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CBD Oil Actually Working?!

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Ulcerative Colitis
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Posted 12/3/2017 9:53 AM (GMT -6)
If you’re at all interested...I thought I’d share that I’ve been taking CBD Oil for the past week and my bleeding has stopped and I’m actually producing somewhat formed stools! I have been flaring since March and just had an EGD and a colonoscopy the week of Thanksgiving. My doctor wants me to start Humira but I wanted to see if anything else could stop my flare. I’ve been passing large amounts of blood with loose stools for months. I tried a week of Uceris before my colonoscopy which seemed to slowly help but I was getting quite a few side effects from it. Last Sunday I started buying CBD juice shots from a local juice bar (I live in Oregon so it’s readily available everywhere). After a few days I noticed fewer rumblings in my gut and less and less blood. I went ahead and bought a bottle of CBD Hemp extract in olive oil this Friday and since taking it in a more pure form my blood has stopped completely!! I’m super cautious not not get overly excited but this is the first I’ve felt this well in months!

I’ve been taking 25 mg of CBD once every day (no THC) and the past two days I’ve taken a half dose early in the morning and the full dose after dinner.

I’m going to begin SCD this week to try to heal my gut mucosa as well. I hope that between these two options I can finally achieve remission. It’s been a depressing past 9 months. I’ve been on the max dose of Lialda (4.2 g), nightly Rowasa enemas and following a GF, DF and Low FODMAP diet with no relief in my symptoms.

I’ll keep everyone updated as I keep taking the CBD. If you have any SCD tips or ideas I’d also love to hear them!!

🙏🏼 Namaste 🙏🏼
Posted 12/3/2017 12:10 PM (GMT -6)
I’ve been wondering about this myself. Following this thread for your updates and the comments of others. I hope you continue to improve!
Posted 12/3/2017 1:11 PM (GMT -6)
That's great news. I tried MJ but never shots of the CBD. Hopefully it continues to keep you healthy.
Posted 12/4/2017 3:10 PM (GMT -6)
Interesting article I posted on my dog forum about CBD oil:


http://www.nydailynews.com/life-style/marijuana-edibles-dogs-company-thinks-future-article-1.3676518
Posted 12/4/2017 4:35 PM (GMT -6)
Just an update! Yesterday I ate a bit overzealously yesterday because I’m starting SCD today and wanted to indulge 🤪. I ate some spicy fish tacos and some low lactose frozen yogurt. Normally this would send me into a tailspin but I took a double dose of CBD yesterday as a safeguard and today no blood and formed stools! I’m still taking my Lialda and Rowasa as well. My fingers are crossed for continued improvement!!
Posted 12/7/2017 8:59 PM (GMT -6)
are you still taking CBD? I tried some gummies which i think helped but i stopped. Should do another test run.
Posted 12/11/2017 8:23 AM (GMT -6)
Max_Power Yes! No blood still! I’m taking 50mg total daily. I started SCD a week ago and so far it has made a small difference in gut rumbles. Before I started SCD (taking CBD oil only) my stools were solid. Now they are kind of semi solid so I’m a bit frustrated. I was gluten and dairy free before starting SCD. I’m going to give it another week or two and see how I feel. But I absolutely believe that the CBD has stopped my bleeding!
Posted 12/12/2017 3:34 PM (GMT -6)
which brand do you take? i should get some more. thanks for the update! glad you are doing well.
Posted 12/12/2017 6:01 PM (GMT -6)
Most Cannabis has been bred to be extremely high in THC, and extremely low in CBD. Strains from decades ago had a much more balanced ratio. The effects of THC, and CBD, are generally diametrically opposed. Recently there has developed a new syndrome, called Cannabis Hyperemesis. It is my theory that these unnaturally high THC strains are the cause. Stick to the pure CBD stuff.
Posted 12/16/2017 7:31 PM (GMT -6)
That is wonderful news! I'm glad to hear/read about success stories with CBD oil, as it's something I've been toying with trying out as well.

