First time chat

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Nov 2017
Total Posts : 1
   Posted 11/11/2017 10:34 AM (GMT -6)   
I was diagnosed nearly two years ago with UC. Previously always been effected by certain foods becoming constipated and gas/bloating. First major symptoms where mucous & bleeding GP sent me for a colonoscopy and I was diagnosed with UC. The specialist that I was referred too didn't really explain what the disease was or that it was auto immune or that it was not something that you could not cure. I kept asking about diet and she said no don't worry about that.

I was given Pentasa suppositories (Mesalazine 1grm) which I took for a couple of months then gradually cut them down. But when i stopped medication the symptoms returned. Finally my specialist said try diet as well and she said try the FODMAP diet.

I've also been to Nautropath, Chinese herbalist and a dietitian. But still the symptoms flare up without some form of regular medication. I don't get diarrhoea more constipation so I'm a lot luckier than others, I just hate the thought of medication for the rest of my life. My backside gets rather sensitive and itchy as well and bleeds from wiping with BM.

I've found staying away from Gluten, Lactose, Onion & Garlic, certain vegetables and a lot of fruits especially Apples, pears and stone fruit really helpful. I don't get stomach pain just the gas and bloating which causes the constipation and I only avoid coffee during flare ups.

My Natropath has given me strong Turmeric tablets which I take morning and night I hoping this will help me wean off my meds to less often. I also take a ultra Flora Immune health (pro-biotic) every night and physilium husk every morning on porridge. I've currently managed to cope with a Pentasa suppository every third day.

I've also changed GP to a great doctor in Ballajura who gives me regular blood tests and support, my thyroid is currently showing antibodies around it but at the moment its still functioning ok.
I've had a very stressful time the last two years with my Mother being very ill, so i suppose the stress levels wouldn't have helped.

Does anyone have any advice, its just so nice to be able to speak to someone else with the same problem in varying degrees of course, I don't know anyone with UC.

Post Edited (CEMac) : 11/11/2017 8:45:55 AM (GMT-7)

Forum Moderator

Date Joined Aug 2012
Total Posts : 12783
   Posted 11/11/2017 10:54 AM (GMT -6)   
Welcome to the forum.

"But when i stopped medication the symptoms returned."

Easy solution, don't ever stop your meds as clearly they work for you!
Moderator Ulcerative Colitis
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

I believe that my anus is a portal from Hades as only evil comes out of it.

Elite Member

Date Joined May 2003
Total Posts : 30704
   Posted 11/11/2017 10:55 AM (GMT -6)   
Welcome to the forum.

What is the extent location of your UC?

My suggestion is to see a GI or have your GP get you on the first-line meds of 5ASA oral and rectal (retention enemas).

Is your mom doing Ok at this point?

*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma); Effexor XR 75mg (depression); Rosuvastatin 10mg (cholesterol); Telemesartin 80mg / Amlodipine 5mg (BP)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Genuine Health Advanced Gut Health 15 billion @ bedtime)
~Metamucil capsules 6 @ 2x daily with meals; Vitamin D 4500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
"TREAT (FROM)BOTH ENDS" worth it !!

Veteran Member

Date Joined Feb 2014
Total Posts : 2140
   Posted 11/11/2017 2:49 PM (GMT -6)   
I will often read of folk stopping their Meds in the hope that something more natural will work for them. Sometimes it does, but they are in the minority and clearly from what you have stated you need to be on medication.

All the time you are withholding medication your UC could be getting worse, I am not saying that to frighten you, it is just a fact.
Stopped smoking Jan 2013. Diagnosed Left sided UC, 8th Feb 2014.
Gluten, Dairy, Sulfite, Salicylate, and Histamine intolerant.
Home FMT treatment in July 2016 to ward off reoccurrence of C DIfficile.
Failed Pentasa, Azathioprine and finally Methotextrate due to allergies/intolerance. Taking Humira. Have finally come off Prednisone Yay!!!

Regular Member

Date Joined Jul 2014
Total Posts : 348
   Posted 11/12/2017 3:55 AM (GMT -6)   
I think you need to reframe your thinking from the blanket "all medications are bad", all medications are different and some are fairly mild with a favorable side effect profile (mesalazine) compared to other stronger medications (prednisone etc). Your goal is to take the less serious medications such as mesalazine religiously so that the need for stronger medication is reduced. You can also add other natural therapies (such as probiotics) to compliment this and hopefully using that approach you can avoid, or use the stronger medications more sparingly over the years.
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, July 22, 2018 9:51 AM (GMT -6)
There are a total of 2,984,179 posts in 327,193 threads.
View Active Threads

Who's Online
This forum has 161978 registered members. Please welcome our newest member, moleUC.
340 Guest(s), 3 Registered Member(s) are currently online.  Details
Sr Sailor, astroman, PDXtransplant