I just go with the bag, I've been in the same relationship for many years and my
Boyfriend is supportive of me doing whatever I want to do, and that's the only person other than myself that I really care about's opinion! Now my question is, for Barbie butt- why is this necessary? My primary care doctor this morning said some people don't need theirs sewn shut? Does it have to be or what is the case that it needs to be? I'm fine with mine not functioning and also not having to be closed up

iPoop said...
I would familiarize yourself with the terminology and try to use them. An ostomy, an appliance, a j-pouch versus and end-ileo.

With a 3-step procedure, you do get to tryout an ostomy and see whether it might work for you. After step-1, you have what can become a permanent end-ileo, should you decide you do not want to proceed. Yes, you would need to get your rectum removed eventually, and have them give you a barbie-butt if you wanted to keep an end-ileo indefinitely.

There's pro's and con's to everything.

With an end-ileo, you are dependent on ostomy supplies and changing them on a regular basis. Getting the right fit wafers, appliance, and everything needed is key. There is a trial-and-error process. You can swim with an ostomy and do pretty much anything you need. You can get slings to hold the pouch and it can be invisible under most clothing. Ostomies need to be emptied and the frequency can vary based on what you eat, it is easy and quick to empty them in a public restroom. Ostomies don't completely preclude you from getting another surgery, sometimes the stoma needs adjustment (might narrow over time etc.). Blockages can be an issue with an ostomy. You want to chew your foods well. You need to be comfortable with your body image with an ostomy, often younger patients who are dating and more concerned with body image choose the j-pouch. Older patients are less bothered by the prospect.

With a j-pouch, you do not need any supplies. Just sit on the toilet and poop like you do not, sans the urgency and pain. Nobody would know you have a j-pouch as it is internal and invisible (other then a few small scars, and hey they're cool right?). An ideal outcome, a j-pouch involves 4-6 bms a day without an urgency that are quick and equally spaced throughout the day. Some do get inflammation of the pouch, a pouchitis, as either an occasional annoyance or a chronic issue. When chronic pouchitis you have to go back on UC meds. It's better than having a UC by a wide margin, but an annoyance to need them again. If you get chronic pouchitis then you truly have crohn's disease as UC by definition cannot occur within the small intestine. We're never 100% sure we do not have crohn's.

I wouldn't choose something because you will have less surgeries. I would choose whatever best suits your needs and lifestyle. I know you are scared of the prospect of 1 surgery never mind 3.

If you are curious and want to know more, there are also some good blogs out there that really help you get a handle on what the process is like -

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 10822
   Posted 11/9/2017 3:02 PM (GMT -7)   
While you have a rectum remianing, you still have UC. After an end-ileo surgery, the remaining rectum will continue to pass blood and mucus. You will have to sit down on the toilet to pass it. Sometimes the inflammation lingering within the rectum can be bad enough to warrant use of Canasa suppositories.
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

Urgency Roused "Oh the places I've pooed from culverts to shady bathrooms" the memoirs of a UC patient. Run, don't walk, to you local bookstore...

NeedUChelp
Regular Member


Date Joined Oct 2017
Total Posts : 46
   Posted 11/9/2017 3:07 PM (GMT -7)   
So does that mean that "Barbie butt" operation isn't always necessary even if you do need rectum removed ? Of course I will need to ask my surgeon specifically with my case, but some people I read don't need theirs Sewn up and I'm just wondering what the actual seeing of the anus depends on

iPoop said...
While you have a rectum remianing, you still have UC. After an end-ileo surgery, the remaining rectum will continue to pass blood and mucus. You will have to sit down on the toilet to pass it. Sometimes the inflammation lingering within the rectum can be bad enough to warrant use of Canasa suppositories.

UCwhat?
Veteran Member


Date Joined Dec 2012
Total Posts : 1037
   Posted 11/9/2017 4:30 PM (GMT -7)   
The sewing up of the anus is usually dependent partly on the thoughts and typical practice of your surgeon and whether or not you want to go ahead and just take care of everything, or leave that part in-tact and run the risk of having active enough UC left there that you end up needing medication or more surgery to have it removed and sewn up. It is hard to say for sure how much trouble the left behind bits will give you if you choose to go that way.
6/12:DX Mild Ulcerative Proctitis:quick remission w/1 Canasa nightly
MAJOR Flare began late 11/12
By 2/4/13, UC Severe into transverse colon
Prednisone refractory,little to no relief from enemas or Remicade
3/13/13:Proctocolectomy w/end ileostomy;pathology showed Severe Chronic UC throughout colon
2/26/15:Perineal Proctectomy (all sewn up!)