Out of curiousity, have you noticed any kind of side effects from the CBD oil? Other than the improvement you've experienced thus far. :D Have you suffered from urgency and seen an improvement in that aspect from the CBD?
Posted 12/16/2017 10:50 PM (GMT -6)
Hello! To answer Max_Power I’m taking CW Hemp Everyday Plus 25mg twice daily.

When I first started CBD I noticed sleepiness within 30 mins of consumption but now I feel no side effects. I take it in the morning before breakfast and in the evening after dinner. I definitely have noticed an elimination of urgency and bleeding has altogether stopped. I was flaring pretty badly just weeks ago and after a colonoscopy the day before Thanksgiving my DR informed me she wanted me to go on Humira. CBD and the Specific Carbohydrate Diet are my last ditch efforts to avoid Humira. I’m sure it works for some but I’d rather try something natural and try to heal my gut.

I’m still taking my Lialda (4.2 g daily) and a nightly Rowasa enema. However I’m considering cutting the Rowasa back to every other night since I’ve been doing so well. I may start that in a few days. Will keep you all posted but I haven’t felt this well in 9 months. I can actually not worry about an accident for once!!
Posted 12/19/2017 9:47 AM (GMT -6)
Please keep us posted! I just ordered CBD oil for my son from Amazon this past weekend after stumbling upon it in an online CCFA forum. I was disappointed I couldn’t get same day delivery but it will be here today and I plan on giving it to him ASAP. Fingers crossed!
Posted 1/6/2018 8:22 AM (GMT -6)
Hey guys, I can confirm. CBD, THC, and CBG all fight inflammation and very well. Actually, better than the pred, lialda, remicade, or any other drugs they want you to pay out the ass for. Smoke weed, I swear to god it has allowed me to live a normal life once again. People hate hearing it, but it’s true. Marijuana is the answer. Or just CBD extracts. I personally prefer the full relief so I use THC strains that are high in CBD or CBG (actually finding that CBG helps more in my case).
Posted 1/7/2018 9:45 PM (GMT -6)

NotoriousIBD said...
Hello! To answer Max_Power I’m taking CW Hemp Everyday Plus 25mg twice daily.

When I first started CBD I noticed sleepiness within 30 mins of consumption but now I feel no side effects. I take it in the morning before breakfast and in the evening after dinner. I definitely have noticed an elimination of urgency and bleeding has altogether stopped. I was flaring pretty badly just weeks ago and after a colonoscopy the day before Thanksgiving my DR informed me she wanted me to go on Humira. CBD and the Specific Carbohydrate Diet are my last ditch efforts to avoid Humira. I’m sure it works for some but I’d rather try something natural and try to heal my gut.

I’m still taking my Lialda (4.2 g daily) and a nightly Rowasa enema. However I’m considering cutting the Rowasa back to every other night since I’ve been doing so well. I may start that in a few days. Will keep you all posted but I haven’t felt this well in 9 months. I can actually not worry about an accident for once!!

I'm so excited to read about your results! I had a colectomy in October and feel better but still have blood/mucus from what's left of my colon/rectum and I have joint and muscle pain, fatigue, and anxiety (largely due to tsking high-dose prednisone for about a year and now weaning off of it).
I just ordered CW everyday advanced a few days ago and cannot wait to try it! Thanks for sharing.
Posted 5/26/2018 1:48 PM (GMT -6)
Hey notoriousibd, how many % is the CBD oil you are using, and 25 mg, how many drops is that 🤔 I just got ostomy but there is still activity in rectum, which I hope CBD oil can get rid off 😊

Regards, Oliver
Posted 5/26/2018 2:04 PM (GMT -6)
Really good to hear and specifically, THANK YOU for mentioning your dosage (which a lot of people leave out when they discuss this).

