Trying to get better with SCD, questions

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peter c
New Member


Date Joined Nov 2017
Total Posts : 3
   Posted 11/9/2017 9:02 AM (GMT -7)   
Hello, this the first time i post here so am mot even 100% sure if am
On the right place of this site! I have Ucolitis for about 11-12 years now i used to have symptoms about 1-3 days per week until 2 months ago when i went into a “flare up” which made my symptoms daily, with my doc advise i increased my pills and all and while desperate i was searching online for solutions, i found this diet, specific carbohydrate diet which after i bought the book and read it, it made alot of sense, so i wanted to try it and commit 100% on it..but there is information i need to know that i cant find online or in the book, so my questions are first of all if anyone uses that diet and what are their results? And i been ln that diet very strict for 1 month and something now, i can really see the difference, but am still not well enough, when i used t get a bad day, symptoms would last 4-6 hours, now they last 1-3 hours top, and its not as often as it was, but still what i read on reviews or feedback om the diet is that alot of people dont even have bad days after the diet, so my other question is, how long after you start the diet you see changes and what kind kf changes?
Another question is i eat only scd allowed foods, but i eat different food for breakfast/lunch/dinner so when i get a bad day, i dont know why it happened, would it be better to have the same food for lunch and dinner or it wouldnt matter?
And what about portions? If i eat less do i digest easier?


The most jmportant reason am here is to basically get feedback on other people who used the diet and find more information that i can only find from feedback

Also now that i am on the diet, i necer ever ever have a bad night, i used to get symptoms at night too, after the diet my nights are really chill with no pain no random toilet calls often nothing!

Thanks alot in advance

Jayhawk85
Regular Member


Date Joined Jun 2017
Total Posts : 37
   Posted 11/9/2017 10:16 AM (GMT -7)   
I followed the SCD diet strictly for about 3 months. I had great results with it, until I didn't. The diet makes sense and has a lot of proponents but unfortunately for me, it wasn't the be all, end all.

That said, I still follow it fairly closely as I think it's just generally a healthy way to eat and it trains your body to burn fat instead of carbs which is how we initially evolved.

I found that keeping a food journal (write down what you eat and how you feel) can be a great way to track and see patterns or triggers. I still fill out my food/poop journal daily even 7 months after initially starting the diet.

As for portions, it is often recommended to eat frequent, small meals with IBD to help digestion.
M, 32, DX Sept 2009
Sulfasalazine worked for 6 years. Current flare for 2 years.
4g Sulfasalazine, 1g Canasa, 65mg iron supplement
Paleo/SCD based diet
Several months into Humira. So far so good.

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 10822
   Posted 11/9/2017 12:57 PM (GMT -7)   
You ask a lot of very specific questions that I feel only your own experimentation will answer. There's just so much person-to-person variation and therefore no hard and fast rules that apply to everyone.

I never had any luck with diet modification, some have had partial responses, and some have full responses. You might just be a partial responder and cannot rely entirely on SCD. A possibility...
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

Urgency Roused "Oh the places I've pooed from culverts to shady bathrooms" the memoirs of a UC patient. Run, don't walk, to you local bookstore...

peter c
New Member


Date Joined Nov 2017
Total Posts : 3
   Posted 11/9/2017 6:12 PM (GMT -7)   
Thank you both for your replies!

TroubledTurds
Veteran Member


Date Joined Jan 2004
Total Posts : 7997
   Posted 11/9/2017 7:16 PM (GMT -7)   
hey there peter c - welcome -

are you currently taking any UC meds ?
dx'd with pancolitis 12/21/03
current supplements:vit D, cal/mag, Psyllium Seed powder/Heather's Acacia fiber/ L-Glutamine/Hemp powder slurry 1x/week - grain free/paleoish diet that includes 100% grass fed beef, raw goat milk, & local organic free range eggs, lots of all natural well water, exercise, sleep as much as possible & enjoy this great life that God has blessed me with !

FSLondon
Regular Member


Date Joined Apr 2015
Total Posts : 348
   Posted 11/10/2017 5:13 AM (GMT -7)   
I've been on SCD for 2.5 years now. For me, I find it helps with symptom management, but is not a panacea. I saw immediate improvement within a week, but after that would say progress toward where I am now was very slow, with some bad patches for no clear reason (particularly around the three and six month mark).

I have not stopped taking my medication and would not view SCD as an alternative to meds, rather as something that helped get me into a more solid and stable remission. My last flare was 5 years ago, but before starting SCD I would often feel I was on the verge of another flare, whereas I now feel like I am clearly in remission (which was confirmed by my most recent calprotectin test).

peter c
New Member


Date Joined Nov 2017
Total Posts : 3
   Posted 11/10/2017 9:32 AM (GMT -7)   
Thank you for sharing your experience FSlondon, i will keep that ind mind for sure!

TroubledTurds hi there! Yes am currently taking 4 salofalk after lunch( am not 100% if i spell it correct since i am at work now i cant look at the box but if needed i can check later and correct it) and 4 before i go to sleep, i been taking 2 lunch 2 night for afew years then we went up to 3 and 3, after my last flare up that was 2 months ago or abit less we made it 4-4 , before flare up i was much better, i feel really stupid that i didnt appreciate how good i was( wasnt perfect but was stable) and i didnt take advantage of that and try new things like diet , work out , and all those small things that might help, now everything feels harder to do, my doctor told me to also use the same brand but in (i dont know the nane, not pills but those you put on the behind :p ) sorry for my terrible english! Intried those few weeks before, somwtimes they really help, sometimes they make me feel unstable, so i am really uncomfortable using them cos i dont know if they will help or make me unstable for the next day. But i took my decition and i will start using them 3-4 nights per week and see if it helps..

Sorry for the long reply
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