NeedUChelp
Regular Member


Date Joined Oct 2017
Total Posts : 46
   Posted 11/9/2017 5:06 PM (GMT -7)   
Got it! So basically ultimately will have to wait and see what surgeon says. Going to try to get through first surgery and see how I feel and adjust to the ostomy situation. Give it some time and take it from there is the plan
UCwhat? said...
The sewing up of the anus is usually dependent partly on the thoughts and typical practice of your surgeon and whether or not you want to go ahead and just take care of everything, or leave that part in-tact and run the risk of having active enough UC left there that you end up needing medication or more surgery to have it removed and sewn up. It is hard to say for sure how much trouble the left behind bits will give you if you choose to go that way.

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 15235
   Posted 11/9/2017 8:00 PM (GMT -7)   
I think generally people close up the back because if you leave it open, you will be passing stuff on a daily basis. If I had the perm ileo, I wouldn't want to worry about pushing anything out the back. Just seems like an unnecessary hassle, but I don't know. I guess it is easier to leave it intact, I've heard the closure is difficult, but I've heard some people get through it pretty easily. Actually if you were 100% sure you wanted a perm ileo, you could do it in one surgery and be done. There are some benefits to the ileo. No chance of pouchitis or cuffitis, no problems with pouch issues, no need to worry about incontinence or leaking, you retain the most of your intestines, causing slower transit and allowing for absorption of maximum fluids. It's actually sort of the no-nonsense solution. On the other hand, you need supplies for the rest of your life, and that comes with it's own challenges. The ostomy isn't hard to care for on the other hand, it's pretty easy and quick. I had some sexy ostomy wraps that I got from my supplier, free through my insurance, and I felt pretty confident, even while naked wearing those. Ultimately I didn't want to worry about supplies and I moved forward with the surgeries. I had 3 steps and after the first, things were pretty great for me. I learned to master my pouch quickly. I tried tons of products, i felt like I was part of a secret society. I was having fun with it as much as I could. It didn't really impact my life majorly, but it's perspective. You can be happy and accept yourself, get past it, or you can focus on it all the time, feel bad about yourself and blame it for all your problems. It sounds like you're pretty comfortable in your own skin and you will be okay whatever you decide. You can't really leave things the way they are after step 1 in a 3 step. I don't know how long you can leave it, my surgeon didn't rush me or anything, but most people I know had inflammation in the rectum. Some had it so badly that they were miserably uncomfortable, reminiscent of living with uncontrolled UC. Regardless of whether you have proctitis, you're definitely stuck with a couple trips to pass whatever forms in your rectum daily. With proctitis, it could be much more frequent than 2x and it could be bloody, urgent and cause tenesmus. Not how you want to live after surgery.

We have a member who had the rectum removed, but the surgeon left part of the anus and didn't sew her shut. She's struggled with some inflammation in that small piece. It's really not worth having it and having to have it checked out, or having to go to the toilet and sit there and push a couple times a day. We also have members who live with loop ileos for long periods, and they do well. I hated my loop personally. Mine was poorly functioning.
Co-moderator: Ulcerative Colitis
Currently: no meds. 6/15 Step One J-pouch Surgery Complete! 9/15 Step Two Complete! 11/15 Step 3 Complete!

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish.

Post Edited (notsosicklygirl) : 11/9/2017 8:07:00 PM (GMT-7)


NeedUChelp
Regular Member


Date Joined Oct 2017
Total Posts : 46
   Posted 11/9/2017 9:47 PM (GMT -7)   
Yeah I totally get the whole idea of why have it open if you don't have a purpose of having the hole there in the first place, it's just a really unpleasant thing to think about having your butthole sewn shut? Maybe it isn't as utterly uncomfortable as the words make it sound, but for me I was just like I really don't want anyone touching that area to begin with, so the thought of having it stitched there sounds just awful! All questions for my first consult coming up the 30th I guess to get a realistic idea of what I could do. I think for now I'm going to go about it as a 3-step and then depending on how I adjust with step 1 and living with the temporary end ileostomy, I will decide if I'm satisfied, so having it in one procedure is probably not likely just because I'm not sure of which route I want to take yet until I live with the ostomy first. My perspective will come once I'm actually going through it, and it I'm sure the coping and adjusting won't be as simple as I hope for, but I am trying to definitely be positive about it. The way I see things right now, my self esteem is lowest when I'm flaring, prisoner to my home, not interacting with society. If I have a bag, and I can go out and be abnormal person for the most part, that's what it's really all about.