Hmm. I'm almost tempted to try some again. Trouble is, where I am you just don't know what you're buying. There's no checks on this kind of thing and I don't like taking stuff with no oversight on what's really in it. I really deeply believe in the healing power of cannabis and its related oils and so on, based on what I've read. It's so sad that this stuff is not properly explored in the mainstream. I think society will grow up in the next few years about this. In the meantime it's not ideal situation really. But really fantastic to hear you are doing well with this!
Posted 5/27/2018 8:34 PM (GMT -6)
I wonder if it is safe to take the CBD oil along with Uceris and Mesalamine? I googled a little and got the impression it might magnify the effect of some drugs?
Posted 5/28/2018 9:17 AM (GMT -6)

kate22 said...
I wonder if it is safe to take the CBD oil along with Uceris and Mesalamine? I googled a little and got the impression it might magnify the effect of some drugs?

its totally safe
Posted 5/28/2018 11:42 AM (GMT -6)
Hello all. As soon as I read this, I took to the internet to find information, and where to buy. I live in TN, so I hoped to find someone I could speak with live. I found someone and they were extremely helpful. They recommended a tincture. (drops under the tongue). They also gave me a 50% off coupon code that does work. I am in no way promoting these guys, and have no skin in the game. They recommended this due to the high concentration. I have not done a ton of price research. Like most, I just want to get better.


Here is what I bought
*removed spam*

i am sure it was not your intent, but this comes off as sales spam

Post Edited By Moderator (notsosicklygirl) : 5/28/2018 3:29:17 PM (GMT-6)

Posted 5/28/2018 1:21 PM (GMT -6)

AdamMac said...
Hello all. As soon as I read this, I took to the internet to find information, and where to buy. I live in TN, so I hoped to find someone I could speak with live. I found someone and they were extremely helpful. They recommended a tincture. (drops under the tongue). They also gave me a 50% off coupon code that does work. I am in no way promoting these guys, and have no skin in the game. They recommended this due to the high concentration. I have not done a ton of price research. Like most, I just want to get better.


Here is what I bought
*link removed*

There is no way I'd spend $100+ on a CBD tincture without seeing a third party lab report that confirms the THC and CBD content.

But you are free to spend your money as you wish.

Post Edited By Moderator (notsosicklygirl) : 5/28/2018 3:28:57 PM (GMT-6)

Posted 5/28/2018 3:05 PM (GMT -6)

dinkydonuts said...

AdamMac said...
Hello all. As soon as I read this, I took to the internet to find information, and where to buy. I live in TN, so I hoped to find someone I could speak with live. I found someone and they were extremely helpful. They recommended a tincture. (drops under the tongue). They also gave me a 50% off coupon code that does work. I am in no way promoting these guys, and have no skin in the game. They recommended this due to the high concentration. I have not done a ton of price research. Like most, I just want to get better.


Here is what I bought
*link removed*

There is no way I'd spend $100+ on a CBD tincture without seeing a third party lab report that confirms the THC and CBD content.

But you are free to spend your money as you wish.

OK, I am brand new to this board and UC. I appreciate you saying that dinkydonuts as I am no expert. This is also my first time buying CBD, plus my first and only flare so far. And lastly the the most miserable period of my life. The reality is that I am desperate. If someone tells me that CBD works, I am going to try it. I thought I was offering assistance to someone else who may be in my same position. The entire topic is extremely confusing. You seem to be knowledgeable ion the subject. I feel the correct response have been to recommend something better. Not just make some arrogant statement to add to the confusion.

Post Edited By Moderator (notsosicklygirl) : 5/28/2018 3:29:37 PM (GMT-6)

Posted 5/28/2018 3:35 PM (GMT -6)
One of my friends swears by CBD, but he's also on UC drugs, and he smokes MJ. He still has a lot of symptoms despite all of this. I personally think he's under-treating medically. You can walk into a store and talk to the attendants. They are usually quite knowledgeable. If you're not in a legal state, that makes it more difficult.
Posted 5/28/2018 4:10 PM (GMT -6)
The sad reality is that, currently, there is no way for me to recommend "something better" when it comes to mail order CBD.

So my only recommendation was that one should always see/request a lab purity report before spending money on a mail-order CBD product. The site you had recommended was charging an absurd amount for a CBD tincture (even after a coupon), so I felt it necessary to red flag that fact.

