A little positivity

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ASellers
New Member


Date Joined Dec 2017
Total Posts : 1
   Posted 12/7/2017 6:15 PM (GMT -7)   
I was diagnosed with ulcerative colitis in 2001. Tried asacol unsuccessfully and then I was on prednisone for a while which helped. I had to take a semester off college and after the prednisone I had mild symptoms but then zero symptoms. I never had any other symptoms for years and had a perfect colonoscopy in 2015 (suggested to check by my dr since my last scope was in 01 at the age of 20). So, I thought it might be helpful for someone to read that yes- you can go into remission and for a long time.

I have been lucky, but I started my 2nd flare 10 months ago. I’ve been reading this forum a lot and it’s been so helpful to find answers to the same questions I’ve pondered. The main thing I’ve taken away is that everyone is different. Over the last 10 months I’ve found out that the 3 5-ASAs I’ve tried make my symptoms worse. I had a reaction to my 1st dose of 6mp. Prednisone has only slightly helped this time around. . After a lot of hesitation, I got my first dose of Remicade and last week and I’ve seen major improvements finally! I got to where I was easily 10-15 a day And sometimes vomiting. This week 3-4 and no blood.

So you just never know what will happen! I was very sick in 2001. I had 15 great years in between with no meds. I’m not sure how long the Remicade will work or if I’d try to get off of it one day but I wanted to share that things can get better. I’ve met people who have found a healthy place by different means, some surgery, some on 5asas, some on biologics and another by sticking with a no sugar diet. Maybe a lot of people busy with their lives don’t take the time to post in forums so I wanted to take a moment to do so. Thanks for letting me find information here and best wishes to everyone!

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 15430
   Posted 12/7/2017 6:28 PM (GMT -7)   
Hi! Thanks for sharing your story. You're right, everyone is different. I am happy you had such a long remission, but sorry that it eventually came to an end. In retrospect, it seems like it always does come to an end at some point - for many of us. On the positive side, it sounds like you've made huge strides in a short time with remicade. UC will be a thought far from your mind soon again. Hopefully you stay healthy for a very, very long time with remicade.
Co-moderator: Ulcerative Colitis
Currently: no meds. 6/15 Step One J-pouch Surgery Complete! 9/15 Step Two Complete! 11/15 Step 3 Complete!

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish.

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 11047
   Posted 12/8/2017 6:55 AM (GMT -7)   
Welcome to the forum! Glad you're doing well on remicade. UC is characterized as having periods of remission and flares, so we all do eventually flare. The goal is to make those flares as infrequent and mild as possible. Since being on remicade I've had much less frequent and much more mild flares.
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

U.C. = Unimaginable Crapnado
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