notsosicklygirl said...
I think generally people close up the back because if you leave it open, you will be passing stuff on a daily basis. If I had the perm ileo, I wouldn't want to worry about pushing anything out the back. Just seems like an unnecessary hassle, but I don't know. I guess it is easier to leave it intact, I've heard the closure is difficult, but I've heard some people get through it pretty easily. Actually if you were 100% sure you wanted a perm ileo, you could do it in one surgery and be done. There are some benefits to the ileo. No chance of pouchitis or cuffitis, no problems with pouch issues, no need to worry about incontinence or leaking, you retain the most of your intestines, causing slower transit and allowing for absorption of maximum fluids. It's actually sort of the no-nonsense solution. On the other hand, you need supplies for the rest of your life, and that comes with it's own challenges. The ostomy isn't hard to care for on the other hand, it's pretty easy and quick. I had some sexy ostomy wraps that I got from my supplier, free through my insurance, and I felt pretty confident, even while naked wearing those. Ultimately I didn't want to worry about supplies and I moved forward with the surgeries. I had 3 steps and after the first, things were pretty great for me. I learned to master my pouch quickly. I tried tons of products, i felt like I was part of a secret society. I was having fun with it as much as I could. It didn't really impact my life majorly, but it's perspective. You can be happy and accept yourself, get past it, or you can focus on it all the time, feel bad about yourself and blame it for all your problems. It sounds like you're pretty comfortable in your own skin and you will be okay whatever you decide. You can't really leave things the way they are after step 1 in a 3 step. I don't know how long you can leave it, my surgeon didn't rush me or anything, but most people I know had inflammation in the rectum. Some had it so badly that they were miserably uncomfortable, reminiscent of living with uncontrolled UC. Regardless of whether you have proctitis, you're definitely stuck with a couple trips to pass whatever forms in your rectum daily. With proctitis, it could be much more frequent than 2x and it could be bloody, urgent and cause tenesmus. Not how you want to live after surgery.

We have a member who had the rectum removed, but the surgeon left part of the anus and didn't sew her shut. She's struggled with some inflammation in that small piece. It's really not worth having it and having to have it checked out, or having to go to the toilet and sit there and push a couple times a day. We also have members who live with loop ileos for long periods, and they do well. I hated my loop personally. Mine was poorly functioning.

NiceCupOfTea
Elite Member


Date Joined Jan 2010
Total Posts : 10015
   Posted 11/10/2017 4:25 AM (GMT -7)   
What's the point of posting the same thread on two boards and then ignoring the replies on the other thread? If you're only gonna reply on one board, then just post on that board, because it's annoying to expend limited energy in typing up a massive reply and then be ignored. (Yes, it was me who typed up the massive reply.)

NeedUChelp
Regular Member


Date Joined Oct 2017
Total Posts : 46
   Posted 11/10/2017 7:55 AM (GMT -7)   
I didn't realize I had posted it on the ostomy page until I couldn't find mine to refer back to on the UC page. I reposted it on here and marked to be notified if I got responses on the other thread and I haven't been notified since Via email. It's nothing personal..I'm not ignoring you

NiceCupOfTea said...
What's the point of posting the same thread on two boards and then ignoring the replies on the other thread? If you're only gonna reply on one board, then just post on that board, because it's annoying to expend limited energy in typing up a massive reply and then be ignored. (Yes, it was me who typed up the massive reply.)

Poppie
Veteran Member


Date Joined Feb 2014
Total Posts : 1956
   Posted 11/10/2017 1:34 PM (GMT -7)   
UCwhat? said...
The sewing up of the anus is usually dependent partly on the thoughts and typical practice of your surgeon and whether or not you want to go ahead and just take care of everything, or leave that part in-tact and run the risk of having active enough UC left there that you end up needing medication or more surgery to have it removed and sewn up. It is hard to say for sure how much trouble the left behind bits will give you if you choose to go that way.


Sorry to jump in!

I have a question. Does Barbie bottom mean that the anus and the bum cheeks have been stitched together? Or does it mean that just the anus has been stitched up.

Thanks.
Samantha
Stopped smoking Jan 2013. Diagnosed Left sided UC, 8th Feb 2014.
Gluten, Dairy, Sulfite, Salicylate, and Histamine intolerant.
Home FMT treatment in July 2016 to ward off reoccurrence of C DIfficile.
Failed Pentasa, Azathioprine and finally Methotextrate due to allergies/intolerance. Taking Humira. Have finally come off Prednisone Yay!!!