Even though CBD extracts are more or less 50 state legal at this time, this entire area is very immature and rocky. There is no actual regulation of CBD products yet, so a lot of the CBD businesses you find online are unapologetic scammers. Even the claims that CBD can reduce inflammation or improve sleep are worthless until the FDA performs clinical trials on a known application of CBD.

Like notsosicklygirl said, the only sure way to know you're getting CBD right now is to be in a state with legal MJ. These states require that all products sold be tested for CBD and THC content and the amounts are clearly labeled on the package.

For example, these are the labeling requirements for a manufacturer who sells MJ products in the state of Nevada:

NAC 453A.510  Labeling requirements for usable marijuana sold at retail; accompanying materials. (NRS 453A.370)

A medical marijuana dispensary must affix to each container or package containing usable marijuana sold at retail a label which must include, without limitation:
Adopted Regulation R148-15

(a) The business or trade name and the medical marijuana establishment registration certificate number of the cultivation facility that cultivated and sold the usable marijuana.

(b) The lot number.

(c) The date and quantity dispensed, including the net weight measured in ounces and grams or by volume, as appropriate.

(d) The name and registry identification card number of the patient and, if applicable, the name of his or her designated primary caregiver, or, if the patient holds a letter of approval, the name of the patient and the name and number of the registry identification card of his or her designated primary caregiver.

(e) The name and address of the medical marijuana dispensary.

(f) The cannabinoid profile and potency levels and terpenoid profile as determined by the independent testing laboratory, which may include the potential total THC but shall not include any other calculated level of THC.

(g) A warning that states: “This product may have intoxicating effects and may be habit forming.”

(h) The statement: “This product may be unlawful outside of the State of Nevada.”

(i) The date on which the marijuana was harvested.

(source: https://www.leafly.com/news/industry/a-state-by-state-guide-to-cannabis-packaging-and-labeling-laws)

Until we see something similar to this for 50 state CBD, everyone should be extremely judicious about spending money on CBD products.
Posted 5/28/2018 6:42 PM (GMT -6)

dinkydonuts said...
The sad reality is that, currently, there is no way for me to recommend "something better" when it comes to mail order CBD.

So my only recommendation was that one should always see/request a lab purity report before spending money on a mail-order CBD product. The site you had recommended was charging an absurd amount for a CBD tincture (even after a coupon), so I felt it necessary to red flag that fact.

Even though CBD extracts are more or less 50 state legal at this time, this entire area is very immature and rocky. There is no actual regulation of CBD products yet, so a lot of the CBD businesses you find online are unapologetic scammers. Even the claims that CBD can reduce inflammation or improve sleep are worthless until the FDA performs clinical trials on a known application of CBD.

Like notsosicklygirl said, the only sure way to know you're getting CBD right now is to be in a state with legal MJ. These states require that all products sold be tested for CBD and THC content and the amounts are clearly labeled on the package.

For example, these are the labeling requirements for a manufacturer who sells MJ products in the state of Nevada:

NAC 453A.510  Labeling requirements for usable marijuana sold at retail; accompanying materials. (NRS 453A.370)

A medical marijuana dispensary must affix to each container or package containing usable marijuana sold at retail a label which must include, without limitation:
Adopted Regulation R148-15

(a) The business or trade name and the medical marijuana establishment registration certificate number of the cultivation facility that cultivated and sold the usable marijuana.

(b) The lot number.

(c) The date and quantity dispensed, including the net weight measured in ounces and grams or by volume, as appropriate.

(d) The name and registry identification card number of the patient and, if applicable, the name of his or her designated primary caregiver, or, if the patient holds a letter of approval, the name of the patient and the name and number of the registry identification card of his or her designated primary caregiver.

(e) The name and address of the medical marijuana dispensary.

(f) The cannabinoid profile and potency levels and terpenoid profile as determined by the independent testing laboratory, which may include the potential total THC but shall not include any other calculated level of THC.

(g) A warning that states: “This product may have intoxicating effects and may be habit forming.”

