Last night I was going to go to the ER, but they don't have anyone to do ultrasound of kidney and bladder in the middle of the night. I had a fever about
100, kidneys ached, tightness in chest and just felt so bad. I toughed it out and still I have a slight fever 99.4, I run low with body temp, so I feel like my face and neck are hot and the rest of me is chilled and cold to touch.
My pattern on xeljanz is I take it at 7am and 7pm, like clock work. about
the 9th hour being on it, I'm feeling all achy, sick, chills, fever and kidney pain. My head start to pulse and before I was having a rapid pulse.
It Happens at 4 in the afternoon and 4 in the morning, like clock work. It's getting worse. I'v been on it for 15 days now. Also, I know it's dehydrating me! I'm so dang thirsty all the time. I only drink water! No coffee or tea. I'm taking in BOOST now.
I'm stopping it Xeljanz.
I don't have UTI the doctor said, there is blood, but no bacteria. But I felt better on Bactrim after the second day. It took away the pain in my uretha. Do I get back on it?
I'm so sick and I have people coming up today that I have to work for, I have a partner that can cover for me and I think I may have her do that. My fever is still 99.5 I think I will try Tylenol, but like I'm afraid of hurting my kidneys!!!
I wrote my doc on day 9 of being on this medication , explaining all these symptoms, he told the nurse, to tell me, colds are going around. I know the difference in my body between and cold and side effects. I've been on every biologic out there!
Then they wrote back a few days later and listed all the side effects of Xeljans and they matched what I was having. I'm like no sh$t dude, I know.
They want me to do a stool test. I will. I'm getting an ultrasound of kidneys and bladder, probably next week.
I said I want a doc appt ASAP (even though he is 3 hours away) I can't do a Video chat until January!! HE is book until then.
Xeljanz is killing me slowly. This is no joke, my kidneys hurt!!! Fever, chills, shortness of breathe.
Just telling you all, it was not for me!!!
UC since '05, now in '15 Mayo Clinic say Chrons/colitis and DX with chronic Lyme's in '10. No biologics work. Now on Stelara , not working. Now trying Chinese herbs and love them so far!Took rafaximin for SIBO, worked awesome!