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 15235
   Posted 11/10/2017 1:40 PM (GMT -7)   
Poppie said...
UCwhat? said...
The sewing up of the anus is usually dependent partly on the thoughts and typical practice of your surgeon and whether or not you want to go ahead and just take care of everything, or leave that part in-tact and run the risk of having active enough UC left there that you end up needing medication or more surgery to have it removed and sewn up. It is hard to say for sure how much trouble the left behind bits will give you if you choose to go that way.


Sorry to jump in!

I have a question. Does Barbie bottom mean that the anus and the bum cheeks have been stitched together? Or does it mean that just the anus has been stitched up.

Thanks.


I want to know what it looks like too. I picture barbie's butt, but i would imagine it looks normal with no opening. You would probably really have to bend and spread to tell it's different?
Co-moderator: Ulcerative Colitis
Currently: no meds. 6/15 Step One J-pouch Surgery Complete! 9/15 Step Two Complete! 11/15 Step 3 Complete!

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish.

NeedUChelp
Regular Member


Date Joined Oct 2017
Total Posts : 46
   Posted 11/10/2017 1:54 PM (GMT -7)   
From what I do know (which is not a lot) it is not your actual cheeks stitched together, just the hole is stitched up somehow. I wish there was more info out there on this! I was hoping some in this forum had it but otherwise I have a surgery consultation in December so I will definitely inform you guys on what I learn of it!


notsosicklygirl said...
Poppie said...
UCwhat? said...
The sewing up of the anus is usually dependent partly on the thoughts and typical practice of your surgeon and whether or not you want to go ahead and just take care of everything, or leave that part in-tact and run the risk of having active enough UC left there that you end up needing medication or more surgery to have it removed and sewn up. It is hard to say for sure how much trouble the left behind bits will give you if you choose to go that way.


Sorry to jump in!

I have a question. Does Barbie bottom mean that the anus and the bum cheeks have been stitched together? Or does it mean that just the anus has been stitched up.

Thanks.


I want to know what it looks like too. I picture barbie's butt, but i would imagine it looks normal with no opening. You would probably really have to bend and spread to tell it's different?

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 10822
   Posted 11/10/2017 2:07 PM (GMT -7)   
I did some searching too. Here's one post from healingwell:

ep49 said...
My butt looks almost normal and not like a Barbie butt at all. It's just not as deep as it used to be (the crack ... sorry if that is TMI) but I think we all want to know as much as we can if we are facing these problems and surgeries. I hope this has helped.


Source: /www.healingwell.com/community/default.aspx?f=33&m=3166479
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

Urgency Roused "Oh the places I've pooed from culverts to shady bathrooms" the memoirs of a UC patient. Run, don't walk, to you local bookstore...

NiceCupOfTea
Elite Member


Date Joined Jan 2010
Total Posts : 10015
   Posted 11/10/2017 2:10 PM (GMT -7)   
No, the butt cheeks aren't sewn together, it's just the hole which is sewn up. I intend on getting it done myself if/when I go back to having an ileostomy. Even keeping the anus, let alone the rectum, can be problematic, as Christine1946's experiences have shown. Nope. If I have a permanent stoma, then I'm done with the rectum and anus once and for all.

PS: I replied on the Ostomy board again >_>
Dx Crohn's in June 2000. (Yay skull)
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)

Post Edited (NiceCupOfTea) : 11/10/2017 2:21:19 PM (GMT-7)


Poppie
Veteran Member


Date Joined Feb 2014
Total Posts : 1956
   Posted 11/10/2017 4:07 PM (GMT -7)   
That is a good link iPoop posted and I think If I had to make a decision on what to do I would wait to see if I suffered from discharge/aching from the anus before making the decision to have the rectum removed and the anus sewn up, and from what I can gather not everyone goes ahead and has this done.

Also, my reasoning is based on the fact that just getting through surgery and ultimately having a stoma must be hard enough, it must take time to adjust to that I would have thought, and one can always have this other surgery at a later date.

One thing I didn't quite understand from the link...

I understand that the rectum is removed, but is the anus removed and the hole stitched up, OR is the anus just stitched up.
Samantha
Stopped smoking Jan 2013. Diagnosed Left sided UC, 8th Feb 2014.
Gluten, Dairy, Sulfite, Salicylate, and Histamine intolerant.
Home FMT treatment in July 2016 to ward off reoccurrence of C DIfficile.
Failed Pentasa, Azathioprine and finally Methotextrate due to allergies/intolerance. Taking Humira. Have finally come off Prednisone Yay!!!
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