(h) The statement: “This product may be unlawful outside of the State of Nevada.”

(i) The date on which the marijuana was harvested.

(source: https://www.leafly.com/news/industry/a-state-by-state-guide-to-cannabis-packaging-and-labeling-laws)

Until we see something similar to this for 50 state CBD, everyone should be extremely judicious about spending money on CBD products.


Now that is a fantastic response, thank you. I really mean that. I had no idea that was the case. So can I order from those states and be relatively certain I am getting what I am paying for?
Posted 5/28/2018 8:09 PM (GMT -6)

AdamMac said...

dinkydonuts said...
The sad reality is that, currently, there is no way for me to recommend "something better" when it comes to mail order CBD.

So my only recommendation was that one should always see/request a lab purity report before spending money on a mail-order CBD product. The site you had recommended was charging an absurd amount for a CBD tincture (even after a coupon), so I felt it necessary to red flag that fact.

Even though CBD extracts are more or less 50 state legal at this time, this entire area is very immature and rocky. There is no actual regulation of CBD products yet, so a lot of the CBD businesses you find online are unapologetic scammers. Even the claims that CBD can reduce inflammation or improve sleep are worthless until the FDA performs clinical trials on a known application of CBD.

Like notsosicklygirl said, the only sure way to know you're getting CBD right now is to be in a state with legal MJ. These states require that all products sold be tested for CBD and THC content and the amounts are clearly labeled on the package.

For example, these are the labeling requirements for a manufacturer who sells MJ products in the state of Nevada:

NAC 453A.510  Labeling requirements for usable marijuana sold at retail; accompanying materials. (NRS 453A.370)

A medical marijuana dispensary must affix to each container or package containing usable marijuana sold at retail a label which must include, without limitation:
Adopted Regulation R148-15

(a) The business or trade name and the medical marijuana establishment registration certificate number of the cultivation facility that cultivated and sold the usable marijuana.

(b) The lot number.

(c) The date and quantity dispensed, including the net weight measured in ounces and grams or by volume, as appropriate.

(d) The name and registry identification card number of the patient and, if applicable, the name of his or her designated primary caregiver, or, if the patient holds a letter of approval, the name of the patient and the name and number of the registry identification card of his or her designated primary caregiver.

(e) The name and address of the medical marijuana dispensary.

(f) The cannabinoid profile and potency levels and terpenoid profile as determined by the independent testing laboratory, which may include the potential total THC but shall not include any other calculated level of THC.

(g) A warning that states: “This product may have intoxicating effects and may be habit forming.”

(h) The statement: “This product may be unlawful outside of the State of Nevada.”

(i) The date on which the marijuana was harvested.

(source: https://www.leafly.com/news/industry/a-state-by-state-guide-to-cannabis-packaging-and-labeling-laws)

Until we see something similar to this for 50 state CBD, everyone should be extremely judicious about spending money on CBD products.


Now that is a fantastic response, thank you. I really mean that. I had no idea that was the case. So can I order from those states and be relatively certain I am getting what I am paying for?

No. And here is the reason why.

If you don't live in a state where recreational/medical MJ is legal, then you cannot legally buy CBD sourced from cannabis. The cannabis plant is still a federally controlled substance and is illegal to possess/consume in most states.

The 50 state legal CBD you see for sale on the web, sources its CBD from industrial hemp. Industrial hemp is an agricultural crop that is being tested/researched by the USDA and certain universities to determine its usefulness.

While industrial hemp and cannabis are quite literally the same thing (same plant species), only the cannabis plant is subject to the labeling and testing laws that I mentioned earlier.

So a company in Colorado that sells recreational MJ from the cannabis plant to Colorado residents must, by law, abide by labeling and purity standards set by that state.

But a company in Colorado that sells CBD extracted from industrial hemp to all other states is under no obligation to follow those laws.

For this reason, you pretty much need to travel to a MJ legal state and visit a dispensary and try it out legally. For now, that is really the only way to know you're getting what you paid for.
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